The life cycle and support networks of families with a person with a learning difficulty

McGrath, Morag; Grant, Gordon

doi:10.1080/02674649366780021

Cited by 20 publications

(13 citation statements)

References 4 publications

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“…Firstly, the sample of caregivers consisted almost entirely of mothers, with very few fathers. Although this is representative of parents caring for adults with intellectual disabilities ( Holmes & Carr 1991; McGrath & Grant 1993; Todd et al. 1993), it is unclear whether the findings can be generalized to fathers.…”

Section: Discussionmentioning

confidence: 99%

“…Scores range from 9 to 27, with higher scores indicating a higher level of ability. The Wessex Mental Handicap Register has been demonstrated to have acceptable inter‐rater reliability ( Humphreys et al 1984), and versions of the scale have been used in a number of recent studies ( Grant & McGrath 1990; McGrath & Grant 1993; Todd & Shearn 1996a, 1996b, 1996c).…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Parents of Adults with Intellectual Disabilities: Quality of Life and Experiences of Caring

Walden¹,

Pistrang²,

Joyce³

2000

Research Intellect Disabil

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This study examined a UK sample of parents caring for their adult offspring with intellectual disabilities, and the factors contributing to their quality of life and experiences of caregiving. Structured interviews were conducted with 62 parents of adults with intellectual disabilities. On several indices of quality of life, parents did not seem to be functioning as well as caregiving parents in the US, or as well as adults in the general US population.The offspring's level of challenging behaviour and physical dependency and the parent's satisfaction with informal support were associated with parental quality of life. The salience that parents placed on their post‐parental life style was also associated with quality of life, with ‘captive’ parents faring more poorly than ‘captivated’ parents.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Parents of Adults with Intellectual Disabilities: Quality of Life and Experiences of Caring

Walden¹,

Pistrang²,

Joyce³

2000

Research Intellect Disabil

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“…Informal sources of support tend to fade out at a time when carers themselves are getting increasingly frail and immobile and are needing more and more help and support, rather than less (McGrath & Grant, 1993).…”

Section: Needs Of Older Carersmentioning

confidence: 99%

Working with elderly carers of people with learning disabilities and planning for the future

Hubert¹,

Hollins²

2000

Adv. psychiatr. treat

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The majority of people with learning disabilities in the UK live at home with their families, usually with their parents (Mental Health Foundation, 1996) or – more commonly in later life – with one parent, usually their mother. Nowadays, people with learning disabilities live much longer than they did in the past, with the result that there is also an expanding population of elderly parents who are continuing to care for a son or daughter well into old age.

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“…More informal social supports lessened the perception of burden for aging mothers. Other studies suggest that unmet formal support services are related to caregiver burden (Heller & Factor, 1993;McGrath & Grant, 1993). Englehardt, Brubaker, and Lutzer (1988) found that neither age, health, income, education of the caregiver, nor dependent's level of disability was related to the amount of service use.…”

Section: Previous Studiesmentioning

confidence: 99%

Aging Parents of Adult Children with Mental Retardation:

McDermott

Tirrito

Valentine

et al. 1997

Journal of Gerontological Social Work

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This paper describes a study of aging parents of adult children with mental retardation. The challenges faced by aging parents are discussed from the perspective of life-span developmental psychology. This study examines whether there are differences based on age of parent in caregiver burdens and caregiver gratifications. No significant differences on the basis of age were found and analyses of the results suggest that age of parent may be less helpful in understanding the experiences of life-long caregiving than family

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The life cycle and support networks of families with a person with a learning difficulty

Cited by 20 publications

References 4 publications

Parents of Adults with Intellectual Disabilities: Quality of Life and Experiences of Caring

Parents of Adults with Intellectual Disabilities: Quality of Life and Experiences of Caring

Working with elderly carers of people with learning disabilities and planning for the future

Aging Parents of Adult Children with Mental Retardation:

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