The influence of diabetes distress on digital interventions for diabetes management in vulnerable people with type 2 diabetes: A qualitative study of patient perspectives

Mathiesen, Anne Sophie; Thomsen, Thordis; Jensen, Tonny; Schiøtz, Charlotte; Langberg, Henning; Egerod, Ingrid

doi:10.1016/j.jcte.2017.07.002

Cited by 19 publications

(33 citation statements)

References 49 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…However, these findings are in contrast to the results of Mathiesen et al [ 13 ] in their trial about the influence of technology interventions on T2D distress. They attributed their findings to the vulnerability of T2D patients facing tailored digital interventions, resulting in an increase in distress, such as “suffering informational confusion, experiencing digital alienation, and missing the human touch”, mainly because “navigating a complex digital portal on diabetes might be more challenging than simply accessing the site” and the digital caregivers’ approach.…”

Section: Discussioncontrasting

confidence: 99%

“…Some authors have already demonstrated that technological devices could enhance engagement, adherence, cost effectiveness and access to health interventions[ 7 , 8 ], having an impact on blood glucose control and T2D self-management[ 9 - 12 ]. However, review authors have are in disagreement about the benefits of this technology in T2D distress[ 13 , 14 ]. The primary aim of this review is to determine the impact of programs with technological interventions regarding disease management, not just as a communication alternative, on T2D distress through a DDS measurement study.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Impact of technology use in type 2 diabetes distress: A systematic review

Vieira¹,

Kobayasi²,

Pereira³

et al. 2020

WJD

View full text Add to dashboard Cite

BACKGROUND Diabetes distress is an important factor in treatment outcomes and results in poor behavioral and biological consequences. Technology has been used in management programs of diabetes to improve communication between patients and health care providers and to promote education about the disease and its psychological aspects, which can impact the self-efficacy of the programs. However, the true impact of technological approaches on the management of type 2 diabetes distress remains controversial. AIM To investigate the effectiveness of technology interventions on the management of type 2 diabetes distress. METHODS Studies published from 2014 to 2019 were searched in five databases: MEDLINE, PubMed, Library and Information Science Source, Academic Search Ultimate and PsycINFO. The Boolean logic search terms were: (1) T2Diabetes; (2) diabetes distress; and (3) technology OR mobile OR phone OR application OR web. We also systematically searched the reference lists of the included studies and relevant reviews. Randomized controlled trials with technology interventions, type 2 diabetes patients and diabetes distress as the outcome were selected. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement was followed. RESULTS Of the 88 studies selected, nine full articles met the inclusion criteria and were subjected to final careful review. On the JADAD scale, one article was classified as having poor quality and eight as having good quality. Six out of nine articles showed that technology interventions had a positive impact on diabetes distress scale scores when compared with the initial data. Among the six articles, five showed a greater reduction in the diabetes distress scores from control interventions. Web-based interventions had good results when users received personalized feedback and routine caregiver support and attention. CONCLUSION Technology interventions can contribute positively to the management of type 2 diabetes distress, especially with a tailored approach in conjunction with caregiver interaction with patients.

show abstract

Section: Discussioncontrasting

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Impact of technology use in type 2 diabetes distress: A systematic review

Vieira¹,

Kobayasi²,

Pereira³

et al. 2020

WJD

View full text Add to dashboard Cite

show abstract

“…The majority of participants perceived themselves as not being sick. This may be because diabetes is initially a silent disease with imperceptible symptom progression and distant long-term complications (Carolan, Holman, & Ferrari, 2015;Mathiesen et al, 2017;Powers, 2014). Furthermore, not perceiving oneself as sick might be interpreted as an avoidant coping strategy.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, not perceiving oneself as sick might be interpreted as an avoidant coping strategy. Studies have shown that people with low socioeconomic status tend to use avoidant coping as their primary coping strategy due to few resources (Christensen, Schmidt, Hougaard, Kriegbaum, & Holstein, 2006;Houle et al, 2016;Mathiesen et al, 2017). The avoidant coping strategy of participants might have been reinforced by diabetes being a silent disease and, moreover, by the provision of tacit practical support from the informal network.…”

