The information needs of people with COPD—The holistic approach with special reference to gender and time since diagnosis

Siltanen, Hannele; Aine, Tiina; Huhtala, Heini; Kaunonen, Marja; Paavilainen, Eija

doi:10.1002/nop2.773

Cited by 5 publications

(4 citation statements)

References 45 publications

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“…Consequently, knowledge gaps might then serve as a motivator for learning to acquire the necessary knowledge. In accordance with previous studies of patients with COPD and their significant others, this study showed a variety in information needs among participants [ 29 – 33 ]. Information about the disease emerged as a frequently cited need in this study, which has also been reported as an important information need among patients with COPD before [ 34 ].…”

Section: Discussionsupporting

confidence: 91%

Motivation and preferences for learning of patients with COPD or asthma and their significant others in pulmonary rehabilitation: a qualitative study

Muijsenberg,

Haesevoets,

Houben-Wilke

et al. 2024

ERJ Open Res

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IntroductionIn depth understanding of educational needs from the perspective of the learners in pulmonary rehabilitation (PR) is lacking. To improve learning in PR, understanding of factors that induce or enhance intrinsic motivation in both patients and their significant others is needed. Therefore, this study aims to gain in-depth understanding of what motivates patients with COPD and asthma referred for PR and their significant others to learn and what their preferences are for education.MethodsFor this qualitative study, a sample was taken from a previous quantitative study. Data was collected through a one-time face-to-face semi-structured interview. The interviews were transcribed and independently analysed by two researchers using thematic analyses.ResultsTwelve patients and four significant others (56% female; age: 63±11 years) have been interviewed. Participants expressed a variety of information needs and learning preferences. Subthemes that emerged within the theme of motivation for learning were: 1) curiosity, such as knowledge gaps and hope for new information; and 2) values and goals, such as own health, caring for loved ones and spending time with family.DiscussionTo enhance intrinsic motivation for learning within PR, autonomy of individuals should be supported by offering several learning topics and education adapted to preferences, while curiosity should be fostered by targeting information needs. Moreover, health education programs should match with the personal values and goals of individuals, such as own health, caring for loved ones and spending time with family.

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Section: Discussionsupporting

confidence: 91%

Motivation and preferences for learning of patients with COPD or asthma and their significant others in pulmonary rehabilitation: a qualitative study

Muijsenberg,

Haesevoets,

Houben-Wilke

et al. 2024

ERJ Open Res

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“…Meanwhile, studies on communication needs in COPD indicate that in more than 60% of the patients with COPD, sexual issues have not been addressed in healthcare consultations, despite a patient-reported need for information. 70 Apparently, patients are increasingly motivated to achieve information about sexual and relational issues during the first five years after their COPD diagnosis, and especially male patients lack information on these issues. 70 This highlights the need for a systematic approach to sexual health screening, which should be initiated shortly after diagnosis and maintained throughout the illness trajectory as age increases and lung function decreases.…”

Section: Discussionmentioning

confidence: 99%

“…70 Apparently, patients are increasingly motivated to achieve information about sexual and relational issues during the first five years after their COPD diagnosis, and especially male patients lack information on these issues. 70 This highlights the need for a systematic approach to sexual health screening, which should be initiated shortly after diagnosis and maintained throughout the illness trajectory as age increases and lung function decreases. Since most studies of sexual health in COPD have focused on ED, results are currently more robust for this outcome, compared to outcomes of general sexual function, sexual satisfaction and illness impact on sexual health.…”

Section: Discussionmentioning

confidence: 99%

Sexual Health in COPD: A Systematic Review and Meta-Analysis

Farver-Vestergaard¹,

Frederiksen²,

Zachariae³

et al. 2022

COPD

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COPD has a profound impact on the lives of patients and their partners, but the influence on physical, psychological and social aspects of sexual health has not been reviewed systematically. Searches for studies of the impact of COPD on sexual health were conducted independently by two authors in the databases of PubMed, PsycINFO, Embases, CINAHL, Web of Science, Scopus and The Cochrane Library. English-language quantitative and qualitative studies assessing one or more aspects of sexual health in patients diagnosed with COPD were narratively reviewed and, when possible, subjected to meta-analytic evaluation. A total of 31 studies, including 4 qualitative, were included. Twelve studies assessing erectile dysfunction with the International Index of Erectile Function were subjected to meta-analysis. The pooled prevalence of erectile dysfunction was 74% (95% CI: 68-80%) in a total of 1187 patients with COPD, compared with 56% (37-73%) in 224 age-matched, non-COPD controls. The sexual health outcomes assessed in the remaining studies varied considerably, compromising the comparability of the results. None of the qualitative studies had sexual health as their primary focus. Compared with non-COPD individuals, erectile dysfunction appears to be more prevalent among patients with COPD, but more studies including non-COPD controls are needed to confirm this finding. In addition, the impact of COPD on other physical, psychological and social aspects of sexual health remains unclear due to the lack of comparable assessment methods and study designs.

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“…8 Persons with COPD have a need for information about self-care. 9,10 The next of kin need to be included in the self-care approach, and thereby they need support related to symptoms, treatment, and disease progression. They also need support with managing the situation and helping the affected person.…”

Section: Introductionmentioning

confidence: 99%

Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study

et al. 2023

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Objectives Severe chronic obstructive pulmonary disease affects and changes the lives of both affected persons and next of kin. There is a need for support and a sense of coherence to manage the life situation and minimize the symptom and caregiver burden. The aim of this study was to diverge or converge views of symptom burden, caregiver burden, the need for support, and sense of coherence in persons with chronic obstructive pulmonary disease and their next of kin to gain a deeper and broader knowledge and understanding. Methods A mixed methods study with data from interviews and four validated questionnaires from persons affected by chronic obstructive pulmonary disease in GOLD stages III and IV and their next of kin. Results Questionnaires from 112 persons affected by chronic obstructive pulmonary disease, and 71 next of kin, together with 25 and 21 interviews, show that; there is a difference between estimated symptoms and caregiver burden and experiences expressed in their own words. There is also a defect regarding meaningfulness, comprehensibility, and manageability affecting daily life. Symptoms and caregiver burden, together with the sense of coherence, strengthen the need for support. Discussion The complexity of the life situation leads to a need for supportive interventions to strengthen internal and external resources.

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The information needs of people with COPD—The holistic approach with special reference to gender and time since diagnosis

Cited by 5 publications

References 45 publications

Motivation and preferences for learning of patients with COPD or asthma and their significant others in pulmonary rehabilitation: a qualitative study

Motivation and preferences for learning of patients with COPD or asthma and their significant others in pulmonary rehabilitation: a qualitative study

Sexual Health in COPD: A Systematic Review and Meta-Analysis

Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study

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