The Lived Experience of Patients Receiving Hemodialysis Treatment for End-Stage Renal Disease

Chiaranai, Chantira

doi:10.1097/jnr.0000000000000100

Cited by 60 publications

(67 citation statements)

References 24 publications

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“…The experience of having kidney disease is highly individual, and qualitative research (QR) can provide a more holistic view that may be more meaningful to practitioners. Qualitative methods have been used to study the experiences of patients with CKD regarding the symptoms of the illness itself, the implications of treatment on quality of life, the effects on daily life, and the experience of waiting for renal transplant [9][10][11]. Also, previous studies performed on women have described the process of adaptation to the illness and its treatment, detailing the progression from acceptance of the diagnosis to the need for treatment and the associated adverse effects [12].…”

Section: Introductionmentioning

confidence: 99%

Body Changes and Decreased Sexual Drive after Dialysis: A Qualitative Study on the Experiences of Women at an Ambulatory Dialysis Unit in Spain

Álvarez-Villarreal

Velarde‐García

González

et al. 2019

IJERPH

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Chronic kidney disease (CKD) has considerable effects on the quality of life of patients, impairing everyday activities and leading to lifestyle changes, as well as affecting body image and intimate relationships. Our aim was to describe the experience of female patients with CKD at an ambulatory dialysis unit regarding body changes and sexuality. A qualitative phenomenological study exploring how 18 female patients, treated at the dialysis unit of a Spanish hospital, perceived their sexuality and intimate relationships. Data were collected using in-depth interviews, researcher field notes, and patients’ personal letters. A thematic analysis was performed. Four main themes arose from the data describing the experience of how CKD impacts body changes and sexuality: (a) Accepting body changes, (b) The catheter, the fistula, and body image, (c) Experiencing a different sexuality, and (d) The catheter, the fistula, and sexuality. Patients experienced changes in their body, perceiving it as being bloated or deformed, together with overall decline. The catheter and/or the fistula triggered changes in the way the women dress in an attempt to hide port sites. Women experience sexuality changes, affecting sexual desire and satisfaction. The presence of catheters was found to be the most cumbersome during sexual acts.

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Section: Introductionmentioning

confidence: 99%

Body Changes and Decreased Sexual Drive after Dialysis: A Qualitative Study on the Experiences of Women at an Ambulatory Dialysis Unit in Spain

Álvarez-Villarreal

Velarde‐García

González

et al. 2019

IJERPH

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“…Dietary and fluid adherence is of crucial importance to the quality of life and survival of hemodialysis patients (13). In line with this, fluid and diet restrictions were reported in six studies (13,16,26,29,30,32) as the most stressful restrictions that adversely affects their quality of life and created social limitations. Rhoni et al (2016) brought a theme "Unfulfilled wishes" and described as a yearning wishes that hemodialysis patients unfulfilled due to their disease and treatment.…”

Section: Facing Countless Restrictions In Lifementioning

confidence: 77%

“…The 8 studies included in the synthesis were involved 94 participants. The number of participants enrolled in these studies ranged from 7(16) to 26 (29). Seven different countries were represented in the included studies including India (had two studies), Sweden, Greece, Singapore, Jordan, Thailand & United states of America.…”

Section: Resultsmentioning

confidence: 99%

“…The physical limitations caused by the disease and its treatment created role dysfunction, resulting in emotional distress (29). Sexual dysfunction is one of the main role dysfunction causing emotional distress mentioned by hemodialysis patients in three of the studies (13,29,30). Valsaraj et al (2014) used the theme "marital relationship and sexuality" to express diminished sexual interest after the onset of illness as well as demand of marital and family adjustments.…”

Section: Facing Countless Restrictions In Lifementioning

confidence: 99%

“…I cannot be a good wife'' (29). On the other hand, the literatures revealed that hemodialysis patients experienced emotional distress in relation to fear and threat of death, depression, guilty feeling, loneliness, having unpredictable future, suicidal thoughts, shock, rejection of ESRD diagnosis and need for hemodialysis (16,21,26,(29)(30)(31). These problems not only affect the patient emotions but also hugely disturbing normal social activities.…”

Section: Facing Countless Restrictions In Lifementioning

confidence: 99%

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The lived experiences of patients on hemodialysis: a metha-synthesis

Gebrie¹,

Jemberie²

2019

Preprint

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Background: Treating chronic kidney disease is connected with receiving long-term dialysis therapy by patients. Hemodialysis is remains to be the most common means of therapy for these group of patients worldwide. Although it is life prolonging, the complex nature of treatment procedure affects the patients’ normal life and leads to have significant symptom burden. Therefore, the purpose of this review is to synthesize recent qualitative studies about the lived experiences of patients on hemodialysis.Methods: A synthesis was done by conducting a search on google scholar and PubMed data bases, reference lists were searched for primary articles and additional hand search on google was also done. Studies that satisfy the Joanna Briggs Institute (JBI) critical appraisal tools and published in English from January 1st, 2011 to September 1st, 2018 were reviewed.Results: Eight studies comprising of 94 participants were included in this synthesis. Three theme were emerged: Facing countless restrictions in life, having diverse outlooks towards hemodialysis machine and seeking education and competent care from health professionals. The first theme describes the physical limitations, social restrictions, financial restrictions, emotional distress, functional disturbances, and fluid and dietary restrictions that the participant experienced. The second theme, diverse outlooks towards hemodialysis machine, explains about participants positive and non-positive feelings towards the machine and the final theme, seeking education and competent care from health professionals, states the need of education and experienced care participants required from health care professionals.Conclusion: This review revealed hemodialysis patients have physical, social, psychological, financial and nutritional restrictions; a need of education and some positive feeling towards the dialysis machine. Identification of the key elements of the patient perspective can facilitate provision of high quality health care services that effectively meet the needs of patients on hemodialysis.

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Interventions for fatigue in people with chronic kidney disease requiring dialysis

Strippoli

Craig

et al. 2018

Cochrane Database of Systematic Reviews

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The Lived Experience of Patients Receiving Hemodialysis Treatment for End-Stage Renal Disease

Cited by 60 publications

References 24 publications

Body Changes and Decreased Sexual Drive after Dialysis: A Qualitative Study on the Experiences of Women at an Ambulatory Dialysis Unit in Spain

Body Changes and Decreased Sexual Drive after Dialysis: A Qualitative Study on the Experiences of Women at an Ambulatory Dialysis Unit in Spain

The lived experiences of patients on hemodialysis: a metha-synthesis

Interventions for fatigue in people with chronic kidney disease requiring dialysis

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