The importance of expectations on the recovery period after cancer treatment

Winterling, Jeanette; Glimelius, Bengt; Nordin, Karin

doi:10.1002/pon.1216

Cited by 22 publications

(26 citation statements)

References 35 publications

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“…Nevertheless, they had to handle a situation with pain and nutrition problems, fatigue, and psychological distress i.e., experiences common in a less than optimized palliative situation, by themselves (World Health Organization, 2002). The relatively dark picture of the situation and of the future reported by the relatives in our study differs from at least one other study (Winterling et al, 2008) Several studies of cancer patients and their relatives have reported that the common experience of a difficult situation has resulted in positive changes in the relationship (Drabe et al, 2013;Ruf et al, 2009). This was also the case in our study in which several relatives noted that they had become closer to the patient.…”

Section: Discussioncontrasting

confidence: 97%

How relatives of patients with head and neck cancer experience pain, disease progression and treatment: A qualitative interview study

Schaller¹,

Liedberg²,

Larsson³

2014

European Journal of Oncology Nursing

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1 AbstractPurpose: This study of relatives to patients with head and neck cancer (HNC) treated with radiotherapy describes how the relatives experienced the patient´s situation, especially with respect to pain, and how the relatives themselves experienced the situation.Methods: Semi-structured interviews of 21 relatives to HNC patients who suffered from pain were conducted, and a qualitative content analysis was performed.Results: The relatives experienced that the patients suffered from physical, psychological, and social pain. A dark picture consisting of lack of participation and knowledge, psychological distress, and lack of support were reported. Thus, a main category: relatives struggle with loves one´s pains related to head and neck cancer treatment and with their own demanding situation -was based on the following four categories: inability to relieve and comprehend the physical suffering of the patients; overwhelming emotions were experienced that affect the patients and the relatives themselves; in need of support from the health care service; and altered daily activities and family roles due to illness and treatment.Conclusion: In patients physical, psychological, and social pain were prominent and in relatives psychological distress, lack of knowledge and support were experienced. Thus, to reduce pain and anxiety in patients and relatives, the health care should provide relevant knowledge about pain management. The health care should also provide educational interventions that address the psychological and social factors that impact pain for HNC 2 patients and their relatives. Well-thought supporting care and easily accessible information about practical concerns should be offered to HNC patients and their relatives.

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Section: Discussioncontrasting

confidence: 97%

How relatives of patients with head and neck cancer experience pain, disease progression and treatment: A qualitative interview study

Schaller¹,

Liedberg²,

Larsson³

2014

European Journal of Oncology Nursing

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“…In a similar line of research (Winterling, Glimelius, & Nordin, 2008), a mixed cancer population reported recovery-related expectations before treatment; these expectations were correlated to patients' later quality of life. In general, patients had high expectations regarding their later physical and psychological health.…”

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confidence: 90%

Anticipating Posttraumatic Growth from Cancer: Patients’ and Collaterals’ Experiences

Tallman

Lohnberg

Yamada

et al. 2014

Journal of Psychosocial Oncology

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Posttraumatic growth has been demonstrated to occur following the diagnosis and treatment of cancer. Still unknown is whether patients expect such growth, how growth is perceived at early points in time that follow the cancer experience, and whether patient reports of growth are corroborated by others. Participants were 87 patients and 55 collaterals who reported their anticipation of growth pretreatment and their perceived growth at a 9-month follow-up. Patients' expectations for their own growth were significantly higher than collaterals' expectations for theirs. When anticipated growth was compared to later reported growth, patients overanticipated growth across all domains and collaterals underanticipated growth.

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“…Only one intervention study tested whether a cognitive behavioral intervention modified cognitive factors (perceived stress management skills), and whether improvement in QoL was mediated by greater perceived skills [11]. Other studies suggested cognitive factors such as: fear of recurrence [12, 13], belief in curability [14], recovery expectations [15–17], cognitive appraisal of cancer threat [18], and patients' perceptions of their illness and treatment [19–21]. …”

Section: Introductionmentioning

confidence: 99%

Illness cognitions in head and neck squamous cell carcinoma: predicting quality of life outcome

Scharloo

Jong

Langeveld

et al. 2009

Support Care Cancer

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Goals of workThis paper presents an observational study of the longitudinal effects of cancer treatment on quality of life (QoL) in patients treated for head and neck squamous cell carcinoma (HNSCC), and evaluated the contribution of patients' baseline illness cognitions to the prediction of QoL 2 years after diagnosis.Patients and methodsOne hundred seventy-seven patients eligible for primary treatment for HNSCC completed the Illness Perception Questionnaire-Revised at baseline and the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire-30 at baseline, at 1-year and 2-year follow-ups.Main resultsCompared to baseline, patients reported better emotional functioning at both follow-ups (p < 0.001), worse social functioning at 12 months (p < 0.05), and better global health status at 24 months (p < 0.05). Patients' own implicit common sense beliefs about their illness added small but significant amounts of variance to the prediction of QoL after 2 years. Less belief in own behavior causing the illness predicted better functioning and better global health. Strong illness identity beliefs predicted worse functioning and worse global health. Negative perceptions about the duration of the illness (chronic timeline beliefs) and more negative perceived consequences also predicted worse QoL.ConclusionsOur results on the negative perceptions about the duration of the illness, perceived consequences, and high symptom awareness predicting worse QoL illustrate the detrimental effects of uncertainty and negative expectations about the future course of the illness. The identification of these cognitive factors provides possible targets for counseling strategies to assist patients in long-term adjustment to HNSCC.

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The importance of expectations on the recovery period after cancer treatment

Cited by 22 publications

References 35 publications

How relatives of patients with head and neck cancer experience pain, disease progression and treatment: A qualitative interview study

How relatives of patients with head and neck cancer experience pain, disease progression and treatment: A qualitative interview study

Anticipating Posttraumatic Growth from Cancer: Patients’ and Collaterals’ Experiences

Illness cognitions in head and neck squamous cell carcinoma: predicting quality of life outcome

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