Section: Discussionmentioning

confidence: 99%

Preferring to manage by myself: A qualitative study of the perspectives of hardly reached people with type 2 diabetes on social support for diabetes management

Bech

Jacobsen

Mathiesen

et al. 2019

Journal of Clinical Nursing

Self Cite

View full text Add to dashboard Cite

Aims and objectives To explore the perspectives of hardly reached people with type 2 diabetes on social support for diabetes management from their formal and informal networks. Background People with low socioeconomic status and poorly controlled type 2 diabetes may be categorised as hardly reached. Social support is increasingly perceived to be a cornerstone in the management of type 2 diabetes. Few studies have, however, explored social support for diabetes management from the perspective of hardly reached people. Methods A qualitative design with individual semi‐structured interviews captured the unique perspectives of hardly reached people. Data from 14 participants were analysed using conventional content analysis. The article adheres to the COREQ guidelines for reporting qualitative research. Results Participants preferred not to involve family and friends (the informal network) in diabetes management due to dysfunctional or lacking networks, existing norms and not wanting to burden vulnerable relationships. Others simply did not perceive themselves as sick and therefore saw no need for support. Opposed to this, participants wished for continuity and a personalised relationship with health professionals (the formal network). This entailed consultations that facilitated discussion of issues of importance to the participants. Conclusions Hardly reached people with type 2 diabetes preferred to spare their informal networks from diabetes management. Instead, they wished for more presence and individualised support from health professionals. Relevance to Clinical practice It appears timely to rethink the current “one‐size‐fits‐all” approach for people with type 2 diabetes in order to allocate resources to those most in need. It is important that health professionals elicit perceptions of support needs and potential sources of support in hardly reached people with type 2 diabetes both from the formal and from informal networks in regard to managing their diabetes. To better reach hardly reached people with type 2 diabetes, specialised education of health professionals may be necessary to capture the complex underlying dynamics influencing disease management.

show abstract

“…83 There are many vulnerable people in the T2D community who perhaps will never be suited for digital therapeutics as an adjunctive therapy or to facilitate their care virtually. 84 Personal human interaction will continue to play an important part in the care for millions of people living with diabetes, no matter the progress and sophistication of these digital services. What these technologies will provide, however, is the human capacity to deal with the higher need vulnerable people for whom access to timely care is an issue.…”

Section: Evidence and Excusesmentioning

confidence: 99%

A Digital-First Model of Diabetes Care

Cafazzo

2019

Diabetes Technology & Therapeutics

View full text Add to dashboard Cite

If we were to create the diabetes care experience anew, there is little doubt that it would not resemble the current bricks-and-mortar way we do things currently. For however a future model of care is designed, it would assume a digital-first approach, whereby the modern conveniences of digitally-mediated services we have experienced in other industries would be reflected in our diabetes care. To this end, our diabetes data would be liberated, transparent to those that need it, but safe and secure otherwise. We would have access to new tools that create insights that lower the burden, not add to it. And access to care would be just in time, convenient, and from a distance when needed. What is stopping a digital-first model is complex and deeply seated, but not insurmountable with engagement from industry, regulators, and care providers that are all willing to modernize the way care is delivered. Personal human interaction will continue to play an important part in the care for millions of people living with diabetes, no matter the sophistication of these digital services. What these technologies will provide is the human capacity to deal with the higher need, vulnerable people for whom access to timely care is an issue. Moreover, it will provide choice for an increasingly diverse population that seeks options for the form, and the delivery, of their personalized care.

show abstract

The influence of diabetes distress on digital interventions for diabetes management in vulnerable people with type 2 diabetes: A qualitative study of patient perspectives

Cited by 19 publications

References 49 publications

Impact of technology use in type 2 diabetes distress: A systematic review

Impact of technology use in type 2 diabetes distress: A systematic review

Preferring to manage by myself: A qualitative study of the perspectives of hardly reached people with type 2 diabetes on social support for diabetes management

A Digital-First Model of Diabetes Care

Contact Info

Product

Resources

About