The importance of person‐centred care and co‐creation of care for the well‐being and job satisfaction of professionals working with people with intellectual disabilities

Abstract

Scand J Caring Sci; 2018; 32; 76-81 The importance of person-centred care and co-creation of care for the well-being and job satisfaction of professionals working with people with intellectual disabilities Background: Person-centred care and co-creation of care (productive interactions between clients and professionals) are expected to lead to better outcomes for clients. Professionals play a prominent role in the care of people with intellectual disabilities at residential care facilities. Thus, person-centred care and co-creation of care may be argued to lead to better outcomes for professionals as well. This study aimed to identify relationships of person-centred care and co-creation of care with the well-being and job satisfaction of professionals working with people with intellectual disabilities (PWID). Methods: A cross-sectional survey was conducted in 2015 among professionals working at a disability care organisation in the Netherlands. All 1146 professionals involved in the care of people with intellectual disabilities who required 24-hours care were invited to participate. The response rate was 41% (n = 466). Results: Most respondents (87%) were female, and the mean age was 42.8 AE 11.5 years (22-65). The majority of respondents (70%) worked ≥22 hours per week and had worked for the organisation for ≥5 years (88%). Most of the respondents (76.8%) were direct care workers either in residential homes (59.3%) or in day activities (17.5%). After controlling for background variables, person-centred care and co-creation of care were associated positively with job satisfaction and well-being of professionals. Conclusions: The provision of person-centred care and cocreation of care may lead to better well-being and job satisfaction among professionals working with PWID. This finding is important, as such professionals often experience significant levels of work stress and burnout.

The Significance of Person‐Centered Care for Satisfaction With Care and Well‐Being Among Informal Caregivers of Persons With Severe Intellectual Disability

“…It is important again, to know how the well-being of the informal caregiver may be maintained so that he/she would be able to provide lifelong support and care to a PWID. The relationship we found among PCC, satisfaction with care, and well-being is in line with previous studies (e.g., Meer van der, Nieboer, Finkenflügel, & Cramm, 2018), Rose et al (2007), however, suggested the relationship to be vice versa: more burdened caregivers perceive care to be less person-centered. Although their study was conducted among frail elderly, the relationship between PCC and well-being of informal caregivers may be dynamic with low levels of PCC resulting in higher caregiver burden, which in turn, negatively influences perceived quality of (person-centered) care.…”

“…Future studies assessing PCC according to the views of PWID are needed as well. Findings concerning the importance of PCC and co-creation of care for professionals providing care to PWIDs show that these aspects are also positively associated with their well-being and satisfaction with care (van der Meer et al, 2018). Third, the response of 31% could indicate nonresponse bias.…”

Effects of Dementia Care Mapping on job satisfaction and caring skills of staff caring for older people with intellectual disabilities: A quasi‐experimental study

“…sues. Yet prior and qualitative studies provided strong indications that person-centred care, with methods such as DCM, does improve care by enhancing the knowledge and skills of ID-care staff (Bertelli, Salerno, Rondini, & Salvador-Carulla, 2017;Kendrick, 2011;Schaap, Fokkens, et al, 2018;Van der Meer et al, 2017). Further research is needed to elucidate this discrepancy, for example by in-depth TA B L E 3 Raw means at T0, T1 and T2, based on intention to treat analyses with mixed multilevel models (n = 227) interviews with participating ID-staff or direct observation, and by including more stressed staff to, for example a lower staff/resident ratio.…”

“…Person-centred care includes valuing the person, using an individual approach that acknowledges the uniqueness of the person, making an effort to understand the world from the perspective of the person and providing a supportive social environment (VIPS; Brooker, Woolley, & Lee, 2007). Organizations which perform well in person-centred care create more productive interactions between healthcare professionals and clients, leading to a decrease in negative responsive behaviour of clients (Van der Meer, Nieboer, Finkenflügel, & Cramm, 2017;Willems, Embregts, Bosman, & Hendriks, 2014). Furthermore, person-centred methods have been shown to improve quality of care, thereby increasing the well-being of older people with intellectual disabilities, and contributing to job satisfaction of care staff (Brown et al, 2016;Cleary & Doody, 2017;De Vreese et al, 2012;Van der Meer et al, 2017).…”

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

“…DCM aims at different levels: at the individual (residents and care givers), at the group (care giving teams) and at multidisciplinary teams and management (Van de Ven et al, 2013). Furthermore, person-centred methods, like DCM, are associated with (psychosocial) benefits for both people with dementia (whether or not with intellectual disability) and their care staff, by improving the quality of care (Brown et al, 2016;Brownie & Nancarrow, 2013;Edvardsson, Sandman, & Borell, 2014; Van der Meer, Nieboer, Finkenflügel, & Cramm, 2017;Willemse et al, 2015).…”