The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability – a pilot study

Gaetano, Katia De; Saviola, Donatella; Brunetti, D.; Tanti, Antonio De

doi:10.1080/21622965.2021.1971525

Cited by 7 publications

(6 citation statements)

References 28 publications

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“…They have to invest considerably more time in the care and nurturing of their child, while worry is an integral part of their everyday lives [3,7]. However, the greatest stress is exhibited by parents of children with behavioral problems [8][9][10], causing fear of stigmatization and avoidance of public situations, as well as illnesses that require comprehensive and ongoing care for their children [4]. Many families have to change or even give up their careers in order to ensure adequate care for their child [7].…”

Section: Introductionmentioning

confidence: 99%

The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study

Scheibner,

Hornemann

et al. 2024

Children

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Even though it is already known that parents of children with developmental delays or disabilities experience higher parenting stress than families of typically developing children, the contributing factors need to be analyzed in more detail. The aim of this cross-sectional study was to examine the influence of demographic characteristics on parenting stress from caring for a disabled child and to identify possible protective or additional stressful social factors. A total of 611 mothers and fathers of children with developmental delays, chronic diseases, or disabilities completed two questionnaires during their medical appointments at the Children’s Development Center (CDC) of Leipzig University Hospital between June 2020 and February 2021. These consisted of the German versions of the Parenting Stress Index (PSI) and the Impact on Family Scale (IOFS). To determine differences between the various groups, we used parametric and non-parametric tests. Mothers and single parents are significantly more strained than fathers and non-single parents. Parents with vocational training, those who graduated with a higher-level diploma, and those within employment report a higher financial burden. While unemployed and full-time workers experience the lowest stress, parents who work part-time or exclusively take care of their child show higher levels of stress. Looking at the age of the child, parents of children of young primary school age are the most stressed, and those of infants are the least stressed. These findings suggest that mothers and single parents especially should receive more support, and parents need to be provided with more attention during their child’s entry into school. Possible limitations and the influence of the COVID-19 pandemic are discussed.

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Section: Introductionmentioning

confidence: 99%

The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study

Scheibner,

Hornemann

et al. 2024

Children

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“…The results of previous research have demonstrated a close relationship between parents' stress levels and their capabilities to manage family problems (Niedbalski 2022;Wen & Chu 2020), their mental and emotional well-being (Huang et al 2014;Picardi et al 2018), as well as the behavior and special needs of children (Abidin 1990;Benesova & Sikorova 2022;De Gaetano 2022;Miranda et al 2019). Furthermore, parents are expected to adore, support, accept, and cherish their children unconditionally, which is a strong social stigma against them.…”

Section: Introductionmentioning

confidence: 99%

Parenting Stress: Comparison Between Parents of Atypical Children and Typical Children

Wong Siea Liang,

Mohd Mokhtar Tahar

2024

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Parenting stress is experienced when demand exceeds the capabilities and resources that parents have. This study aims to compare the level of parental stress between parents of atypical children and typical children. A survey has been conducted with 46 parents of atypical children and 54 parents of typical children who were selected around Selangor. The Parenting Stress Index-Short Form (PSI-SF), which is formed from three domains: (1) parental distress, (2) parent-child dysfunctional interaction, and (3) difficult child, has been used to measure the level of parenting stress. The samples were asked to fill out the PSI-SF questionnaire, and the data collected was then analyzed with the Statistical Package for Social Sciences, version 27.0. The result showed that there was a significant difference in parenting stress levels between parents of atypical children and typical children. The mental health of atypical parents is greatly affected not only by the stress of daily life, work, marital problems, interpersonal relationships, and so on. Many of them also feel lonely and isolated since their worries and anxiety are not being understood. The implication of this study is to create awareness among parents of atypical children about their state of mental health before it reaches levels of depression. Therefore, appropriate support and assistance are needed by this group of parents in order to improve their quality of life and family relationships.

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“…To improve the wellbeing of the parents or informal caregivers of children with SEN, it is essential to identify the risk factors and protective factors for stress in this population. The aim of this study was to identify the risk factors and protective factors affecting the stress level of the parents of children with SEN. A better understanding of these factors may help to provide guidelines for service providers to design effective interventions ( 17 – 19 ).…”

Section: Introductionmentioning

confidence: 99%

Parental stress in families of children with special educational needs: a systematic review

Cheng,

Lai

2023

Front. Psychiatry

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BackgroundThis systematic review aimed to identify the risk factors and protective factors for parental stress in families with children with special educational needs. Studies have indicated that the wellbeing of families is related to the physical, psychological, and social conditions of the children, as well as the family functioning, stress coping strategies, and social and professional support of their parents. The parents of children with special educational needs experience high levels of parental stress. Identifying the associated risk factors and protective factors may shed light on the provision of interventions to promote the mental wellbeing of these parents.MethodsBoolean operators were used to search multiple online databases, and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were applied in this systematic review. Data were extracted into categories of population, age, region, the child's diagnosis, the stress-measuring instrument, and the risk factors and protective factors.ResultsTwenty-six studies, including 5,169 parents and 3,726 children, were reviewed. The following four major risk factors and protective factors were found to be associated with parental stress: the sex of the parents, diagnosis-related coping issues, socioeconomic characteristics, and social isolation of the parents.ConclusionsThis systematic review identified four significant risk factors and protective factors related to social support from couples, family members, and social circles. Various agencies may provide financial and manpower assistance and professional support and services to improve the parents' knowledge and coping skills, as well as affectional support, early screening, and continuous assessment of the parents' progress. Social policies and interventions offering continuous and diagnosis-related support to the parents of children with special educational needs are highly recommended.

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The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability – a pilot study

Cited by 7 publications

References 28 publications

The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study

The Impact of Demographic Characteristics on Parenting Stress among Parents of Children with Disabilities: A Cross-Sectional Study

Parenting Stress: Comparison Between Parents of Atypical Children and Typical Children

Parental stress in families of children with special educational needs: a systematic review

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