The impact of social media use on depression in multiple sclerosis patients

Farpour, Hamid Reza; Hoveidaei, Amir Human; Habibi, Leila; Moosavi, Mahsa; Farpour, Sima

doi:10.1007/s13760-020-01407-1

Cited by 18 publications

(22 citation statements)

References 28 publications

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“…Significant difference in QOL was also found between patients who were concerned with the most prevalent issue and those who were not for the NT and RS patients, but not the CT patients (Additional Table 2). It is not surprising that NT and RS patients' QOL is more significantly affected as these are vulnerable times in the survivorship trajectory and the psychological distress confronting them is well reported in the literature [4,53,54].…”

Section: Discussionmentioning

confidence: 99%

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Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory

Chua

Tan

et al. 2019

Preprint

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Background Survivors of cancer deal with a myriad of acute, chronic, and late effects of cancer and its treatment which can linger on for decades and inadvertently affect their quality of life (QOL). The aim of this study is to determine the main concerns of survivors at various stages of the cancer survivorship and to assess whether these concerns have any effect on their QOL. Methods A cross-sectional survey was conducted on cancer survivors diagnosed with colorectal, breast, lung, gynaecological, prostate or liver cancers who were seen at the National Cancer Centre Singapore between 11 April and 12 July 2017. Eligible study participants self-completed a questionnaire adapted from the Mayo Clinic Cancer Centre’s Cancer Survivors Survey of Needs.QOL was rated by participants on a scale of 0 – 10, with higher ratings denoting higher level of QOL. Results A total of 1107 cancer survivors filled in the questionnaire. The top 5 concerns among all survivors were cancer treatment and recurrence risk (51%), followed by long-term treatment effects (49%), fear of recurrence (47%), financial concerns (37%) and fatigue (37%). Cancer treatment and recurrence risk, long-term treatment effects and fear of recurrence were amongst the top concerns across the survivorship trajectory. Mean QOL was 7.3 on a scale of 0 – 10. Completed treatment patients had higher QOL score than the newly diagnosed and on treatment patients and the patients dealing with recurrence or second cancer patients. Predictors for QOL included the economic status and housing type of patients and whether patients were concerned with pain and fatigue. Conclusion This study confirms that cancer survivors in Singapore face multiple challenges and had various concerns at various stages of cancer survivorship, some of which negatively affect their QOL. It is critical to design patient care delivery systems that appropriately addresstheir key concerns at different stages of their cancer trajectory so as to enhance their coping skills throughout their cancer journey.

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Section: Discussionmentioning

confidence: 99%

“…Cancer survivors experience high level of physical, emotional, and social problems related to their cancer and treatment [3][4][5][6][7]. Besides the short-term adverse effects of cancer treatment, cancer treatment can also cause long-term (late) health effects.…”

Section: Introductionmentioning

confidence: 99%

Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory

Chua

Tan

et al. 2019

Preprint

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“…This study also found significant difference in QOL between patients who were concerned with the most prevalent issue and those who were not for the newly diagnosed and recurrence patients, but not within those who had completed treatment. It is not surprising that newly diagnosed and recurrence patients' QOL is more significantly affected as these are vulnerable times in the survivorship trajectory and the psychological distress confronting them is well reported in the literature [4,[63][64][65]. This finding also underscores the importance of creating an environment that assesses, monitors and supports the information and supportive care needs for these at risk patients.This is critical as well informed and supported patients have been associated with many positive outcomes, including, increased patient involvement in decision making, increased satisfaction with treatment decisions, enhanced coping during the diagnostic, treatment and post treatment phases of illness, decreased anxiety and mood disturbances, and less emotional distress [18,19,23,[66][67][68].…”

Section: Discussionmentioning

confidence: 91%

“…The biomedical definition of cancer survival refers to population of cancer patients who live disease-free for at least 5 years after treatment. In contrast, the National Cancer survivors experience high level of physical, emotional, and social problems related to their cancer and treatment [3][4][5][6][7]. Besides the short-term adverse effects of cancer treatment, cancer treatment can also cause long-term (late) health effects.…”

Section: Introductionmentioning

confidence: 99%

Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory: A Singapore Perspective

Chua¹,

Ng²,

Tan³

et al. 2019

Preprint

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Background The aim of this study is to determine the main concerns of survivors at various stages of the cancer survivorship of the cancer survivorship trajectory and to assess whether these concerns have any effect on their quality of life (QOL). The overall goal was to use the insights from the study to guide practice on patient care. Methods A cross-sectional survey of 1107 cancer survivors diagnosed with colorectal, breast, lung, gynaecological, prostate or liver cancers from a cancer centre in Singapore. Eligible patients self-completed a questionnaire adapted from the Mayo Clinic Cancer Centre’s Cancer Survivors Survey of Needs. Results The top 5 concerns among all survivors were cancer treatment and recurrence risk (51%), followed by long-term treatment effects (49%), fear of recurrence (47%), financial concerns (37%) and fatigue (37%). Cancer treatment and recurrence risk, long-term treatment effects and fear of recurrence were amongst the top concerns across the survivorship trajectory. Mean QOL was 7.3 on a scale of 0 – 10. Completed treatment patients had higher QOL score than the newly diagnosed and on treatment patients and the patients dealing with recurrence or second cancer patients. Predictors for QOL included the economic status and housing type of patients and whether patients were concerned with pain and fatigue Conclusion This study confirms that cancer survivors in Singapore face multiple challenges and had various concerns at various stages of cancer survivorship, some of which negatively affect their QOL It is critical to design patient care delivery that appropriately address the various concerns of cancer survivors in order for them to cope and improve their QOL.

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“…The diagnosis of cancer stresses any individual; this is related to the symptoms of the disease and to the psychology of its affliction 1 2. To many people, cancer implies a death sentence; to others it implies suffering and pain 3 4.…”

Section: Introductionmentioning

confidence: 99%

A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

Chua

Tan

2020

BMJ Open

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ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

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The impact of social media use on depression in multiple sclerosis patients

Cited by 18 publications

References 28 publications

Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory

Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory

Concerns and Quality of Life of Cancer Survivors Across the Survivorship Trajectory: A Singapore Perspective

A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

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