The lockdown of the locked-in: experiences of persons with Locked-in Syndrome during COVID-19 pandemic

Masana, Lina; Vidal, Fernando

doi:10.1080/09687599.2023.2279484

Disability & Society

2023

DOI: 10.1080/09687599.2023.2279484

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The lockdown of the locked-in: experiences of persons with Locked-in Syndrome during COVID-19 pandemic

Lina Masana,

Fernando Vidal

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2024

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Cited by 1 publication

References 33 publications

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12 Fighting for Recovery

Masana

2024

Gesundheit, Kommunikation Und Gesellschaft

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Locked-in Syndrome (LIS) is a rare medical condition with poor prognosis that challenges the notion of recovery for health professionals and for persons that suffer from it and their close relatives. Persons with LIS cannot move (quadriplegia) or speak (anarthria), but they are conscious, cognitively able, can see and hear, and keep bodily sensations. From the onset of the condition and over time, the experience of LIS and its recovery is defined by what I named the certain uncertainty of LIS: very few persons will recover completely whilst other will not at all; in between, different degrees of recovery will vary largely from case to case. This chapter, based on ethnographic material from postdoctoral research on the lived experience of persons with LIS aims to shed light on the paradox of the certain uncertainty of LIS.

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12 Fighting for Recovery

Masana

2024

Gesundheit, Kommunikation Und Gesellschaft

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The lockdown of the locked-in: experiences of persons with Locked-in Syndrome during COVID-19 pandemic

Cited by 1 publication

References 33 publications

12 Fighting for Recovery

12 Fighting for Recovery

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