The manifestation of participation within a co‐design process involving patients, significant others and health‐care professionals

Lindblom, Sebastian; Flink, Maria; Elf, Marie; Laska, Ann‐Charlotte; Koch, Lena von; Ytterberg, Charlotte

doi:10.1111/hex.13233

Cited by 36 publications

(96 citation statements)

References 45 publications

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“…According to Dent-Spargo (2018), participants in a co-design process are usually motivated to contribute above and beyond their duties when their psychological needs for autonomy, competence, and relatedness are met. Recent work by Lindblom et al (2021) resonates with these findings by adding that although participants may not fully understand their participatory role, they are more motivated to contribute when their insights are valued. Indeed, Riz said that the moral support, affection, and kindness shown by his co-designer partners made him enjoy his work more.…”

Section: Motivation In Working With Co-designersmentioning

confidence: 82%

“…They proposed that the participants of a co-design process are motivated to contribute more and even work outside their comfort zone if their psychological needs for autonomy, competence, and relatedness are met. This finding was supported by Lindblom et al's (2021) work which demonstrated that acknowledgement of participants" insights motivates them to contribute more, even if they do not fully understand their role as co-designers.…”

Section: Introductionmentioning

confidence: 82%

“…Riz further underscored that maintaining healthy and robust bonds with his co-designers was vital in building a working relationship, despite some disagreements along the way. By doing so, he initiated a higher level of volition among his co-designers, which led to their increased engagement and quality contributions (Dent-Spargo, 2018;Lindblom et al, 2021).…”

Section: Commitment To Building a Cohesive Working Relationship And To The Delivery And Quality Of The Ar Mobile Applicationmentioning

confidence: 99%

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Augmented Reality Mobile Application Co-Design Experience: Delineating the Nuances from the Lens of a System Developer

Khambari¹,

Rofie²

2021

ASS

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With the rapid development of educational tools, co-design has been on the rise. Co-design is instrumental in successful product development as it merges two key perspectives, namely consumers’ insights and professionals’ knowledge. The roles of users, designers, and developers are now blurred as educators have begun to construct their own tools for teaching based on problems and ideas conceived in their classrooms, thereby assuming roles as designers and to some extent, as developers. A more common practice in recent days is educators’ co-designing of tools with system developers to achieve their targeted goal. This study attempted to explore the process of co-designing an augmented reality (AR) mobile application and the role of a system developer in mediating the design process with non-designers, namely academic members of the Faculty of Medicine and Health Sciences, Universiti Putra Malaysia. This study further aimed to delineate the nuances of the AR mobile application co-design experience from the perspective of the system developer. Semi-structured interviews, observations, and document analyses were conducted to examine the detailed process of co-designing and developing the AR application as well as to understand the developer’s interaction with the consumers. The main findings of this study suggest that the waterfall model of the Software Development Life Cycle was in use during the co-design process. This cycle generally involves five stages, namely (i) planning, (ii) analysis, (iii) design, (iv) implementation, and (v) maintenance, which are iterative in nature. The designer’s role in mediating the co-design process encompassed balancing their knowledge and experience with the needs of consumers that do not necessarily match the designer’s expectations. This was achieved through (i) precise communication, (ii) commitment to the delivery and quality of the AR mobile application, as well as to building cohesive working relationships, and (iii) motivation to work with co-designers during the development process. The findings shed light on the value of co-design and the complex role of designers in mediating the design process with non-designers, which when accounted for, can lead to more feasible project development.

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Section: Motivation In Working With Co-designersmentioning

confidence: 82%

Section: Introductionmentioning

confidence: 82%

Section: Commitment To Building a Cohesive Working Relationship And To The Delivery And Quality Of The Ar Mobile Applicationmentioning

confidence: 99%

See 1 more Smart Citation

Augmented Reality Mobile Application Co-Design Experience: Delineating the Nuances from the Lens of a System Developer

Khambari¹,

Rofie²

2021

ASS

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“…Recent co-produced research recommends implementing costed external training, especially with regard to establishing a relationship from the start [ 68 ].Our PPIE group was diverse with patients and carers with differing levels of PPIE experience. We found this dynamic worked well in terms of assigning roles and responsibilities [ 22 ], and tailoring varied strands of work to specific roles based on preferences enhanced the value of the PPIE in co-design as everyone was treated with equal importance [ 13 , 14 , 68 , 69 ]. Establishing a joint understanding and clarity of roles was central to managing expectations, especially when sometimes we could not feasibly meet preferences for involvement.…”

