The impact of the patient post-intensive care syndrome components upon caregiver burden

Torres, J.; Carvalho, D.; Molinos, Elena; Vales, C.; Ferreira, Amélia; Dias, Cláudia Camila; Araújo, Rui Esteves; Gomes, Ernestina

doi:10.1016/j.medin.2016.12.005

Cited by 34 publications

(63 citation statements)

References 21 publications

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“…This finding is supported by a review where cohabitation were a significant predictor for burden amongst caregivers of patients with dementia. In contrast to a previous study concerning caregivers of ICU-301 survivors, 43 we did not find an association between psychosocial 302 problems of the survivor and increased caregiver burden. This may 303 be due to the generally low levels of anxiety and depression that we found compared with a cohort of general ICU-survivors.…”

contrasting

confidence: 99%

“…This may 303 be due to the generally low levels of anxiety and depression that we found compared with a cohort of general ICU-survivors. 43 305 indicating a more universal concern amongst caregivers of critically ill patients. 45 The foremost strength of this study is the well-defined prospective cohort from an international setting, with only a small number of non-respondents and efforts to also capture the experience of caregivers to survivors with the poorest outcome.…”

mentioning

confidence: 99%

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Caregiver burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors

et al. 2021

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Aims: To describe burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors and explore the potential association with cognitive function of the survivors. Caregivers of patients with ST-elevation myocardial infarction were used as controls.Methods: Data were collected from the cognitive substudy of the Targeted Temperature Management-trial. Caregiver burden was assessed with the 22-item Zarit Burden Interview, with scores 20 considered as no burden. Health-related quality of life was assessed with the SF-36v2 Ò , with Tscores 47-53 representing the norm. Cardiac arrest survivors were categorized based on the results from cognitive assessments as having "no cognitive impairment" or "cognitive impairment".Results: Follow-up 6 months post event was performed for caregivers of 272 cardiac arrest survivors and 108 matched myocardial infarction controls, included at an intended ratio of 2:1. In general, caregivers of cardiac arrest survivors and controls reported similar caregiver burden. The overall scores for quality of life were within normative levels and similar for caregivers of cardiac arrest survivors and control patients. Compared to those with no cognitive impairment, caregivers of cognitively impaired cardiac arrest survivors (n = 126) reported higher levels of burden (median 18 versus 8, p < 0.001) and worse quality of life in five of eight domains, particularly "Role-Emotional" (mean 45.7 versus 49.5, p = 0.002). Conclusions:In general, caregivers of cardiac arrest survivors and myocardial infarction controls reported similar levels of burden and quality of life. Cognitive outcome and functional dependency of the cardiac arrest survivor impact burden and quality of life of the caregiver.

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Caregiver burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors

et al. 2021

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“…Prevalence of PICS‐F conditions in the relatives of adult patients is shown in Table . The wide range of rates is due to differences in each study's patient population, measurement tools, and time frames varying from 1 week to 1 year.…”

Section: Introductionmentioning

confidence: 99%

Post‐intensive care syndrome: its pathophysiology, prevention, and future directions

Inoue

Hatakeyama

Kondo

et al. 2019

Acute Medicine & Surgery

402

365

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Expanding elderly populations are a major social challenge in advanced countries worldwide and have led to a rapid increase in the number of elderly patients in intensive care units (ICUs). Innovative advances in medical technology have enabled lifesaving of patients in ICUs, but there remain various problems to improve their long‐term prognoses. Post‐intensive care syndrome (PICS) refers to physical, cognition, and mental impairments that occur during ICU stay, after ICU discharge or hospital discharge, as well as the long‐term prognosis of ICU patients. Its concept also applies to pediatric patients (PICS‐p) and the mental status of their family (PICS‐F). Intensive care unit‐acquired weakness, a syndrome characterized by acute symmetrical limb muscle weakness after ICU admission, belongs to physical impairments in three domains of PICS. Prevention of PICS requires performance of the ABCDEFGH bundle, which incorporates the prevention of delirium, early rehabilitation, family intervention, and follow‐up from the time of ICU admission to the time of discharge. Diary, nutrition, nursing care, and environmental management for healing are also important in the prevention of PICS. This review outlines the pathophysiology, prevention, and future directions of PICS.

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“…La movilización precoz entre el segundo y quinto día permite disminuir la incidencia y las secuelas de la debilidad adquirida en las UCI (40,41,42,43,44,45,46). Por tanto, los programas de apoyo entre pares de la UCI implican una interacción regular y constante con otros sobrevivientes de la UCI y sus familias (32).…”

Section: Estrategias De Prevenciónunclassified

“…En cuanto a los cuidadores, la calidad subjetiva de su sueño se correlaciona con síntomas depresivos y la carga de responsabilidades constantes a lo largo del tiempo (49). Los factores de riesgo identicados por el cuidador para PICS-F son género femenino, pariente más joven, ser cónyuge, edad de los pacientes mayores, condiciones más crónicas, interferencia en el estilo de vida, menor dominio y sobrecarga (42). Lastimosamente, las intervenciones efectivas para apoyar a los cuidadores durante la enfermedad crítica son limitadas, aunque se reportan intervenciones antiestrés por medio del Entrenamiento Enfocado en la Conciencia de las Sensaciones (E-ECS), el cual facilita la atención centrada en la familia (51).…”

Section: Síndrome Post Unidad Cuidado Intensivo En La Familia Pics-funclassified

Características del síndrome post cuidado intensivo: revisión de alcance

Castaño

Buitrago

Ramírez

et al. 2021

Investg. Enferm. Imagen Desarollo.

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Objetivo: identificar la evidencia disponible de las características del síndrome post unidad de cuidado intensivo en el paciente que egresa de la unidad de cuidado intensivo. Método: revisión de alcance con la metodología del Joanna Briggs Institut, en cinco bases de datos con la estrategia de búsqueda ([PostIntensive AND Care AND Syndrome] [Nursing AND Care AND PICS]). Se incluyeron estudios primarios publicados entre los años 2010 y 2020, disponibles en texto completo. Resultados: después del análisis de los 48 estudios primarios se extrajeron seis categorías temáticas así: aspecto cognitivo en el síndrome post UCI, osteomusculares, psicoemocionales, estrategias de prevención con modelos de sobrevivientes de UCI, síndrome post unidad cuidado intensivo en la familia y herramientas de evaluación. Conclusiones: mejorar la calidad de atención de los pacientes que presentan este síndrome, prevenir la aparición y aumentar la calidad de vida prestada a los sobrevivientes de UCI y sus familias. La evidencia reporta que entre los cuidadores se pueden desencadenar distintos trastornos que disminuyen su calidad de vida. La enfermería juega un papel crucial en la prevención de la aparición del síndrome mediante estrategias en la UCI e interdisciplinares; los planes de egreso y seguimiento a los pacientes pueden lograr que estos se rehabiliten más rápido y eviten discapacidades o secuelas a largo plazo.

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The impact of the patient post-intensive care syndrome components upon caregiver burden

Cited by 34 publications

References 21 publications

Caregiver burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors

Caregiver burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors

Post‐intensive care syndrome: its pathophysiology, prevention, and future directions

Características del síndrome post cuidado intensivo: revisión de alcance

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