The influence of psychological, social and contextual factors on the expression and measurement of awareness in early‐stage dementia: testing a biopsychosocial model

Clare, Linda; Nelis, Sharon M.; Martyr, Anthony; Roberts, Julian V.; Whitaker, Christopher J.; Marková, Ivana; Roth, Ilona; Woods, Bob; Morris, Robin G.

doi:10.1002/gps.2705

Cited by 121 publications

(181 citation statements)

References 39 publications

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“…In recent years, a series of studies have explored the awareness of people living with dementia about many different aspects of their illness (Clare, 2002;2003;: 2012Sabat, 2002a;2002b;2006;Cheston, 2005;Clare et al, 2005;Macquarrie, 2005;Vernooij-Dassen et al, 2006;Clare et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

The paradox of dementia: Changes in assimilation after receiving a diagnosis of dementia

2014

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This qualitative study used semi-structured interviews to explore how six people talked about their difficulties before and after a dementia diagnosis. Participants' accounts of their memory problems were analysed in terms of the verbal Markers of Assimilation of Problematic Voices Scale (MAPVS).This analysis indicated that after diagnosis some participants were able to integrate aspects of their illness that had previously been too painful, and which had been warded off. The process by which individuals were able to integrate a dementia diagnosis into their sense of self involved stepping in and out of awareness, with both acceptance and denial featuring in their accounts as they approached and then retreated from addressing the diagnosis. In contrast, other participants resisted moving towards discourses which explicitly acknowledged their dementia, but were instead able to express concerns about what this movement would entail, for instance voicing their fears that it would mean that they had surrendered. Social support seems to have been crucial in enabling participants to sustain a positive sense of self in the face of this adjustment. This is NOT the published version 3

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Section: Introductionmentioning

confidence: 99%

The paradox of dementia: Changes in assimilation after receiving a diagnosis of dementia

2014

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“…Similar results were reported in studies on dyadic rating discrepancies in rating activities of daily living (ADL). Some researchers reported caregiver burden to be associated with the discrepancy scores (Schatzberg et al, 1998;Zanetti et al, 1999;Clare et al, 2011), although only Zanetti et al (1999) assessed both caregiver burden and depression. In contrast, Argüelles et al (2001) showed that caregiver depression but not burden was related to caregiver rating bias.…”

Section: Introductionmentioning

confidence: 99%

Caregiver rating bias in mild cognitive impairment and mild Alzheimer's disease: impact of caregiver burden and depression on dyadic rating discrepancy across domains

Pfeifer

Drobetz

Fankhauser

et al. 2013

Int. Psychogeriatr.

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Background: Caregivers of individuals with dementia are biased in their rating of mental health measures of the care receiver. This study examines caregiver burden and depression as predictors of this bias for mild cognitive impairment and mild Alzheimer's disease in different domains. Methods: The sample consisted of 202 persons: 60 with mild cognitive impairment, 41 with mild Alzheimer's disease, and 101 caregivers. Discrepancy scores were calculated by subtracting the mean caregiver score from the respective mean patient score on the following assessment instruments: the Geriatric Depression Scale, Apathy Evaluation Scale, Bayer-Activities of Daily Living Scale, and Quality of Life-AD scale. Caregiver burden and depression were assessed by the Zarit Burden Interview and the Center for Epidemiologic Studies Depression Scale. Results: Intraclass correlation coefficients were low for apathy (0.38), daily functioning (0.38), and quality of life (0.30) and moderate for depression (0.49). These domains showed negative rating discrepancies, which indicates caregiver rating bias for all four domains. Regression analyses revealed that caregiver burden significantly contributed to explaining these discrepancies in the domains apathy, daily functioning, and quality of life. Conclusion: Caregiver rating bias can be attributed to caregiver burden. When caregiver burden is present, data based on caregiver ratings should therefore be interpreted with caution.

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“…External psychological influence leading to recovery can be observed in patients with major changes to the brain such as strokes, injuries or conditions such as dementia that clearly affect and impair their functioning (Chriki et al, 2006;Letswaart et al, 2011;Bender and Constance, 2005;Clare et al, 2012;Schiff, 2010;Samuel, 2008;Morse and Garner, 2018). Minor neural changes such as those caused in drugs and alcohol addicted patients have been reversed by external psychological influence through rehabilitation courses in meditation and mindfulness (Winkelman, 2001;Garland et al, 2014;Garland and Howard, 2018).…”

Section: Man Is a Masterpiece Of Creation If For No Other Reason Thanmentioning

confidence: 99%

The Boy Who Grew a New Brain: Understanding this Miracle from a Neuro-Quantum Perspective

Pereira

2018

Neuroquantology

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In this paper, we present a case of a boy -Noah Wall, who till today surprises the world of neuroscience with his will to grow his brain and survive. The case presented in this study sets a stepping stone in understanding the advent of the will to make a choice, from a neuro-quantum mechanics interpretation. We propose that besides our internal states of choices (neurogenesis, neuroplasticity, cell differentiation, etc.) we also relate with external states of choices (love, compassion, empathy, emotions, etc.) that contributes to its emergence. Quantum uncertainty seems to support the existence of a fundamental property based on which the universe functions; which means that even the nothing of free space has a small chance of containing something. Outcomes are not determined by prior or random events but by consciousness that gives rise to these outcomes. This provides us a lead into understanding the existence of the will and the origin of choice when we look deeper into the realms of the implausible interpretations of quantum mechanics. Free will is the ability for the mind to choose between possible outcomes. Willful power is therefore not only a psychological intervention but also a biological and quantum intervention, where we have the capacity to make choices about what direction we will take, making a change to the systematic functioning of our body.

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The influence of psychological, social and contextual factors on the expression and measurement of awareness in early‐stage dementia: testing a biopsychosocial model

Abstract: The findings support the relevance of a biopsychosocial approach to understanding the factors that influence unawareness of impairment in dementia.

Cited by 121 publications

References 39 publications

The paradox of dementia: Changes in assimilation after receiving a diagnosis of dementia

The paradox of dementia: Changes in assimilation after receiving a diagnosis of dementia

Caregiver rating bias in mild cognitive impairment and mild Alzheimer's disease: impact of caregiver burden and depression on dyadic rating discrepancy across domains

The Boy Who Grew a New Brain: Understanding this Miracle from a Neuro-Quantum Perspective

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