The last days of dying stroke patients referred to a palliative care consult team in an acute hospital

Mazzocato, Claudia; Michel-Nemitz, J.; Anwar, Dominique; Michel, Patrik

doi:10.1111/j.1468-1331.2009.02744.x

Cited by 54 publications

(98 citation statements)

References 15 publications

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“…Two studies reported prevalence of pain in PWA after stroke, ranging from 43.8% to 87.5% (Mazzocato et al, 2010;Pomeroy et al, 2000). A prospective study reported higher prevalence of pain in stroke patients without aphasia (83.3-87.5%) compared with PWA after stroke (60-75%) (Pomeroy et al, 2000).…”

Section: Prevalence Of Painmentioning

confidence: 99%

“…Out of the total population, 38.1% (16/42) had difficulties communicating; for 15 of these participants, this was due to aphasia or altered level of consciousness. Of these 38.1%, the prevalence of one-location pain was 43.8% (7/16) and of two or more pain locations was 56.2% (9/16), as measured with the National Institutional Health Stroke Scale (Mazzocato et al, 2010).…”

Section: Prevalence Of Painmentioning

confidence: 99%

“…Two articles reported data from the same original research (Cruice, Worrall, & Hickson, 2010;Cruice, Worrall, Hickson, & Murison, 2005). Five studies were conducted at a stroke unit of a university or general hospital (Kehayia et al, 1997;Korner-Bitensky et al, 2006;Mazzocato, Michel-Nemitz, Anwar, & Michel, 2010;Price, Curless, & Rodgers, 1999;Smith et al, 2013) and one study at a rehabilitation centre (Jackson, Jackson, Kersten, & TurnerStokes, 2006). Data from three studies were collected at a community setting (Cruice et al, 2005(Cruice et al, , 2010Pomeroy et al, 2000).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Parallel to pain measurement instruments, the studies with pain registered as a subdomain of quality of life also used different quality of life instruments the International Quality of Life Assessment (IQOLA) SF-36 Health Survey (Ware & Gandek, 1998) and the Dartmouth COOP Charts (Nelson, Wasson, & Kirk, 1987). Studies on pain measurement in specific patients with an inability to communicate used the FPS and NRS to measure pain (Mazzocato et al, 2010;Smith et al, 2013). A summary of pain scales, the methodological quality and their accompanying LOE is presented in Table 3.…”

Section: Pain Measurementmentioning

confidence: 99%

“…Data from three studies were collected at a community setting (Cruice et al, 2005(Cruice et al, , 2010Pomeroy et al, 2000). Most of the included studies used a prospective cohort design; of the 10 articles, 3 described a retrospective cohort study (Cruice et al, 2005;Kehayia et al, 1997;Mazzocato et al, 2010). The studies including PWA consisted of sample sizes of 33-388 participants (Pomeroy et al, 2000;Smith et al, 2013).…”

Section: Study Characteristicsmentioning

confidence: 99%

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Pain and pain assessment in stroke patients with aphasia: a systematic review

2016

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Background: Persons with aphasia (PWA) after stroke are less able or unable to communicate about their pain due to language, speech and/or cognitive impairment. Most commonly pain rating scales are used for the assessment of pain in PWA, which could not be applied to any patient aphasia because of their inability to communicate verbally their pain. Aims: This review aims to investigate the prevalence and incidence of pain in PWA after stroke, establish which pain assessment instruments are used, and examine whether they are feasible, valid and reliable. Methods & Procedures: A systematic literature search was made to identify studies on pain and pain assessment in PWA and persons without aphasia after stroke, or in patients with right and left hemispheric stroke. The COnsensus-based Standards for the selection of health status Measurement INstruments (COSMIN) checklist was used to evaluate the methodological quality of the studies and the properties of the measurement scales used. Outcomes & Results: The search yielded 10 articles. The vertical, mechanical and horizontal Visual Analogue Scale, Faces Pain Scale, Verbal Rating Scale, Numeric Rating Scale, categorical site-of-pain scale, and a pictorial scale of pain intensity were used to assess pain, as were the Short-Form 36 Health Survey and the Dartmouth COOP Charts Quality of Life Scales that each have one pain item. Prevalence of pain in PWA after stroke was reported in two studies and ranged from 43.8-87.5%. Most studies described pain assessment in PWA after stroke with mild-to-moderate aphasia, while patients with severe aphasia were excluded. Various pain assessment tools were used but their feasibility, validity and reliability were generally of low methodological quality. Conclusions: A feasible, reliable and valid instrument is not available for PWA after stroke.

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Section: Prevalence Of Painmentioning

confidence: 99%

Section: Prevalence Of Painmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Pain Measurementmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

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Pain and pain assessment in stroke patients with aphasia: a systematic review

2016

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Stroke and Palliative Care

et al. 2019

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Developing and testing inter‐rater reliability of a data collection tool for patient health records on end‐of‐life care of neurological patients in an acute hospital ward

et al. 2023

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Aim Develop and test a data collection tool—Neurological End‐Of‐Life Care Assessment Tool (NEOLCAT)—for extracting data from patient health records (PHRs) on end‐of‐life care of neurological patients in an acute hospital ward. Design Instrument development and inter‐rater reliability (IRR) assessment. Method NEOLCAT was constructed from patient care items obtained from clinical guidelines and literature on end‐of‐life care. Expert clinicians reviewed the items. Using percentage agreement and Fleiss' kappa we calculated IRR on 32 nominal items, out of 76 items. Results IRR of NEOLCAT showed 89% (range 83%–95%) overall categorical percentage agreement. The Fleiss' kappa categorical coefficient was 0.84 (range 0.71–0.91). There was fair or moderate agreement on six items, and moderate or almost perfect agreement on 26 items. Conclusion The NEOLCAT shows promising psychometric properties for studying clinical components of care of neurological patients at the end‐of‐life on an acute hospital ward but could be further developed in future studies.

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The last days of dying stroke patients referred to a palliative care consult team in an acute hospital

Cited by 54 publications

References 15 publications

Pain and pain assessment in stroke patients with aphasia: a systematic review

Pain and pain assessment in stroke patients with aphasia: a systematic review

Stroke and Palliative Care

Developing and testing inter‐rater reliability of a data collection tool for patient health records on end‐of‐life care of neurological patients in an acute hospital ward

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