The IPDGC/GP2 Hackathon - an open science event for training in data science, genomics, and collaboration using Parkinson’s disease data

Leonard, Hampton; Murtadha, Ruqaya; Martínez-Carrasco, Alejandro; Jama, Alina; Müller-Nedebock, Amica Corda; Gil-Martínez, Ana-Luisa; Illarionova, Anastasia; Moore, Anni; Bustos, Bernabé I.; Jadhav, Bharati; Huxford, Brook; Storm, Catherine S.; Towns, Clodagh; Vitale, Dan; Chetty, Devina; Yu, Eric; Grenn, Francis P.; Salazar, Gabriela; Rateau, Geoffrey; Iwaki, Hirotaka; Elsayed, Inas; Foote, Isabelle F; Rensburg, Zuné Jansen van; Kim, Jonggeol Jeff; Yuan, Jie; Lake, Julie; Brolin, Kajsa; Senkevich, Konstantin; Wu, Lesley; Tan, Manuela; Periñán, María Teresa; Makarious, Mary B; Ta, Michael; Pillay, Nikita Simone; Lorenzo‐Betancor, Oswaldo; Reyes-Pérez, Paula; Jerez, Pilar Alvarez; Saini, Prabhjyot; Al‐Ouran, Rami; Sivakumar, Ramiya; Real, Raquel; Hu, Ruifneg; Abrahams, Shameemah; Rao, Shilpa; Antar, Tarek; Leal, Thiago P.; Iankova, Vassilena; Scotton, William; Song, Yong Jin; Singleton, Andrew B.; Nalls, Mike A.; Dey, Sumit; Bandrés‐Ciga, Sara; Blauwendraat, Cornelis; Noyce, Alastair J.

doi:10.1038/s41531-023-00472-6

Cited by 5 publications

(4 citation statements)

References 32 publications

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“…9 Additionally, designathons have been used by the National Academies of Sciences, Engineering, and Medicine, 10 WHO 11 and the United States National Institute of Health. 12 Despite the expansive literature on designathons in programmes and research, there are limited reviews on this topic. [13][14][15] The data gathered from this review will guide future designathons and contribute to a concomitant WHO and the Special Programme for Research and Training in Tropical Diseases (TDR) practical guide.…”

Section: Bmj Global Healthmentioning

confidence: 99%

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Designathons in health research: a global systematic review

Tieosapjaroen,

Chen,

Ritchwood

et al. 2024

BMJ Glob Health

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IntroductionA designathon is a three-stage participatory activity informed by design thinking. There is a growing literature on designathons in health. This study synthesised designathons’ effectiveness and implementation-related factors to address health challenges.MethodsWe searched Cochrane Library, Embase, PubMed, Scopus and the ClinicalTrials.gov registry for articles containing primary data on designathons for health from their dates of inception to 29 November 2022. We retrieved additional studies from citation searching and a complementary open call. We synthesised data on designathons’ effectiveness (ie, engagement, outputs and implementation), required resources and implementation-related factors (ie, resources, facilitators, barriers, strengths and limitations). We assessed the risk of bias using a checklist adapted from Joanna Briggs Institute Critical Appraisal tools.ResultsIn total, 4973 citations were identified, and 42 studies were included. In total, 26 studies (62%) were from high-income countries. The median number of total participants was 49, divided into a median of 8 teams. The duration of the intensive collaboration phase ranged from 3 hours to 7 days. Common evaluation criteria were feasibility, innovation and impact. Idea and prototype outputs included mobile phone applications, educational programmes and medical devices. Interventions developed from a designathon was estimated to be highly cost-effective. The most common facilitators were interdisciplinary participants and high-quality mentorship. The most common barriers were suboptimal execution of the events, difficulties in balancing interdisciplinary participants across teams and limited support for participants along the process. There were limited data on required resources and further implementation of solutions after designathons.ConclusionGiven designathons’ adaptability in terms of budget, mode of delivery, type of output and involvement of diverse participants, including end users, designathons can be implemented in a wide range of contexts to address various health issues.PROSPERO registration numberCRD42023389685.

