The meaning of loneliness to stroke survivors: A qualitative study in Northeast England

Yang, Keming; Armstrong, Nicole; Diamond, Clare; Lane, Alison R.; Dunne, Stephen

doi:10.1177/13591053211017198

Cited by 15 publications

(15 citation statements)

References 40 publications

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“…Loneliness has been defined as ‘a subjective feeling of the absence of a social network or a companion’ and has been negatively associated with cardiovascular and mental health outcomes [60]. In cancer survivors [61], stroke survivors [62] and diabetes [63], loneliness has impacted health outcomes negatively. We found that reducing loneliness was related to the reflection on challenges prompted by the reflection sheets both individually and in groups.…”

Section: Discussionmentioning

confidence: 99%

Impact of the person‐centred intervention guided self‐determination across healthcare settings—An integrated review

Olesen

Jørgensen

2022

Scandinavian Caring Sciences

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Aim:To review the evidence of the existing literature on the impact of guided selfdetermination across methodologies in different healthcare settings.Methods: An integrated five-stage review.Results: Forty-five eligible papers were included. Guided self-determination was applied in full-or small-scale, or combined with another intervention or approach in different healthcare settings handling, for example diabetes, stroke survivorship, schizophrenia, attention-deficit hyperactivity disorder and medical disorder, gynaecological and breast cancer, endometriosis, persons with chronic pain, persons in haemodialysis and intensive care survivors. The included studies covered 12 randomised trials, 26 qualitative and seven papers of different methodology. A statistically significant effect was found in three trials. Six main themes describe the qualitative findings across papers on patients: (1) Guided self-determination reduces disease-related loneliness, (2) Insight enables integration of life and disease, (3) Reflection sheetsappreciated but challenging tool to prompt insights and person-specific knowledge, (4) New person-specific knowledge enables person-centred support, (5) Feeling seen and believed in a new and trusted relationship and (6) Exchange of knowledge enables the development of life skills. Four themes describe the healthcare professionals' experience: (1) Change of usual practice-a decision from above, (2) A new roleunlearning previous behaviour and need for support, (3) Reflection sheets as facilitators and barriers and (4) Discovering the benefits of changing to a person-centred approach. Conclusion:Overall, guided self-determination proved to have a great impact on patient important outcomes and was useful and well-accepted by the majority of patients and healthcare professionals. Albeit guided self-determination is not a 'one size fits all' method. Continuous training and supervision of professionals are a necessary mean when implementing guided self-determination to enhance adoption and sustainability in clinical practice.

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Section: Discussionmentioning

confidence: 99%

Impact of the person‐centred intervention guided self‐determination across healthcare settings—An integrated review

Olesen

Jørgensen

2022

Scandinavian Caring Sciences

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“…Loneliness has mainly been studied in older patients (Poscia et al, 2018), but stroke survivors also experience it (Byrne et al, 2022). Additionally, people with strokes experience similar levels of loneliness as older subjects do, owing to the loss of their social role (Yang et al, 2021). Intervention programs with a storytelling aspect can have a positive effect on emotions and loneliness in people with stroke (Alawafi et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

Relationship between multidimensional stressors and quality of life in people with stroke

Choi

Kim

2022

Nursing & Health Sciences

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This study explored the impact of intrapersonal (stroke severity, physical dysfunction, and fear of stroke recurrence), interpersonal (loneliness), and extrapersonal (economic status) stressors on the quality of life of people with stroke. A correlational crosssectional research design was employed. This study was based on Betty Neuman's systems theory. One hundred thirty-nine people with stroke were recruited from 10 hospitals in South Korea. Data were collected from January to February 2020 using a structured questionnaire. Data were analyzed using descriptive statistics, independent t-test, one-way analysis of variance, Scheffé test, Pearson's correlation coefficients, Spearman's correlation coefficients, and hierarchical multiple regression analysis. Stroke severity had the strongest association with quality of life among people with stroke, followed by loneliness and fear of stroke recurrence. These variables accounted for approximately 77% of the variance in the quality of life. Stroke severity, loneliness, and fear of stroke recurrence should be systematically monitored to enhance the quality of life in people with stroke. Additionally, a detailed intervention that considers all these stressors must be developed, and its effectiveness must be verified through further research.

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“…The qualitative data support this theory, but this was not reflected in participants loneliness measured by the DJG (M = 3.60, SD = 1.13) which would not indicate such a ceiling effect. Whilst measures of loneliness are useful for capturing some "universal" features of loneliness, there have previously been questions arising with how well they relate to the experiences of non-neurotypical populations (Yang et al, 2021). Therefore, our survivors' phenomenological experiences of loneliness may differ to their quantification of these experiences.…”

Section: Discussionmentioning

confidence: 99%

Uncovering the social determinants of brain injury rehabilitation

Dunne¹,

Williams²,

Bradbury³

et al. 2022

Preprint

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Objective: The paper explores the personal experiences of loneliness among brain injury survivors during lockdown in the COVID-19 pandemic.Design: This is a mixed methods research design, employing a combination of quantitative statistical analysis and semi-structured interviews with subsequent reflexive thematic analysis.Methods: 24 brain injury survivors from across the UK (8 females, 16 males; 24-68 years old; Mage = 48.65) participated in semi-structured interviews and completed questionnaires relating to loneliness, resilience, and wellbeing. Statistical and reflexive thematic analysis methods were employed in the interpretation of the data.Results: The interview data and subsequent analysis created three overarching themes: the experience of loneliness, loneliness during the pandemic, and loneliness after the pandemic. These themes explore survivors’ experiences of loneliness generally post-brain injury, but also chronicle how these feelings developed in lockdown and survivors’ feelings regarding society returning to ‘normal’. Lockdown provided participants with time and space, an opportunity to reflect in circumstances that did not further exacerbate their symptoms or anxiety associated with societal expectations or responsibility. Participants’ accounts detailed a greater societal awareness of brain injury and feeling more included during the pandemic but concern they would be left behind with society returning to normal. Conclusions: We recommend that future interventions focus on reframing survivors’ beliefs regarding societal expectations and minimise the pressure they often experience to keep up with their peers physically and emotionally. Additionally, we recommend creating accessible peer support options for all brain injury survivors as an important step for alleviating loneliness in this population.

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The meaning of loneliness to stroke survivors: A qualitative study in Northeast England

Cited by 15 publications

References 40 publications

Impact of the person‐centred intervention guided self‐determination across healthcare settings—An integrated review

Impact of the person‐centred intervention guided self‐determination across healthcare settings—An integrated review

Relationship between multidimensional stressors and quality of life in people with stroke

Uncovering the social determinants of brain injury rehabilitation

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