The meaning and experience of being a stroke survivor: an interpretative phenomenological analysis

Murray, Craig; Harrison, Barbara

doi:10.1080/09638280410001696746

Cited by 140 publications

(150 citation statements)

References 22 publications

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“…In its outward orientation, the body may incorporate different supplements, tools, and extensions (Leder 1990: 33f. ;Murray and Harrison 2004;Merleau-Ponty 2014: 139, 144f.). Embodiment thus denotes the simultaneous constitution of the (extended) body-subject, and the meaningful, material environment in which she finds herself.…”

Section: Phenomenology Of the Body Illness And Disabilitymentioning

confidence: 99%

Facing a Disruptive Face: Embodiment in the Everyday Experiences of “Disfigured” Individuals

et al. 2017

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In recent years, facial difference is increasingly on the public and academic agenda. This is evidenced by the growing public presence of individuals with an atypical face, and the simultaneous emergence of research investigating the issues associated with facial variance. The scholarship on facial difference approaches this topic either through a medical and rehabilitation perspective, or a psycho-social one. However, having a different face also encompasses an embodied dimension. In this paper, we explore this embodied dimension by interpreting the stories of individuals with facial limb absence against the background of phenomenological theories of the body, illness and disability. Our findings suggest that the atypical face disrupts these individuals' engagement with everyday projectsThe term ''disfigurement'' may carry derogative associations which serve to stigmatize those who have an atypical (facial) appearance. In order to prevent such associations in this article, we mostly opt for neutral, descriptive terms such as ''visible (facial) difference,'' ''atypical face,'' ''facial limb absence/ loss,'' or ''amputated (facial) area'' when referring to the condition and looks of the participants in our study (see for guidelines on non-offensive language as formulated by UK-based charity organization Changing Faces: https://www.changingfaces.org.uk/about-us/press-media/media-guidelines). When we cannot avoid the term ''disfigurement,'' we use quotation marks to denote its problematic nature. when it gives rise to disruptive perceptions, sensations, and observations. The face then ceases to be the absent background to perception, and becomes foregrounded in awareness. The disruptions evoked by facial difference call for adjustments: as they come to terms with their altered face, the participants in our study gradually develop various new bodily habits that re-establish their face's absence, or relate to its disruptive presence. It is through these emergent habits that facial difference comes to be embodied. By analyzing the everyday experiences of individuals with facial limb absence, this article provides a much-needed exploration of the embodied aspects of facial difference. It also exemplifies how a phenomenological account of illness and disability can do justice both to the impairments and appearance issues associated with atypical embodiment.

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Section: Phenomenology Of the Body Illness And Disabilitymentioning

confidence: 99%

Facing a Disruptive Face: Embodiment in the Everyday Experiences of “Disfigured” Individuals

et al. 2017

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“…In Phase 1, females were selected as limited evidence suggests that stroke experiences differ between male and female survivors (Murray and Harrison 2004). In addition, perceptions of health vary differ substantially between males and females in Arabian cultures reflecting gender roles and resources (Asfar et al, 2007) with potential consequences for life satisfaction post-stroke.…”

Section: Aimsmentioning

confidence: 99%

Life satisfaction and self-efficacy in patients affected by a first stroke living in Kuwait: A two-phase study

Omu¹,

Reynolds

2013

Physiotherapy Theory and Practice

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. Life satisfaction and self-efficacy in patients affected by a first stroke living in Kuwait: A two-phase study. Physiotherapy Theory and Practice, 29(6), 443-456. AbstractLife satisfaction and self-efficacy are important aspects of stroke rehabilitation. Previous research focuses on Western stroke survivors, neglecting the stroke experience in the Middle East. This research was conducted in Kuwait, and entailed both quantitative and qualitative phases to obtain a more comprehensive, clinically relevant understanding of self-efficacy and life satisfaction during stroke rehabilitation in this culture. The aims were firstly to investigate relationships between self-efficacy and life satisfaction in female patients affected by stroke (Phase 1), and secondly, to explore health professionals' views regarding the importance of self-efficacy and possible strategies for enhancing self-efficacy during rehabilitation, through semi-structured interviews (Phase2). Significant correlations were found between patients' general self-efficacy, and psychosocial adaptation self-efficacy following stroke. Self-efficacy (both general and psychosocial adaptation) showed significant correlations with life satisfaction poststroke. Health professionals (more than half of whom were physiotherapists) recognized the importance of self-efficacy within stroke rehabilitation and identified five main ways to increase self-efficacy during stroke rehabilitation. These were to: motivate and encourage patients, provide more education about stroke and rehabilitation, identify change, offer a high quality environment and therapy, and set goals. In conclusion, psychosocial self-efficacy was identified as having a stronger relationship to life 2 satisfaction compared with general self-efficacy within this sample of Kuwaiti female patients. Health professionals suggested various strategies for enhancing self-efficacy and thereby life satisfaction post-stroke during the rehabilitation process in Kuwait.Despite the collectivist culture of Kuwait, the findings indicate that patient's own confidence and sense of responsibility for progress may be relevant to rehabilitation.

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“…This view resonates with Goffman's (1963) view of stigma as leading to avoidance or passing strategies in order to protect identity. Other studies have also described social stigma associated with disability and mental health problems in a variety of cultures, and its role in people's withdrawal from community activities (Crabtree 2007;Simpson et al, 2000;Murray and Harrison, 2004;Endrawes et al 2007;Rhodes et al 2008 ). Interestingly, some of the health professionals also betrayed quite negative attitudes themselves, and sometimes used the word 'abnormal' when contrasting patients with their pre-stroke state, or referred to clients in slightly disparaging terms.…”

Section: Discussionmentioning

confidence: 99%

Health professionals’ perceptions of cultural influences on stroke experiences and rehabilitation in Kuwait

Omu

Reynolds

2011

Disability and Rehabilitation

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. Health professionals' perceptions of cultural influences on stroke experiences and rehabilitation in Kuwait. Disability and Rehabilitation, 34(2), 119-127. AbstractPurpose:-The aim of this study was to investigate the perceptions of health professionals who treat stroke patients in Kuwait regarding cultural influences on the experience of stroke and rehabilitation in Kuwait. Health professionals interviewed were from a variety of cultural backgrounds thus providing an opportunity to investigate how they perceived the influence of culture on stroke recovery and rehabilitation in Kuwait.Method:-Semi-structured interviews were carried out with 12 health professionals with current/ recent stroke rehabilitation experience in Kuwait, followed by thematic analysis of the verbatim transcripts.Results:-The health professionals identified several features of the Kuwaiti culture that they believed affected the experiences of stroke patients. These were religious beliefs, family involvement, limited education and public information about stroke, prevailing negative attitudes towards stroke, access to finances for private treatment, social stigma and the public invisibility of disabled people, difficulties identifying meaningful goals for rehabilitation, and an acceptance of dependency linked with the widespread presence of maids and other paid assistants in most Kuwaiti homes.Conclusion:-To offer culturally sensitive care, these issues should be taken into account during the rehabilitation of Kuwaiti stroke patients in their home country and elsewhere.

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The meaning and experience of being a stroke survivor: an interpretative phenomenological analysis

Cited by 140 publications

References 22 publications

Facing a Disruptive Face: Embodiment in the Everyday Experiences of “Disfigured” Individuals

Facing a Disruptive Face: Embodiment in the Everyday Experiences of “Disfigured” Individuals

Life satisfaction and self-efficacy in patients affected by a first stroke living in Kuwait: A two-phase study

Health professionals’ perceptions of cultural influences on stroke experiences and rehabilitation in Kuwait

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