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Section: Bmj Global Healthmentioning

confidence: 99%

“…For instance, more than 26 000 individuals attended an online designathon hosted by Germany’s government to develop solutions to address the COVID-19 pandemic 9. Additionally, designathons have been used by the National Academies of Sciences, Engineering, and Medicine,10 WHO11 and the United States National Institute of Health 12…”

Section: Introductionmentioning

confidence: 99%

Designathons in health research: a global systematic review

Tieosapjaroen,

Chen,

Ritchwood

et al. 2024

BMJ Glob Health

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“…Seventeen studies (23%) used crowdsourcing to develop learning materials and parts of health curricula (Table 3) [11,[38][39][40][41][42][43][44][45][46][47][48][49][50][51][52][53]. Of these studies, 11 were solely conducted in high-income countries.…”

Section: Crowdsourcing To Develop Learning Materialsmentioning

confidence: 99%

Crowdsourcing to support training for public health: A scoping review

Tahlil,

Nwaozuru,

Conserve

et al. 2023

PLOS Glob Public Health

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Crowdsourcing is an interactive process that has a group of individuals attempt to solve all or part of a problem and then share solutions with the public. Crowdsourcing is increasingly used to enhance training through developing learning materials and promoting mentorship. This scoping review aims to assess the literature on crowdsourcing for training in public health. We searched five medical and public health research databases using terms related to crowdsourcing and training. For this review, the concept of crowdsourcing included open calls, designathons, and other activities. We used a PRISMA checklist for scoping reviews. Each full-text was assessed by two independent reviewers. We identified 4,071 citations, and 74 studies were included in the scoping review. This included one study in a low-income country, 15 studies in middle-income countries, 35 studies in high-income countries, and 11 studies conducted in multiple countries of varying income levels (the country income level for 12 studies could not be ascertained). Nine studies used open calls, 35 used a hackathon, designathon or other “a-thon” event, and 30 used other crowdsourcing methods, such as citizen science programs and online creation platforms. In terms of crowdsourcing purpose, studies used crowdsourcing to educate participants (20 studies), develop learning materials (17 studies), enhance mentorship (13 studies) and identify trainees (9 studies). Fifteen studies used crowdsourcing for more than one training purpose. Thirty-four studies were done in-person, 31 were conducted virtually and nine used both meeting options for their crowdsourcing events. Seventeen studies generated open access materials. Our review found that crowdsourcing has been increasingly used to support public health training. This participatory approach can be a useful tool for training in a variety of settings and populations. Future research should investigate the impact of crowdsourcing on training outcomes.

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“…7 Additionally, designathons have been used by The National Academies of Sciences, Engineering, and Medicine, 8 the World Health Organization (WHO), 9 and the United States National Institute of Health . 10 Given that few reviews have analyzed all three phases of designathons for health, [11][12][13] our systematic review is unique because we used a complementary designathon to identify best practices and inform a WHO/TDR practical guide. We aim to synthesize data from designathons used in health research in the peer-reviewed literature to understand how they are implemented, their effectiveness (i.e., engagement, outputs and implementation), required resources, benefits, drawbacks, facilitators and barriers.…”

Section: Introductionmentioning

confidence: 99%

Designathons in Health Research: A Global Systematic Review

Tieosapjaroen

Chen

Ritchwood

et al. 2023

Preprint

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Background: A designathon is a three-stage participatory activity informed by design thinking and rapid prototyping that includes preparation with end-users, an intensive period of collaborative teamwork, and evaluation of solutions by topic experts or community partners. A few previous systematic reviews have focused on the use of designathons in health. This study synthesised how designathons were organised and implementation-related factors to address health challenges. Methods: We searched Cochrane Library, Embase, PubMed, Scopus, and the ClinicalTrials.gov registry for peer-reviewed articles until November 29, 2022. The systemic review was registered in PROSPERO (CRD42023389685). Results: In total, 4,947 citations were identified, with 38 studies included in this review. Most studies were from high-income countries (26, 68%). The median number of participating teams was eight (IQR 5, 15), and the duration of the intensive collaboration phase ranged from three hours to seven days. The final products (i.e., ideas and prototypes) related to four themes: mobile applications, educational programs, medical devices, and other prototypes. Common evaluation criteria were feasibility, innovation or creativity, and impact. The most common facilitators were including diverse participants and having high-quality mentorship. . The most common barriers related to planning and implementing the designathon, and engaging diverse participants to participate. There were limited data on required resources and further implementation of solutions after designathons and no data on cost-effectiveness. Conclusion: Designathons are a promising tool for fostering innovative and person-centred solutions to address health challenges. Given its adaptability in terms of budget, mode of delivery, and involvement of diverse participants including end-users, designathons can be implemented in a wide range of contexts to address various health issues.

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The IPDGC/GP2 Hackathon - an open science event for training in data science, genomics, and collaboration using Parkinson’s disease data

Cited by 5 publications

References 32 publications

Designathons in health research: a global systematic review

Designathons in health research: a global systematic review

Crowdsourcing to support training for public health: A scoping review

Designathons in Health Research: A Global Systematic Review

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