The Maastricht social participation profile: development and clinimetric properties in older adults with a chronic physical illness

Mars, Godelief M. J.; Kempen, Gertrudis I. J. M.; Post, Marcel W.M.; Proot, Ireen M.; Mesters, Ilse; Eijk, J.T.M. van

doi:10.1007/s11136-009-9537-4

Cited by 38 publications

(32 citation statements)

References 34 publications

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“…Social roles are thought to be a nuanced aspect of participation and more than simple engagement in daily activities [42]. At a societal level, The World Health Organization interprets social participation within a number of different forms, including empowering communities to retain ultimate control over the key decisions that affect their wellbeing [144].…”

Section: Discussionmentioning

confidence: 99%

A systematic review evaluating the psychometric properties of measures of social inclusion

et al. 2017

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IntroductionImproving social inclusion opportunities for population health has been identified as a priority area for international policy. There is a need to comprehensively examine and evaluate the quality of psychometric properties of measures of social inclusion that are used to guide social policy and outcomes.ObjectiveTo conduct a systematic review of the literature on all current measures of social inclusion for any population group, to evaluate the quality of the psychometric properties of identified measures, and to evaluate if they capture the construct of social inclusion.MethodsA systematic search was performed using five electronic databases: CINAHL, PsycINFO, Embase, ERIC and Pubmed and grey literature were sourced to identify measures of social inclusion. The psychometric properties of the social inclusion measures were evaluated against the COSMIN taxonomy of measurement properties using pre-set psychometric criteria.ResultsOf the 109 measures identified, twenty-five measures, involving twenty-five studies and one manual met the inclusion criteria. The overall quality of the reviewed measures was variable, with the Social and Community Opportunities Profile-Short, Social Connectedness Scale and the Social Inclusion Scale demonstrating the strongest evidence for sound psychometric quality. The most common domain included in the measures was connectedness (21), followed by participation (19); the domain of citizenship was covered by the least number of measures (10). No single instrument measured all aspects within the three domains of social inclusion. Of the measures with sound psychometric evidence, the Social and Community Opportunities Profile-Short captured the construct of social inclusion best.ConclusionsThe overall quality of the psychometric properties demonstrate that the current suite of available instruments for the measurement of social inclusion are promising but need further refinement. There is a need for a universal working definition of social inclusion as an overarching construct for ongoing research in the area of the psychometric properties of social inclusion instruments.

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Section: Discussionmentioning

confidence: 99%

A systematic review evaluating the psychometric properties of measures of social inclusion

et al. 2017

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“…Secondary outcomes are depressive symptomatology (depression subscale Hospital Anxiety and Depression Scale) [35], social support interactions (Social Support List - Interaction version) [36], fear of falling (Short Falls Efficacy Scale - International) [37] and social participation (Maastricht Social Participation Profile) [38]. Feelings of loneliness will be assessed by the question: "During the past 4 weeks, how often did you feel lonely?"…”

Section: Methodsmentioning

confidence: 99%

The reduction of disability in community-dwelling frail older people: design of a two-arm cluster randomized controlled trial

et al. 2010

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BackgroundFrailty among older people is related to an increased risk of adverse health outcomes such as acute and chronic diseases, disability and mortality. Although many intervention studies for frail older people have been reported, only a few have shown positive effects regarding disability prevention. This article presents the design of a two-arm cluster randomized controlled trial on the effectiveness, cost-effectiveness and feasibility of a primary care intervention that combines the most promising elements of disability prevention in community-dwelling frail older people.Methods/designIn this study twelve general practitioner practices were randomly allocated to the intervention group (6 practices) or to the control group (6 practices). Three thousand four hundred ninety-eight screening questionnaires including the Groningen Frailty Indicator (GFI) were sent out to identify frail older people. Based on their GFI score (≥5), 360 participants will be included in the study. The intervention will receive an interdisciplinary primary care intervention. After a comprehensive assessment by a practice nurse and additional assessments by other professionals, if needed, an individual action plan will be defined. The action plan is related to a flexible toolbox of interventions, which will be conducted by an interdisciplinary team. Effects of the intervention, both for the frail older people and their informal caregivers, will be measured after 6, 12 and 24 months using postal questionnaires and telephone interviews. Data for the process evaluation and economic evaluation will be gathered continuously over a 24-month period.DiscussionThe proposed study will provide information about the usefulness of an interdisciplinary primary care intervention. The postal screening procedure was conducted in two cycles between December 2009 and April 2010 and turned out to be a feasible method. The response rate was 79.7%. According to GFI scores 29.3% of the respondents can be considered as frail (GFI ≥ 5). Nearly half of them (48.1%) were willing to participate. The baseline measurements started in January 2010. In February 2010 the first older people were approached by the practice nurse for a comprehensive assessment. Data on the effect, process, and economic evaluation will be available in 2012.Trial RegistrationISRCTN31954692

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“…The current study's primary outcome was the social isolation of the participants at baseline and 12 to 18 months later. Social isolation was assessed using two instruments (Supplementary Table S1): Lubben Social Network Scale (LSNS‐6) and the Maastricht Social Participation Profile (MSPP) …”

Section: Methodsmentioning

confidence: 99%

Association Between Osteoarthritis and Social Isolation: Data From the EPOSA Study

Siviero

Veronese

Smith

et al. 2019

J American Geriatrics Society

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OBJECTIVE To determine whether there is an association between osteoarthritis (OA) and incident social isolation using data from the European Project on OSteoArthritis (EPOSA) study. DESIGN Prospective, observational study with 12 to 18 months of follow‐up. SETTING Community dwelling. PARTICIPANTS Older people living in six European countries. MEASUREMENTS Social isolation was assessed using the Lubben Social Network Scale and the Maastricht Social Participation Profile. Clinical OA of the hip, knee, and hand was assessed according to American College of Rheumatology criteria. Demographic characteristics, including age, sex, multijoint pain, and medical comorbidities, were assessed. RESULTS Of the 1967 individuals with complete baseline and follow‐up data, 382 (19%) were socially isolated and 1585 were nonsocially isolated at baseline; of these individuals, 222 (13.9%) experienced social isolation during follow‐up. Using logistic regression analyses, after adjustment for age, sex, and country, four factors were significantly associated with incident social isolation: clinical OA, cognitive impairment, depression, and worse walking time. Compared to those without OA at any site or with only hand OA, clinical OA of the hip and/or knee, combined or not with hand OA, led to a 1.47 times increased risk of social isolation (95% confidence interval = 1.03‐2.09). CONCLUSION Clinical OA, present in one or two sites of the hip and knee, or in two or three sites of the hip, knee, and hand, increased the risk of social isolation, adjusting for cognitive impairment and depression and worse walking times. Clinicians should be aware that individuals with OA may be at greater risk of social isolation. J Am Geriatr Soc 68:87–95, 2019

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The Maastricht social participation profile: development and clinimetric properties in older adults with a chronic physical illness

Abstract: The MSPP has good validity and acceptable reproducibility. Its distinguishing features are its focus on actual social participation and the possibility to calculate both diversity and frequency scores.

Cited by 38 publications

References 34 publications

A systematic review evaluating the psychometric properties of measures of social inclusion

A systematic review evaluating the psychometric properties of measures of social inclusion

The reduction of disability in community-dwelling frail older people: design of a two-arm cluster randomized controlled trial

Association Between Osteoarthritis and Social Isolation: Data From the EPOSA Study

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