Pediatric rare lung disease programs are increasing in number due to an increase in recognition of the diseases, increased clinical and research interest in children's interstitial lung disease, and the expansion of the children's interstitial lung disease research network. Due to this increased interest newly graduated trainees in pediatric pulmonology and other physicians are often starting new programs, which can be daunting. We provide some guidance for new programs based on our experiences. K E Y W O R D S children's interstitial lung disease, pediatric rare lung disease 1 | INTRODUCTION Pediatric pulmonologists have been historically "early adopters" of interdisciplinary care of children with complex, often multisystem disorders. 1 Most pediatric pulmonary groups in academic medical centers and larger community practices have set up formal "subsubspecialty" clinics and programs for disease processes such as aerodigestive or neuromuscular disorders, with dedicated involvement of physicians and other professionals, modeled from the Cystic Fibrosis (CF) Foundation-funded care centers, with the goal of improving education, outreach, patient care, and satisfaction. 2,3 Many of these conditions, including CF, primary ciliary dyskinesia (PCD), and many forms of congenital neuromuscular weakness qualify as rare diseases per the National Organization for Rare Disorders (rarediseases.org). Arguably these dedicated interdisciplinary programs result in improved quality and outcomes, and a better experience for families. 2,4,5 Discussion of what diseases constitute Childhood Interstitial and Rare Lung Diseases (ChILD), other rare lung diseases (RLDs), or pediatric diffuse lung disease (DLD) is complex and beyond the scope of this paper, and the terms are often used interchangeably.Classification schemes and general diagnostic approaches have been developed [6][7][8] and most experts in this area take a broad and fairly inclusive view. The care of children with ChILD has evolved in the last two decades from the domain of a few pioneering "guru" clinicians, imagers, and pathologists known worldwide, to a widespread network of interested clinicians, with national and international patient registries, research networks, published clinical guidelines, as well as family support and advocacy foundations on most continents 6,8,9 ). This level of organization and collaboration has facilitated the first international clinical trial of a novel therapy for some forms of ChILD. 10,11 Recently the US News and World Report ranking system included participation in the ChILD Research Network (ChILDRN) as a metric for its pediatric pulmonology evaluation of Children's Hospitals