The lived experience of recurrence prevention in patients with venous leg ulcers: An interpretative phenomenological study

Probst, Sebastian; Séchaud, Laurence; Bobbink, Paul; Skinner, Monika Buehrer; Weller, Carolina

doi:10.1016/j.jtv.2020.01.001

Cited by 33 publications

(49 citation statements)

References 18 publications

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“…The challenges faced when managing people with VLU are not unique to Australia ( Franks et al, 2016 ). Compression use, as an example, has been reported as being problematic across Switzerland ( Probst et al, 2020 ) and the United Kingdom ( Guest et al, 2018 ).…”

Section: Introductionmentioning

confidence: 99%

Patient Explanation of Adherence and Non-Adherence to Venous Leg Ulcer Treatment: A Qualitative Study

et al. 2021

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The aim of this study was to understand which factors influence patients’ adherence to venous leg ulcer treatment recommendations in primary care. We adopted a qualitative study design, conducting phone interviews with 31 people with venous leg ulcers in Melbourne, Australia. We conducted 31 semi-structured phone interviews between October and December 2019 with patients with clinically diagnosed venous leg ulcers. Participants recruited to the Aspirin in Venous Leg Ulcer Randomized Control Trial and Cohort study were invited to participate in a qualitative study, which was nested under this trial. We applied the Theoretical Domains Framework to guide the data analysis. The following factors influenced patients’ adherence to venous leg ulcer treatment: understanding the management plan and rationale behind treatment (Knowledge Domain); compression-related body image issues (Social Influences); understanding consequences of not wearing compression (Beliefs about Consequences); feeling overwhelmed because it’s not getting better (Emotions); hot weather and discomfort when wearing compression (Environmental Context and Resources); cost of compression (Environmental Context and Resources); ability to wear compression (Beliefs about Capabilities); patience and persistence (Behavioral Regulation); and remembering self-care instructions (Memory, Attention and Decision Making). The Theoretical Domains Framework was useful for identifying factors that influence patients’ adherence to treatment recommendations for venous leg ulcers management. These factors may inform development of novel interventions to optimize shared decision making and self-care to improve healing outcomes. The findings from this article will be relevant to clinicians involved in management of patients with venous leg ulcers, as their support is crucial to patients’ treatment adherence. Consultation with patients about VLU treatment adherence is an opportunity for clinical practice to be targeted and collaborative. This process may inform guideline development.

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Section: Introductionmentioning

confidence: 99%

Patient Explanation of Adherence and Non-Adherence to Venous Leg Ulcer Treatment: A Qualitative Study

et al. 2021

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“…41 Furthermore, checking on patient understanding is not a routine practice for healthcare professionals, 42 although this was recommended in at least one set of international guidelines on VLU care. 26 27 Limited qualitative studies published in the past indicate that HL may affect VLU patients' self-management capabilities, [43][44][45] yet there have been no recent reviews published examining the level of HL of patients with VLUs, and the effect it has on patient's adoption of health behaviours. These studies suggest that inadequate HL reduces the likelihood of engaging in VLU compression, but there is also the possibility that those with lower HL may not increase their physical activity in response to a VLU (despite also being in the recommendations).…”

Section: Study Rationalementioning

confidence: 99%

Health literacy in people with venous leg ulcers: a protocol for scoping review

et al. 2021

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IntroductionChronic venous leg ulcer (VLU) healing is a complex clinical problem. It requires intervention from skilled, costly, multidisciplinary wound-care teams, working with patients to manage their care. Compression therapy has been shown to help heal venous ulcers and to reduce recurrence, with some evidence suggesting the value of exercise as well. These activities require health education and health literacy (HL) as patients must process, understand and consistently apply health information for successful self-management. Research suggests that those most vulnerable to VLUs also tend to have limited HL, but there have been no reviews examining the state of HL in patients with previous or active VLUs. This scoping review aims to examine the level of HL in VLU patients and how HL may link to self-management behaviours (particularly exercise and compression adherence), and their VLU healing generally.Methods and analysisWe will use Preferred Reporting Items for Systematic Reviews and Meta-Analyses Scoping Review guidelines and the Levac methodology framework to explore eligible papers that examine the effect of HL on their exercise and compression adherence. Electronic databases will be searched (MEDLINE, EMBASE, the Cochrane Library, PsycInfo and Health, OpenGray), examining for all papers on these subjects published between 2000 and 2020. All studies describing compression and or exercise during VLU management will be included. Study characteristics will be recorded; qualitative data will be extracted and evaluated. Quantitative data will be extracted and summarised.Ethics and disseminationWe will disseminate results through peer-reviewed publications. We will use data (ie, journal articles) from publicly available platforms; so, this study does not require ethical review. The consultation step will be carried out with patients, carers and health professionals as part of an established wound consumer group.

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“…26 Knowledge deficit is a frequent hypotheses for why chronic venous disease develops into a first VLU 27 or a recurrence. 28 Conversely, adherence to compression therapy improves with participants' knowledge level. 29 To address knowledge deficit, promote healing and prevent VLU, patient-education has to be multifaceted and oriented towards protective factors intended to prevent recurrence.…”

Section: Introductionmentioning

confidence: 99%

Experiences of Venous Leg Ulcer persons following an individualised nurse-led education: protocol for a qualitative study using a constructivist grounded theory approach

2020

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IntroductionVenous leg ulcers are slow-healing wounds with a high risk of recurrences. To prevent recurrences and promote healing, different nurse-led educational interventions have been developed. The impact of these interventions on self-management is ambiguous. Also, how persons with a venous leg ulcer experiences these educational sessions are poorly described.AimThis study protocol presents the methodology to provide a comprehensive explanation of participants’ journeys—of how they experience their individualised education sessions concerning self-management.Methods and analysisA constructivist grounded theory approach according to Charmaz involving 30 participants will be used. Data will be collected through semistructured face-to-face interviews. Interviews will be transcribed verbatim and analysed with initial and focus coding using MAXQDA. Data collection and data analysis will occur iteratively, focusing on constant comparison to obtain well-developed categories. Categories will be reinforced using existent literature.Ethics and disseminationThis pre-results study is embedded in a clinical trial (NCT04019340) and approved by ethical committee of the canton of Geneva (CCER: 2019-01964). A theory will emerge from participants’ journeys informing future education sessions for patients with venous leg ulcers. The findings will be disseminated through peer-reviewed publications and communications.

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The lived experience of recurrence prevention in patients with venous leg ulcers: An interpretative phenomenological study

Cited by 33 publications

References 18 publications

Patient Explanation of Adherence and Non-Adherence to Venous Leg Ulcer Treatment: A Qualitative Study

Patient Explanation of Adherence and Non-Adherence to Venous Leg Ulcer Treatment: A Qualitative Study

Health literacy in people with venous leg ulcers: a protocol for scoping review

Experiences of Venous Leg Ulcer persons following an individualised nurse-led education: protocol for a qualitative study using a constructivist grounded theory approach

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