The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer

Lewis, Sophie; Newton, Giselle; Kenny, Katherine; Boyle, Frances

doi:10.1111/1467-9566.13704

Cited by 3 publications

(1 citation statement)

References 52 publications

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“…In the context of negotiating relationships, a diagnosis of breast cancer is often perceived as an assault on relationships and social bonds, which can extend to the survivorship period. [25] Women survivors of breast cancer have unique needs as their daily interactions and relationships are altered, undermining their sense of belonging and causing a rupture in existing social connections. However, it was revealed in this study that Nigerian female breast cancer survivors constantly negotiated their relationships and social bonds to boost their self-identity.…”

Section: Discussionmentioning

confidence: 99%

How do Nigerian women construct the patterns of meaning of their identity and quality of life as breast cancer survivors? Illuminating Margaret Newman’s theory of health as expanding consciousness.

Nwozichi,

Ojewale,

Ogunmuyiwa

et al. 2024

Preprint

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Purpose: This study was conducted to open up a dialogue between the voices of Nigerian female breast cancer survivors and the imperatives of Margaret Newman’s theory of health as expanding consciousness. Margaret Newman’s theory was used to describe the structure of the meaning of survivorship and quality of life for Nigerian female breast Cancer survivors. Methods: A qualitative approach was used to interview 22 participants. Interviews of the participants were digitally audio-taped and then transcribed verbatim. Data analysis was conducted using NVivo 14 software. Data categories were reviewed and sorted to discover recurrent patterns within the data. Results: Three core concepts surfaced: (1) encountering Selfhood-Otherhood in the survivorship journey, (2) Be-ing within the rhythms of change, and (3) Living out the paradox of order-disorder life patterns. Through conceptual integration, these concepts emerged as the paradoxical rhythm of living as a breast cancer survivor in unique ways. Conclusions: This study enhances the knowledge of the quality of life, expands Newman’s theory of health as expanding consciousness, and demonstrates its value for uncovering the structure of the meaning of survivorship and lived experiences. Furthermore, this study provides insights for future nursing research and contributes to guiding nursing practice, living the art with more profound knowledge about breast cancer survivors living quality. Implications for Cancer Survivors: We argue that greater attention is needed to the affective, temporal, and economic dimensions of breast cancer survivorship, where the nurses help the survivors to find meaning in their situation and their lives, having understood that Order and disorder in the human life experience are part of an expansion of consciousness. Breast cancer survivors need to be helped to recognize their own pattern of living and to exert their own strengths in finding meaningin their survivorship journey and their lives.

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Section: Discussionmentioning

confidence: 99%

How do Nigerian women construct the patterns of meaning of their identity and quality of life as breast cancer survivors? Illuminating Margaret Newman’s theory of health as expanding consciousness.

Nwozichi,

Ojewale,

Ogunmuyiwa

et al. 2024

Preprint

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There but not really involved: The meanings of loneliness for people with chronic illness

Lewis,

Willis,

Smith

et al. 2024

Social Science & Medicine

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Chronic Concealment and Awareness in the Affective Worlds of Young People Living With Chronic Illness

Harper,

Broom,

Kenny

2024

Qual Health Res

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From the onset of chronic illness, a variety of challenges emerge—challenges that both persist and evolve as life progresses. For young adults living with chronic illness, the age-specific difficulties of becoming ill while young form a foundation that shapes their experience of illness in enduring ways. This paper draws on a series of in-depth qualitative interviews with 33 young adults (aged 19–29 years old) living with a range of chronic illnesses, including fatigue syndromes, auto-immune diseases, and neurological conditions. Participants demonstrated an emergent chronic consciousness of how others perceived their health, which created a series of fraught affective tussles centered on relational recognition and feared judgment. This article explores the difficulties and concerns participants had when communicating the nature and realities of illness; the emotional toll of attempting to avoid attention and judgment from others regarding their conditions; and the ways in which others could productively and sensitively acknowledge participants’ illness experiences. We demonstrate that the process of learning how to navigate these issues was one important way that participants began to integrate their illness (and its implications) into their emerging sense of self and adult life.

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The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer

Cited by 3 publications

References 52 publications

How do Nigerian women construct the patterns of meaning of their identity and quality of life as breast cancer survivors? Illuminating Margaret Newman’s theory of health as expanding consciousness.

How do Nigerian women construct the patterns of meaning of their identity and quality of life as breast cancer survivors? Illuminating Margaret Newman’s theory of health as expanding consciousness.

There but not really involved: The meanings of loneliness for people with chronic illness

Chronic Concealment and Awareness in the Affective Worlds of Young People Living With Chronic Illness

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