The Long-Term Quality of Life of Living Kidney Donors: A Multicenter Cohort Study

Clemens, Kristin K.; Boudville, Neil; Dew, Mary Amanda; Geddes, Colin C.; Gill, John S.; Jassal, Vanita; Klarenbach, Scott; Knoll, Greg; Muirhead, Norman; Prasad, G. V. Ramesh; Storsley, Leroy; Treleaven, Darin; Garg, Amit X.

doi:10.1111/j.1600-6143.2010.03424.x

Cited by 104 publications

(96 citation statements)

References 32 publications

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“…This finding is similar to the satisfying effects of kidney donation discussed in some recent studies. [11][12][13] In our study, we revealed a high incidence of obesity in our donor group. In a recent epidemiologic study in Turkey, obesity prevalence was reported to be 44% in women and 27% in men, which may reflect that obesity is an endemic problem in Turkey involving the donor group of our study.…”

Section: Discussionsupporting

confidence: 51%

Untitled

Kaya

Sayın²,

Sağlam³

et al. 2017

Exp Clin Transplant

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Section: Discussionsupporting

confidence: 51%

Untitled

Kaya

Sayın²,

Sağlam³

et al. 2017

Exp Clin Transplant

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“…Although both physical health and mental health summary scores have been shown to be excellent in a large population of kidney donors [14], they only indirectly reflect the social and psychological impact of kidney donation over the long-term. Validated scores, such as the SF-12 and SF-36 scores, are useful methods for comparing the quality of life regarding physical and mental health status between various medical conditions, including kidney donation [19], but do not specifically address questions related to living kidney donation [8,9]. Even though the questionnaire used in our study is not validated, it integrates univocal and critical questions regarding the psychological and social consequences of kidney donation, which relate closely to each donor.…”

Section: Discussionmentioning

confidence: 99%

Very long-term follow-up of living kidney donors

Fournier¹,

Pallet²,

Cherqaoui³

et al. 2012

Transplant International

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Summary Knowledge of the very long‐term consequences of kidney donors has not been previously reported extensively. The 398 persons who had donated a kidney between 1952 and 2008 at Necker hospital were contacted. Among the 310 donors who were located, the survival probabilities for this population were similar to those of the general population and end stage renal disease incidence was 581 per million population per year. All located donors still alive were asked to complete a medico‐psychosocial questionnaire and give samples for serum creatinine and urinary albumin assays. Among the 204 donors who responded to the questionnaire, mean eGFR was 64.4 ± 14.6 ml/min per 1.73 m2 and mean microalbuminuria was 27.0 ± 83 mg/g. Most donors never regretted the donation and consider that it has no impact on their professional or social lives. Among the 59 donors who gave a kidney more than 30 years ago (mean 40.2 years, range 30–48 years) had a mean eGFR of 67.5 ± 17.4 μmol/l, a mean microalbuminuria level of 44.8 ± 123.2 mg/g and none was dialyzed. In conclusion, living kidney donation does not impact survival, kidney function, medical condition or psychological or social status over the very long‐term.

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“…Most kidney donors experience psychosocial benefits, including improved self-esteem and donor-recipient relationships (1)(2)(3)(4)(5); likewise, most report no regrets (6,7) and reaffirm their decision to donate (3,(8)(9)(10)(11)(12)(13). However, these experiences are not universal.…”

Section: Introductionmentioning

confidence: 99%

Emotional and Financial Experiences of Kidney Donors over the Past 50 Years

Jacobs¹,

Gross²,

Messersmith³

et al. 2015

Clinical Journal of the American Society of Nephrology

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Background and objectives Most kidney donors view their experience positively, but some may experience psychosocial and financial burdens. We hypothesized that certain donor characteristics, poor outcome of the recipient, negative perceptions of care, and lack of support may be associated with poor psychosocial outcomes for donors.Design, setting, participants, & measurements The Renal and Lung Living Donors Evaluation Study (RELIVE) examined long-term medical and psychosocial outcomes for kidney donors (at three U.S. transplant centers) who donated between 1963 and 2005. Standardized questionnaires evaluated donor perspectives, recovery time, social support, motivation, financial impact, insurability after donation, and current psychological status. Questionnaires were mailed to 6909 donors.Results Questionnaires were returned by 2455 donors, who had donated 17610 years earlier (range, 5-48 years), a response rate of 36%. Most (95%) rated their overall donation experience as good to excellent. Rating the overall donor experience more negatively was associated with donor complications, psychological difficulties, recipient graft failure, and longer time since donation. Nine percent (n=231) reported one or more of the following poor psychosocial outcomes: fair or poor overall donor experience, financial burden, regret or discomfort with decision to donate, or psychological difficulties since donation. Recipient graft failure was the only predictor for reporting one or more of these poor psychosocial outcomes (odds ratio, 1.77; 95% confidence interval, 1.33 to 2.34). Donors with lower educational attainment experienced greater financial burden. One of five employed donors took unpaid leave; 2% reported health and life insurability concerns.Conclusions Although the majority of donors viewed their overall donation experience positively, almost 1 in 10 donors reported at least one negative consequence related to donation. Recipient graft failure was associated with poor psychosocial outcome, defined as one or more of these negative consequences. Some donors were financially disadvantaged, and some experienced insurance difficulties. Interventions to avoid negative psychosocial and financial consequences are warranted.

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The Long-Term Quality of Life of Living Kidney Donors: A Multicenter Cohort Study

Cited by 104 publications

References 32 publications

Untitled

Untitled

Very long-term follow-up of living kidney donors

Emotional and Financial Experiences of Kidney Donors over the Past 50 Years

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