The impact of type 1 diabetes on young adults’ health-related quality of life

Bronner, Madelon B.; Peeters, Mariëlle A C; Sattoe, Jane N. T.; Staa, AnneLoes van

doi:10.1186/s12955-020-01370-8

Cited by 35 publications

(27 citation statements)

References 38 publications

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“…Average household income and treatment modality were not strong predictors of differences in QoL. Other studies have shown an association between a lower QoL and factors like poor glycemic control, fear of hypoglycemia and complications, and lack of confidence in self-management (Alvarado-Martel et al, 2015;Liu et al, 2020) being higher in FD users. This suggests that a subsidized alternative of MDI could improve QoL, decreasing cardiovascular disease probability by 30% and acute cardiovascular events by 32% (DCCT, 2016).…”

Section: Discussionmentioning

confidence: 69%

Costs and economic impacts of type-1 diabetes from the Dominican patient perspective

Gutiérrez

Peña

Almonte

et al. 2021

ppcrj

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Objective: Estimate the economic burden of type 1 diabetes (T1D) in the Dominican Republic and its impact on treatment adherence and patients' quality of life (QoL). Materials and Methods: Cross-sectional observational study about T1D treatment cost and adherence plus patients QoL. The total monthly cost of treatment regimes was calculated through microcosting analysis and correlated with a national minimum wage (NMW) and average household income. Sociodemographic, clinical, treatment adherence and QoL data were obtained through an online questionnaire. In an exploratory approach, all variables were compared with the categorization of household income. Results: Fixed doses (FD) regime has the lowest cost (46% of the NMW) and continuous subcutaneous insulin infusion (CSII) the highest (540% of the NMW). The lower household income group had less insurance coverage (P= 0.034), purchased fewer diabetes management supplies for cost-related reasons (P= 0.014), performed less glycemic monitoring (P= 0.016), and had more cost-related factors limiting appropriate treatment and follow-up (P= 0.030). Also, the FD treatment modality predominated in this group, while Multiple Daily Injections and constant subcutaneous insulin injection prevailed on the higher income group (P= 0.005). The QoL mean scores were 31.63 (SD 8.02) in the lowerincome group and 32.52 (SD 8.81) in the higher-income one. Conclusions: T1D has a high monthly economic impact, potentially worsening treatment adherence and QoL, especially in the lower socioeconomic status population. Efforts must be made by the healthcare system to enhance the economic support and management of this disease.

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Section: Discussionmentioning

confidence: 69%

Costs and economic impacts of type-1 diabetes from the Dominican patient perspective

Gutiérrez

Peña

Almonte

et al. 2021

ppcrj

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“…An example is the structural use of quality of life questionnaires. Regularly addressing psychosocial issues is highly recommended for young adults with T1DM, many of whom experience psychosocial problems and diabetes-related distress (Bronner et al, 2020;Iyengar et al, 2019;Van Staa et al, 2020). However, we do not know if and how the teams that use quality of life questionnaires bring up quality of life issues during consultations.…”

Section: Discussionmentioning

confidence: 99%

The added value of transition programs in Dutch diabetes care: A controlled evaluation study

Peeters

Sattoe

Bronner

et al. 2022

Journal of Pediatric Nursing

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The desirability of evaluating transition programs is widely acknowledged. This study aimed to explore the added value of transitional care investments for young adults with type 1 diabetes mellitus. Design and methods: Based on qualitative data, two groups of diabetes teams were created through cluster analysis: paying more (HI-ATT) versus less attention (LO-ATT) to transitional care. Retrospective controlled evaluation included chart reviews on healthcare use and clinical outcomes; and a survey on young adults' experiences, satisfaction with care, and self-management skills. Results: Data from 320 patients in fifteen diabetes teams were collected; 123 young adults (38.4%) completed a questionnaire. Self-reported outcomes showed that young adults treated by a HI-ATT team felt better prepared for transfer (p < .05). Self-management outcomes did not differ between groups. HI-ATT teams had more scheduled consultations in the year after transfer (p < .05); only 10.6% of all measurements had reached targeted HbA1c scores. Conclusions: Current transitional care investments in Dutch diabetes care did not lead to notable improvements in experiences and outcomes, except for preparation for transfer. The period after transfer, however, is just as important. Attention is required for parent involvement. Practice implications: Transitional care investments should extend beyond the transfer. By educating young adults about the importance of regular clinic attendance and introducing additional person-centered consultations in adult care, nurses may help ensure continuity of care. Nurses could also introduce support programs for parents to prepare for the transition and their change in role, taking into account their continuing partnership.

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“…An example is the structural use of quality of life questionnaires. Regularly addressing psychosocial issues is highly recommended for young adults with T1DM, many of whom experience psychosocial problems and diabetes-related distress [7,25,32]. However, we do not know if and how the teams that use quality of life questionnaires bring up quality of life issues during consultations.…”

Section: Comparisons With Existing Literaturementioning

confidence: 99%

The added value of transition programs in Dutch diabetes care: A controlled evaluation study

Peeters

Sattoe

Bronner

et al. 2020

Preprint

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Background The desirability of evaluating transition programs is widely acknowledged. This study aimed to explore the added value of transitional care investments for young adults with type 1 diabetes mellitus. Methods On the basis of qualitative data, two groups of diabetes teams were created through cluster analysis: paying more (HI-ATT) versus less attention (LO-ATT) to transitional care. Retrospective controlled evaluation included chart reviews on healthcare use and clinical outcomes; and a survey on young adults’ experiences, satisfaction with care, and self-management skills. Results Data from 320 patients in fifteen diabetes teams were collected; 142 young adults (38.4%) completed a questionnaire. Self-reported outcomes showed that young adults treated by a HI-ATT team felt better prepared for transfer (p <.05). Self-management outcomes did not differ between groups. HI-ATT teams had more scheduled consultations in the year after transfer (p <.05); only 10.6% of all participants had reached targeted HbA1c scores. Conclusions The attention being paid to transition in Dutch diabetes care does not lead to notable improvements in experiences and outcomes, except for preparation for transfer. The period after transfer, however, is just as important. Attention is required for parent involvement. Considering actual implementation and adaptation of interventions is recommended for future evaluation studies.

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The impact of type 1 diabetes on young adults’ health-related quality of life

Cited by 35 publications

References 38 publications

Costs and economic impacts of type-1 diabetes from the Dominican patient perspective

Costs and economic impacts of type-1 diabetes from the Dominican patient perspective

The added value of transition programs in Dutch diabetes care: A controlled evaluation study

The added value of transition programs in Dutch diabetes care: A controlled evaluation study

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