The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis

Santini, Anna; Avagnina, Irene; Marinetto, Anna; Tommasi, Valentina De; Lazzarin, Pierina; Perilongo, Giorgio; Benini, Franca

doi:10.3389/fpsyg.2022.858812

Cited by 5 publications

(15 citation statements)

References 46 publications

(52 reference statements)

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“…Os outros estudos incluídos (2) foram produzidos nos Estados Unidos da América (EUA; Hildenbrand et al, 2021;Snaman et al, 2017). Observa-se que os seis estudos foram publicados entre 2013 e 2022, sendo que um terço (2) dos estudos foram publicados nos últimos cinco anos (Hildenbrand et al, 2021;Santini et al, 2022).…”

Section: Métodounclassified

“…Quanto ao delineamento metodológico adotado nos estudos, observou-se três estudos de natureza qualitativa, dois estudos de natureza mista e um estudo quantitativo. Quanto aos procedimentos de coleta de dados, três dos estudos incluídos utilizaram entrevistas (Bergstraesser et al, 2013;Di Pede et al, 2018;Wray et al, 2013); um usou grupos focais (Wray et al, 2013); e cinco utilizaram metodologias de coleta de dados via questionários (Wray et al, 2013) ou via prontuários, relatórios clínicos e registros médicos (Di Pede et al, 2018;Hildenbrand et al, 2021;Santini et al, 2022;Snaman et al, 2017).…”

Section: Métodounclassified

“…Nessa categoria buscou-se agrupar as definições conceituais de CPPs e fim de vida, presentes nos estudos analisados, entendendo que tais conceituações estão interligadas na literatura especializada sobre o tema. Os CPPs foram citados como cuidados holísticos e interdisciplinares, direcionados a crianças com doenças ou condições limitantes e/ou ameaçadoras à vida (Hildenbrand et al, 2021;Santini et al, 2022;Wray et al, 2013). ISSN (eletrônico) 2446-922X…”

Section: Conceituação De Cpps E De Fim De Vidaunclassified

“…Mar., 2024: 10(1): 239-260. 241 psicológicos, sociais e espirituais, tanto da criança quanto de seus familiares. É também incluído o período de luto após o óbito (Assis et al, 2020;Santini et al, 2022;WHO, 2018).…”

Section: Introductionunclassified

“…No caso específico das crianças, podem haver também dificuldades neurodesenvolvimentais, comportamentais, emocionais e relacionais (Marshall et al, 2022). Os familiares podem também experienciar altos níveis de estresse, de ansiedade e de depressão, desgastando-se pela preocupação e pelos cuidados constantesisso porque, segundo a teoria sistêmica, a condição crônica faz parte do sistema familiar, e requer a adaptação de todos os envolvidos (Bazzan et al, 2020;Bolaséll et al, 2019;Boyden et al, 2022;Marshall et al, 2022;Pinquart, 2019;Santini et al, 2022). As doenças ou condições crônicas na infância podem também requerer hospitalizações frequentes e/ou duradouras, as quais são potencialmente estressoras para a criança, que pode acreditar estar sendo punida (Bolaséll et al, 2019;Menezes & Moré, 2019).…”

Section: Introductionunclassified

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O PAPEL DO PSICÓLOGO NOS CUIDADOS PALIATIVOS DE CRIANÇAS E ADOLESCENTES: Uma revisão integrativa de literatura

Loch,

Koch

2024

Psicodebate

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Pediatric palliative care (PPCs) seeks to promote quality of life in patients or families of children and adolescents with illnesses or conditions that threaten and/or limit life. CPPs are carried out by multidisciplinary teams and the psychologist is one of the professionals who can be part of them. However, the role of the psychologist in this context remains unsystematized in empirical studies and literature reviews. Thus, the objective of this article was to describe, through an integrative literature review, the state of the art of the psychologist's role in palliative care for children and teenagers. It was used the Prisma P protocol, in which 12 databases were accessed and 968 studies were extracted. Six articles were included at the end of screening the abstracts and reading the studies. The publications were analyzed by deductive-inductive thematic analysis, creating three categories: (1) concept of CPPs and end of life, (2) role of the psychologist in CPPs, and (3) understandings about the role of the psychologist in CPPs. The results indicate that the role of the psychologist in CPPs covers all moments of care: focusing on management of emotions, interpersonal relationships, communication, supporting family members after death, beyond the possibility of assisting other health professionals and doing training or supervision. It was observed that there is little integration of psychologists in PPC teams, and a small distinction in the scientific literature regarding the support provided by psychologists and other professionals.

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Section: Métodounclassified

Section: Conceituação De Cpps E De Fim De Vidaunclassified

Section: Introductionunclassified

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O PAPEL DO PSICÓLOGO NOS CUIDADOS PALIATIVOS DE CRIANÇAS E ADOLESCENTES: Uma revisão integrativa de literatura

Loch,

Koch

2024

Psicodebate

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The role of psychologists in supporting illness-related dying and death: A systematic mixed studies review

Foo,

Sharpe,

Clayton

et al. 2024

Clinical Psychology Review

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Competencies for Psychology Practice in Pediatric Palliative Care

Thompson

Schaefer

McCarthy

et al. 2023

Journal of Pediatric Psychology

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Objective Pediatric psychologists have unique expertise to contribute to the care of youth with serious illnesses yet are not routinely integrated into pediatric palliative care (PPC) teams. To better define the role and unique skillset of psychologists practicing in PPC, support their systematic inclusion as part of PPC teams, and advance trainee knowledge of PPC principles and skills, the PPC Psychology Working Group sought to develop core competencies for psychologists in this subspecialty. Methods A Working Group of pediatric psychologists with expertise in PPC met monthly to review literature and existing competencies in pediatrics, pediatric and subspecialty psychology, adult palliative care, and PPC subspecialties. Using the modified competency cube framework, the Working Group drafted core competencies for PPC psychologists. Interdisciplinary review was conducted by a diverse group of PPC professionals and parent advocates, and competencies were revised accordingly. Results The six competency clusters include Science, Application, Education, Interpersonal, Professionalism, and Systems. Each cluster includes essential competencies (i.e., knowledge, skills, attitudes, roles) and behavioral anchors (i.e., examples of concrete application). Reviewer feedback highlighted clarity and thoroughness of competencies and suggested additional consideration of siblings and caregivers, spirituality, and psychologists’ own positionality. Conclusions Newly developed competencies for PPC psychologists highlight unique contributions to PPC patient care and research and provide a framework for highlighting psychology’s value in this emerging subspecialty. Competencies help to advocate for inclusion of psychologists as routine members of PPC teams, standardize best practices among the PPC workforce, and provide optimal care for youth with serious illness and their families.

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The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis

Cited by 5 publications

References 46 publications

O PAPEL DO PSICÓLOGO NOS CUIDADOS PALIATIVOS DE CRIANÇAS E ADOLESCENTES: Uma revisão integrativa de literatura

O PAPEL DO PSICÓLOGO NOS CUIDADOS PALIATIVOS DE CRIANÇAS E ADOLESCENTES: Uma revisão integrativa de literatura

The role of psychologists in supporting illness-related dying and death: A systematic mixed studies review

Competencies for Psychology Practice in Pediatric Palliative Care

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