The meaning of being in uncertainty after heart transplantation – an unrevealed source to distress

Almgren, Matilda; Lennerling, Annette; Lundmark, Martina; Forsberg, Anna

doi:10.1177/1474515116648240

Cited by 40 publications

(73 citation statements)

References 34 publications

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“…Without this confirmation uncertainty may continue, followed by emotional arousal. As discussed by Almgren, Lennerling, Lundmark, & Forsberg (), our healthcare system has a strong focus on behaviour and performance, which means an implicit risk of being disappointed as a parent when one behaves in accordance with the advice provided (verbal persuasion) but the results are lacking. This creates feelings of uncertainty and a possible ineffective loop.…”

Section: Discussionmentioning

confidence: 99%

“…Self‐efficacy is an important aspect of self‐management, which has gradually become the leading paradigm for long‐term management of chronic illness and thus highly relevant in this study. From research in other medical contexts, we know that uncertainty is an important aspect that diminishes self‐efficacy (Almgren, Lennerling, Lundmark, & Forsberg, ). However, little is known about the in‐depth meaning of uncertainty and self‐efficacy in this population, which hampers the possibility of empowering the parents to become their child's caregiver.…”

Section: Introductionmentioning

confidence: 99%

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Uncertainty and self‐efficacy in parents of a child with congenital cataract—New implications for clinical practice

2019

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Aim The aim was an in‐depth exploration of uncertainty and self‐efficacy among parents of a child with congenital cataract by means of two theoretical frameworks to re‐design family care. Design A directed content analysis in accordance with Hsieh & Shannon, using Mishel's theory of uncertainty and Bandura's self‐efficacy theory. Methods Open‐ended, in‐depth interviews were conducted with 23 parents of a child with congenital cataract; six mothers, five fathers and six couples. Results In this novel study, self‐efficacy was interpreted as the ability to balance between uncertainty and acceptance. The performance accomplishment of the child and parents bridges the gap between uncertainty and acceptance by reducing uncertainty, thus constituting the level of self‐efficacy. Setbacks and complications increase uncertainty and reduce self‐efficacy, thus performance accomplishment is a mediator of self‐efficacy, while ability to master uncertainty determines the level of self‐efficacy.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Uncertainty and self‐efficacy in parents of a child with congenital cataract—New implications for clinical practice

2019

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“…However, in the present study, anxiety in HTx patients moderate increased between year 1 and year 2. This may be due to feelings of uncertainty regarding survival and recovery, and the possibility of living a normal life in the future …”

Section: Discussionmentioning

confidence: 70%

“…This may be due to feelings of uncertainty regarding survival and recovery, and the possibility of living a normal life in the future. 23 In most cases, transplantation is seen as positive, but life after transplantation can be awkward when complications occur, such as early or late organ dysfunction or rejection, infection, respiratory problems, cardiovascular complications, or gastrointestinal problems. 6,13,24 In the present study, most of the patients, especially the lung patients, were affected by pain and discomfort (based on the results for the EQ-5D).…”

Section: T a B L E 2 Health Status Of The Patients Measured By Means mentioning

confidence: 99%

Psychosocial aspects before and up to 2 years after heart or lung transplantation: Experience of patients and their next of kin

Ågren

Sjöberg

Ekmehag

et al. 2017

Clinical Transplantation

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“…This is coherent with other studies of uncertainty in illness, e.g. diabetes mellitus, Parkinson's disease and heart transplantation (Johnson Wright et al ., ; Almgren et al ., ).…”

Section: Resultsmentioning

confidence: 97%

Persons’ Experiences of Suffering from Nephrotic Syndrome

Jönsson¹,

Hellmark

Forsberg

2019

Journal of Renal Care

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SUMMARY Background Little is known about health and wellbeing among patients with nephrotic syndrome (NS), despite it being a serious condition in patients with renal failure. In order to promote health, it is important that both healthcare professionals and patients are aware of the signs and symptoms of the disease. Objectives The aim was to explore patients’ experience of suffering from nephrotic syndrome. Design An inductive, qualitative method. Participants Ten adult patients with either newly diagnosed or a relapse of NS treated in a University hospital, south of Sweden from February 2016 to February 2019. Measurements Data were collected using open‐ended interviews and analysed by means of Lindseth and Norberg's phenomenological‐hermeneutical method. Results Suffering from NS meant being a stranger in an unfamiliar world of symptoms, signs and medical treatment without professional guidance or piloting, illustrated by four themes: Feeling ill and well at the same time, Being passively adherent, Being in uncertainty, and Trying to comprehend and cope. Implications for practice The result provides an in‐depth understanding of the illness experience among patients with NS and constitutes a foundation for clinical guidelines on treatment, follow‐up and health promotion. Conclusion Patients with NS end up in a state of ambiguity due to a profound knowledge deficit that causes uncertainty and a lack of self‐management. The experienced lack of professional self‐management support is partly compensated for by social support from relatives, enabling those with NS to manage everyday life in a reasonable way.

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The meaning of being in uncertainty after heart transplantation – an unrevealed source to distress

Abstract: This study presents a hypothesis of the primary cause of psychological distress after HTX and provides a useful framework for how to approach this condition.

Cited by 40 publications

References 34 publications

Uncertainty and self‐efficacy in parents of a child with congenital cataract—New implications for clinical practice

Uncertainty and self‐efficacy in parents of a child with congenital cataract—New implications for clinical practice

Psychosocial aspects before and up to 2 years after heart or lung transplantation: Experience of patients and their next of kin

Persons’ Experiences of Suffering from Nephrotic Syndrome

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