The importance of family support in pediatrics and its impact on healthcare satisfaction

Sigurdardottir, Anna Olafia; Garwick, Ann E; Svavarsdóttir, Erla Kolbrún

doi:10.1111/scs.12336

Cited by 26 publications

(22 citation statements)

References 40 publications

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“… 45 46 64 87 93 106 In relation to this it was also important for patients to meet the same professionals in order to experience a greater continuity of care. 34 45 Relatives’ involvement in care and their support further contributes to a positive patient experience, 36 47 80 84 94 since hospitalisation, for example, can lead to isolation and makes social support even more important. 38 41 114 …”

Section: Resultsmentioning

confidence: 99%

Patient experience studies in the circumpolar region: a scoping review

Ingemann

Hansen

et al. 2020

BMJ Open

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ObjectivesPatient experiences with health systems constitute a crucial pillar of quality care. Across the Arctic, patients’ interactions with the healthcare system are influenced by challenges of access, historical inequities and social determinants. This scoping review sought to describe the range and nature of peer-reviewed literature on patient experience studies conducted within the circumpolar region.DesignIn a partnership between Danish/Greenlandic, Canadian and American research teams, a scoping review of published research exploring patient experiences in circumpolar regions was undertaken.Data sourcesSeven electronic databases were queried: MEDLINE, Embase, Scopus, ‘Global Health 1910 to 2019 Week 11’, CINAHL, PsycINFO and SveMed+.Eligibility criteriaArticles were eligible for inclusion if they (a) took place in the circumpolar region, (b) reported patients’ perspective and (c) were focussed primarily on patient experiences with care, rather than satisfaction with treatment outcome.Data extraction and synthesisTitle and abstract screening, full-text review and data extraction was conducted by four researchers. Bibliometric information such as publication date and country of origin was extracted, as was information regarding study design and whether or not the article contained results relevant to the themes of Indigenous values, rural and remote context, telehealth and climate change. Two researchers then synthesised and characterised results relevant to these themes.ResultsOf the 2824 articles initially found through systematic searches in seven databases, 96 articles were included for data extraction. Findings from the review included unique features related to Indigenous values, rural and remote health, telehealth and climate change.ConclusionsThe review findings provide an overview of patient experiences measures used in circumpolar nations. These findings can be used to inform health system improvement based on patient needs in the circumpolar context, as well as in other regions that share common features. This work can be further contextualized through Indigenous methodologies such as sharing circles and community based participatory methods.

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Section: Resultsmentioning

confidence: 99%

Patient experience studies in the circumpolar region: a scoping review

Ingemann

Hansen

et al. 2020

BMJ Open

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“…A second limitation is that questionnaires completion rate was relatively low (65.3%) and this may have introduced some bias into the population upon which this study is based. Another limitation of our study was that questionnaires were completed only by one parent (usually mother), and fathers can assess problems caused by child's health condition differently to mothers with the latter indicating a higher impact on family well-being [25,26]. One more limitation is that we did not consider ethnicity which may be related to QoL and this may be important since language barriers in ethnical minorities may result in poorer asthma management [27].…”

Section: Discussionmentioning

confidence: 99%

Quality of life of the family of children with asthma is not related to asthma severity

et al. 2019

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The quality of life for the family is an important outcome of childhood asthma. The aim of the study was to describe the quality of life in Eastern European families who have a child with asthma. The Pediatric Quality of Life Inventory Family Impact Module was completed by the parents of 527 children with asthma. The median overall score was 75.0 (Interquartile range 63.9; 87.5). The following factors were independently associated with lower quality of life: waking with asthma symptoms ≥one night a week (odds ratio 7 2.53 [1.34; 4.75]), regular use of symptoms reliever medication (2.47 [1.57; 3.87]), female gender (1.97 [1.27; 3.05]), additional difficulties such as anxiety and financial 9 hardship (3.81 [2.45; 5.93]). Lower socioeconomic status of the family and exposure to 10 moulds at home also doubled the odds for lower quality of life. Asthma severity and 11 control were associated with quality of life in univariate, but not multivariate analysis. Conclusion: Multiple factors, several of which are not related to asthma, contribute to the family burden of having a child with asthma. Clinicians should be mindful of the impact of asthma on the child and the family, and consider exploring factors not directly related to childhood asthma.

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“…Nurse anaesthetists also need to be aware of the importance of supporting children and parents in their caregiving activities to increase their satisfaction with healthcare services (Sigurdardottir, Garwick, & Svavarsdottir, 2017). Key strategies for avoiding physical restraint include being sensitive to the child and being flexible in altering one's actions (Berglund et al, 2013).…”

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confidence: 99%

Anaesthetizing children—From a nurse anaesthetist's perspective—A qualitative study

et al. 2018

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AimThe aim of this study was to describe nurse anaesthetists' experiences of encountering and caring for children in connection to anaesthesia.DesignQualitative design.MethodsSixteen written narratives based on eight nurse anaesthetists' experiences of meeting children was analysed using qualitative content analysis.ResultsThe overarching theme was: “anaesthetizing children is a complex caring situation, including interactions with the child and parents as well as ensuring patient safety, affected by the perioperative team and organizational prerequisites”. The nurses stated that in their interaction with the family, their goal was to ensure that children and parents felt secure and calm. “Striving to work in confidence” underlined the team and organizational influences. Encountering children involves more than knowledge about technical equipment, procedures and drugs. Knowledge about children's development and fears and parents' needs are essential for an optimal caring situation. Organizations need to realize that extra time, skills and resources are needed to safely anaesthetize children.

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The importance of family support in pediatrics and its impact on healthcare satisfaction

Cited by 26 publications

References 40 publications

Patient experience studies in the circumpolar region: a scoping review

Patient experience studies in the circumpolar region: a scoping review

Quality of life of the family of children with asthma is not related to asthma severity

Anaesthetizing children—From a nurse anaesthetist's perspective—A qualitative study

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