Section: Discussionmentioning

confidence: 99%

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Small

Ong

Lewis³

et al. 2021

Res Involv Engagem

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Background The way we collect and use patient experience data is vital to optimise the quality and safety of health services. Yet, some patients and carers do not give feedback because of the limited ways data is collected, analysed and presented. In this study, we worked together with researchers, staff, patient and carer participants, and patient and public involvement and engagement (PPIE) contributors, to co-design new tools for the collection and use of patient experience data in multiple health settings. This paper outlines how the range of PPIE and research activities enabled the co-design of new tools to collect patient experience data. Methods Eight public contributors represented a range of relevant patient and carer experiences in specialist services with varied levels of PPIE experience, and eleven members of Patient and Participation Groups (PPGs) from two general practices formed our PPIE group at the start of the study. Slide sets were used to trigger co-design discussions with staff, patient and carer research participants, and PPIE contributors. Feedback from PPIE contributors alongside verbatim quotes from staff, patient and carer research participants is presented in relation to the themes from the research data. Results PPIE insights from four themes: capturing experience data; adopting digital or non-digital tools; ensuring privacy and confidentiality; and co-design of a suite of new tools with guidance, informed joint decisions on the shaping of the tools and how these were implemented. Our PPIE contributors took different roles during co-design and testing of the new tools, which supported co-production of the study. Conclusions Our experiences of developing multiple components of PPIE work for this complex study demonstrates the importance of tailoring PPIE to suit different settings, and to maximise individual strengths and capacity. Our study shows the value of bringing diverse experiences together, putting patients and carers at the heart of improving NHS services, and a shared approach to managing involvement in co-design, with the effects shown through the research process, outcomes and the partnership. We reflect on how we worked together to create a supportive environment when unforeseen challenges emerged (such as, sudden bereavement).

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“…Details of the codesign process and the participants have been presented previously. 25 Three areas of unmet needs related to care transitions were identified across patients, significant others, and healthcare professionals: 1. Shared understanding of patient illness and situation.…”

Section: Development Of the Interventionmentioning

confidence: 99%

Person-centred care transitions for people with stroke: study protocol for a feasibility evaluation of codesigned care transition support

et al. 2021

Self Cite

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BackgroundCare transitions following stroke should be bridged with collaboration between hospital staff and home rehabilitation teams since well-coordinated transitions can reduce death and disability following a stroke. However, health services are delivered within organisational structures, rather than being based on patients’ needs. The aim of this study protocol is to assess the feasibility, operationalised here as fidelity and acceptability, of a codesigned care transition support for people with stroke.MethodsThis study protocol describes the evaluation of a feasibility study using a non-randomised controlled design. The codesigned care transition support includes patient information using videos, leaflets and teach back; what-matters-to me dialogue; a coordinated rehabilitation plan; bridged e-meeting; and a message system for cross-organisational collaboration. Patients with stroke, first time or recurrent, who are to be discharged home from hospital and referred to a rehabilitation team in primary healthcare for continued rehabilitation in the home will be included. One week after stroke, data will be collected on the primary outcome, namely satisfaction with the care transition support, and on the secondary outcome, namely health literacy and medication adherence. Data on use of healthcare will be obtained from a register of healthcare contacts. The outcomes of patients and significant others will be compared with matched controls from other geriatric stroke and acute stroke units, and with matched historic controls from a previous dataset at the intervention and control units. Data on acceptability and fidelity will be assessed through interviews and observations at the intervention units.Ethics and disseminationEthical approvals have been obtained from the Swedish Ethical Review Authority. The results will be published open-access in peer-reviewed journals. Dissemination also includes presentation at national and international conferences.DiscussionThe care transition support addresses a poorly functioning part of care trajectories in current healthcare. The development of this codesigned care transition support has involved people with stroke, significant other, and healthcare professionals. Such involvement has the potential to better identify and reconceptualise problems, and incorporate user experiences.Trial registration numberhttp://www.clinicaltrials.gov id: NCT02925871. Date of registration 6 October 2016.Protocol version1.

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The manifestation of participation within a co‐design process involving patients, significant others and health‐care professionals

Cited by 36 publications

References 45 publications

Augmented Reality Mobile Application Co-Design Experience: Delineating the Nuances from the Lens of a System Developer

Augmented Reality Mobile Application Co-Design Experience: Delineating the Nuances from the Lens of a System Developer

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Person-centred care transitions for people with stroke: study protocol for a feasibility evaluation of codesigned care transition support

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