The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life

Zigler, Christina K.; Jacobe, H; Ardalan, Kaveh; Coles, Theresa; Lane, Sidney; Schollaert, Kaila L.; Torok, Kathryn S.

doi:10.1007/s11136-020-02575-6

Cited by 6 publications

(8 citation statements)

References 32 publications

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“…Currently, little is known regarding the comprehensive impact of various health state vignettes on the elicited TTO utilities. Vignette designs are not standardized and Our findings support the use of a common approach to vignette development [26,29,61].…”

Section: Discussionmentioning

confidence: 58%

“…Domains describe disease-specific burdens and attributes while simultaneously differentiating the stages of disease severity [28]. Health descriptions are extremely important to obtain accurate utility results, and differences in similar health state descriptions are possible sources of systematic differences in responses [29,30]. Several studies have reported that presentation of the valuation task has an impact on the values, thus, elicited [31][32][33].…”

Section: Introductionmentioning

confidence: 99%

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Time trade-off health state utility values for depression: a systematic review and meta-analysis

et al. 2022

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Purpose This study aims to systematically review the literature on health utility in depression generated by time trade-off (TTO) method and to compare health state vignettes. Methods Systematic literature search was conducted following PRISMA guideline in 2020 November (updated in 2022 March) in Pubmed, Web of Science, PsycInfo, and Cochrane Database of Systematic Reviews. Random effect meta-analysis was conducted to pool vignette-based utility values of mild, moderate, and severe depression and to compare the preferences of depressed and nondepressed population. Results Overall, 264 records were found, 143 screened by title and abstract after removing duplicates, 18 assessed full text, and 14 original publications included. Majority of the studies (n = 9) used conventional TTO method, and most of the studies (n = 8) applied 10-year timeframe. Eight studies evaluated self-experienced health (own-current depression). Six studies assessed vignette-based health states of remitted, mild, moderate, and severe depression, half of them applied McSad measure based health description. Altogether, 61 different utility values have been cataloged, mean utility of self-experienced depression states (n = 33) ranged between 0.89 (current-own depression) and 0.24 (worst experienced depression). Pooled utility estimates for vignette-based mild, moderate, and severe depression was 0.75, 0.66 and 0.50, respectively. Meta-regression showed that severe depression (β = −0.16) and depressed sample populations (β = −0.13) significantly decrease vignette-based utility scores. Conclusion Our review revealed extent heterogeneity both in TTO methodology and health state vignette development. Patient’s perception of depression health states was worse than healthy respondents.

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Section: Discussionmentioning

confidence: 58%

Section: Introductionmentioning

confidence: 99%

Time trade-off health state utility values for depression: a systematic review and meta-analysis

et al. 2022

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“…11 At the time of the study, the LoSQI consisted of 21 items across three theoretical domains ([1] skin sensations; [2] physical functioning and musculoskeletal sequelae; and [3] body image and social support), alongside an optional subscale that included 12 items about medication attitudes and relevant adverse effects. This initial version of the LoSQI also included a set of exploratory anchoring vignettes that were administered prior to the self-report items (described in Zigler et al 12 ).…”

Section: The Losqimentioning

confidence: 99%

“…The internal structure of the survey was examined using confirmatory factor analysis (CFA) using the final factor structure, as supported by our theoretical framework and the EFA results. 7,28 We utilized not only IRTPRO 4.2 (Scientific Software International, Inc.) for these analyses, but also ran the same model in MPLUS (version 8.2, Muthen & Muthen) to estimate additional model fit statistics that were not available in IRTPRO 29 : the comparative fit index (CFI > 0.95), Tucker-Lewis index (>0.95), and root mean square error of approximation (RMSEA < 0.06). Final results are reported using the specifications of the item-response theory twoparameter logistic (2PL) model on binary items; parameters can be utilized for scoring the two scales.…”

Section: Internal Structure and Item Reductionmentioning

confidence: 99%

Cross‐sectional quantitative validation of the paediatric Localized Scleroderma Quality of Life Instrument (LoSQI): A disease‐specific patient‐reported outcome measure

