The lived experience of Lebanese oncology patients receiving palliative care

Doumit, Myrna; Huijer, Huda Abu‐Saad; Kelley, Jane H.

doi:10.1016/j.ejon.2007.02.008

Cited by 50 publications

(57 citation statements)

References 40 publications

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“…The authors of a qualitative interview study performed in 2005 in Lebanon found that communication was an important part of the disease trajectory and that patients considered it their right to be told the truth about their condition 24,27 .…”

Section: Discussionmentioning

confidence: 99%

“…That approach is important, because in our society, familial support plays a major role in helping patients cope with a cancer diagnosis 23 . The authors of a previous qualitative study in Lebanon highlighted the need to shift from a paternalistic approach to patient-centered care 24 , which can help to promote the patient's autonomy. Controversially, family opposition to informing the patient is one of the obstacles that prevents 50% of physicians from telling the truth to patients.…”

Section: Discussionmentioning

confidence: 99%

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Revealing a Cancer Diagnosis to Patients: Attitudes of Patients, Families, Friends, Nurses, and Physicians in Lebanon—Results of a Cross-Sectional Study

et al. 2015

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Revealing a Cancer Diagnosis to Patients: Attitudes of Patients, Families, Friends, Nurses, and Physicians in Lebanon—Results of a Cross-Sectional Study

et al. 2015

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“…Although similar data are not available from the EM region, research has shown that people dislike hospitalization [6]. In the last decade, Dr Keri Thomas has pioneered the development of the Gold Standards Framework of Care which is at present used in over 80% of UK practices.…”

Section: Fourth Challenge: Providing End Of Life Care In the Communitymentioning

confidence: 99%

“…Patients and their caregivers can feel confused and unsupported. Patients with terminal illness report fear of pain and suffering that may be associated with their disease [6]. They may also feel abandoned by their physicians towards the end of life [7].…”

Section: Current Situation In the Eastern Mediterraneanmentioning

confidence: 99%

Primary palliative care: the potential of primary care physicians as providers of palliative care in the community in the Eastern Mediterranean Region

Sa¹

2012

East Mediterr Health J

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Palliative care focuses on improving the quality of life and relieving suffering in patients with progressive chronic illnesses. Palliative care services remain very limited in the Eastern Mediterranean region although the need for them is high and increasing. The World Health Organization has identified the development of palliative care as a regional priority. This review highlights the urgent need to provide such care in the region and proposes that primary care providers in the region are well placed to provide palliative care in their communities. As palliative medicine is not established as a specialty in the region, training and support in palliative care are required to build capacity in end-of-life care and to allow all patients who would benefit from this approach access to it equitably and early in their illness. Soins palliatifs en soins de santé primaires : potentiel des médecins des soins de santé primaires en tant que fournisseurs de soins palliatifs en communauté dans la Région de la Méditerranée orientale RÉSUMÉ Les soins palliatifs sont polarisés sur l'amélioration de la qualité de vie et sur l'allégement des souffrances des patients atteints de maladies chroniques évolutives. Les services de soins palliatifs restent limités dans la Région de la Méditerranée orientale malgré un besoin élevé et croissant en la matière. L'Organisation mondiale de la Santé a identifié le développement des soins palliatifs en tant que priorité régionale. La présente analyse souligne l'urgente nécessité de fournir de tels soins dans la Région et suggère que les prestataires des soins de santé primaires régionaux, bien placés dans leur communauté, fournissent ces soins palliatifs. La médecine palliative n'étant pas établie en tant que spécialité dans la Région, une formation et un appui en soins palliatifs sont requis pour renforcer les capacités en soins de fin de vie et permettre à tous les patients qui pourraient tirer avantage de cette approche d'y avoir accès de manière équitable dès le début leur maladie.

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“…But the theme of death as a main concern also has similarities with the reported findings of other studies. 35,36,37 They reported feelings of fear and uncertainty. There was fear of disease recurrence; fear of pain; fear of separation from loved ones, but not fear of death; and fear of being pitied by others.…”

Section: Discussionmentioning

confidence: 99%

The Phantom of Death Improving Quality of Life

Vargens

Berterö

2012

Am J Hosp Palliat Care

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The purpose of this study was, by using secondary analysis on collected data from previous empirical studies, focusing on improving quality of life due to new possibilities for living after a cancer diagnosis. No matter how long or short the life will be, quality of life in palliative care is about "living in the best way" until death. The data analysis identified four main themes; death as a main concern, re-evaluating life, living a normal life with support, and living until death. The key message is that the patients are living until they die. Palliative care should facilitate and support the patients in their new life situation in order to sustain their quality of life. They are still alive-living until death.

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The lived experience of Lebanese oncology patients receiving palliative care

Cited by 50 publications

References 40 publications

Revealing a Cancer Diagnosis to Patients: Attitudes of Patients, Families, Friends, Nurses, and Physicians in Lebanon—Results of a Cross-Sectional Study

Revealing a Cancer Diagnosis to Patients: Attitudes of Patients, Families, Friends, Nurses, and Physicians in Lebanon—Results of a Cross-Sectional Study

Primary palliative care: the potential of primary care physicians as providers of palliative care in the community in the Eastern Mediterranean Region

The Phantom of Death Improving Quality of Life

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