The Impact of Patient-Centered Information on Patients' Treatment Satisfaction and Outcomes in Traumatic Brain Injury Rehabilitation.

Abstract

To evaluate the effects on patients with traumatic brain injury (TBI) of detailed, personalized information about their injuries, acute care treatment, and rehabilitation progress. Participants: Twentyeight former or present military personnel (mean age ϭ 30 years) with moderate to severe TBI (mean of 29 days spent in intensive care before admission to TBI unit). Design: Two (personalized information vs. general information) ϫ 2 (high-vs. low-patient preference for health care information) factorial design. Interpersonal behavior of patients, information providers, and health care staff were measured by the Impact Message Inventory. Outcome Measures: Rehabilitation Intensity of Therapy Scale, Functional Independence Measure, Treatment Satisfaction Questionnaire. Results: Patients given personalized information exerted greater effort in physical therapy, made greater improvement in functional independence, and were more satisfied with rehabilitation treatment. Patient preference for information and ratings of interpersonal behavior were largely unrelated to patient outcomes. Conclusion: Cognitively impaired TBI patients can benefit from interventions designed to enhance their sense of control and personal involvement in their own care.

Effectiveness of Critical Care Discharge Information in Supporting Early Recovery From Critical Illness

“…Findings from Paul et al 12 suggest that both patients and their relatives would value even more attention to the tailoring of information to individual circumstances. Additional evidence from studies with other critical care populations, 19,21,22 leads us to surmise that information based on individual assessment of need and capability is likely to be more effective than the provision of generic information. Evidence from our review and other literature suggests that providing information can aid shared decision making during critical illness recovery and that, even in more unwell persons, participation strategies are feasible when the right support is provided.…”

“…Publications from both critical care and other areas of practice [20][21][22][23][24][25] suggest that personalization of information, active involvement of patients and family members in identifying and meeting their own needs, and offering opportunities for reflection could all be important factors that can increase the effectiveness of critical care discharge information. Such views are supported by Knowles,26 who argues that adults are a diverse population with a range of experience and that adults learn best when goals and objectives are considered realistic and important to them and when they are actively involved.…”

Interventions to increase engagement with rehabilitation in adults with acquired brain injury: A systematic review

“…These ranged from providing clients with tailored information about their condition (Pegg et al, 2005) through to interventions targeting broader meta-cognitive processes, equipping clients with the skills to plan, execute and evaluate their own rehabilitation (Skidmore et al, 2011) or enabling client involvement in a collaborative process of identifying, working towards and evaluating rehabilitation goals Lane-Brown & Tate, 2010).…”

“…Pegg et al (2005) found that providing personalised information on their injury and rehabilitation progress increased clients' exerted effort in subsequent physical but not speech therapy, and their improvement in cognitive rehabilitation.…”

“…Eight studies reported interventions using predominantly behavioural modification techniques (Hegel, 1988Zencius, Wesolowski, Burke & McQuade, 1989;Yuen, 1996;Manchester, Hodgkinson, Pfaff & Nguyan, 1997;Newell, 1997;Sohlberg, Lemoncello & Lee, 2011;Hufford et al, 2012), 5 studies primarily cognitive techniques (Pegg et al, 2005;Lane-Brown & Tate, 2010;Skidmore et al, 2011;Hsieh, Ponsford, Wong, Schönberger, Taffe & Mckay, 2012;Hsieh, Ponsford, Wong, Schönberger, Mckay & Haines, 2012) and 2 studies reported a mixture of the two (Corrigan, Bogner, Lamb-Hart, Heinemann & Moore, 2005;Corrigan & Bogner, 2007).…”