Zigler

Lin

Ardalan

et al. 2023

Acad Dermatol Venereol

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Background: The Localized Scleroderma Quality of Life Instrument (LoSQI) is a diseasespecific patient-reported outcome (PRO) measure designed for children and adolescents with localized scleroderma (LS; morphea). This tool was developed using rigorous PRO methods and previously cognitively tested in a sample of paediatric patients with LS. Objective: The purpose of this study was to evaluate the psychometric properties of the LoSQI in a clinical setting. Methods: Cross-sectional data from four specialized clinics in the US and Canada were included in the analysis. Evaluation included reliability of scores, internal structure of the survey, evidence of convergent and divergent validity, and test-retest reliability. Results: One hundred and ten patients with LS (age: 8-20 years) completed the LoSQI. Both exploratory and confirmatory factor analysis supported the use of two sub-scores: Pain and Physical Functioning, and Body Image and Social Support. Correlations with other PRO measures were consistent with pre-specified hypotheses. Limitations: This study did not evaluate longitudinal validity or responsiveness of scores. Conclusion:Results from a representative sample of children and adolescents with LS continue to support the validity of the LoSQI when used in a clinical setting. Future work to evaluate the responsiveness is ongoing.How to cite this article: Zigler CK, Lin L, Ardalan K, Jacobe H, Lane S, Li SC, et al. Cross-sectional quantitative validation of the paediatric Localized Scleroderma Quality of Life Instrument (LoSQI): A disease-specific patient-reported outcome measure.

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“…While this method has been successfully applied in various disciplines ( 9 , 14 – 21 ), this approach is relatively novel in mental health research. Therefore, in the current study, we utilized a parametric modeling approach when applying the AV methodology to a multiple-item, variable response-set scale in the domain of mental health ( 14 , 16 , 18 – 20 , 22 – 24 ). Uniquely, the UK perinatal cohort in our study was established prior to the Indian cohort, so a new auxiliary calibration sample was recruited in the United Kingdom, matched on key eligibility criteria, to generate a correction factor for ratings in the original sample.…”

Section: Abbreviationsmentioning

confidence: 99%

Experience and Reporting of Postnatal Depression Across Cultures: A Comparison Using Anchoring Vignettes of Mothers in the United Kingdom and India

Bluett-Duncan,

Pickles,

Chandra

et al. 2023

American Journal of Epidemiology

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Postnatal mental health is often assessed using self-assessment questionnaires in epidemiological research. Differences in response style, influenced by language, culture and experience, may mean that the same response may not have the same meaning in different settings. These differences need to be identified and accounted for in cross-cultural comparisons. We describe the development and application of anchoring vignettes to investigate the cross-cultural functioning of the Edinburgh Postnatal Depression Scale (EPDS) in urban community samples in India (n = 828) and the UK (n = 549), alongside a UK calibration sample (n = 226). Participants completed the EPDS and anchoring vignettes when their children were 12-24 months old. In an unadjusted item-response theory model, UK mothers reported higher depressive symptoms than Indian mothers (d = .48, 95% CI: .358, .599). Following adjustment for differences in response style, these positions were reversed (d = -.25, 95% CI: -.391, -.103). Response styles vary between India and the UK, indicating a need to take these differences into account when making cross-cultural comparisons. Anchoring vignettes offer a valid and feasible method for global data harmonisation.

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The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life

Cited by 6 publications

References 32 publications

Time trade-off health state utility values for depression: a systematic review and meta-analysis

Time trade-off health state utility values for depression: a systematic review and meta-analysis

Cross‐sectional quantitative validation of the paediatric Localized Scleroderma Quality of Life Instrument (LoSQI): A disease‐specific patient‐reported outcome measure

Experience and Reporting of Postnatal Depression Across Cultures: A Comparison Using Anchoring Vignettes of Mothers in the United Kingdom and India

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