The meaning of quality of life for bone marrow transplant survivors Part 1. The impact of bone marrow transplant on quality of life

Ferrell, Betty; Grant, Marcia; Schmidt, G.; Rhiner, Michelle; Whitehead, Cindy; Fonbuena, Pilar; Forman, Stephen J.

doi:10.1097/00002820-199206000-00001

Cited by 102 publications

(93 citation statements)

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“…'' 6 A classical framework of survivor-specific HRQOL was developed by the City of Hope research group two decades ago. [7][8][9] This framework recognizes the effect of cancer and its treatment on the physical, psychological, social, and spiritual well-being of cancer survivors. Based on this framework, the research group developed the Quality of Life-Cancer Survivors (QOL-CS) 9 instrument using adult cancer survivors who received a bone marrow transplant.…”

mentioning

confidence: 99%

“…The purpose of this study was to identify domains of HRQOL for YASCC that are important but neglected in the classical City of Hope framework [7][8][9] and the domains of other HRQOL instruments for cancer survivors by conducting a systematic review of qualitative studies published in the past 10 years. The comparisons between our findings to the classical framework and the domains of existing HRQOL instruments will help researchers develop and refine HRQOL measurement tools in a way that is developmentally appropriate for YASCC.…”

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confidence: 99%

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Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

Nightingale

Quinn²,

Shenkman³

et al. 2011

Journal of Adolescent and Young Adult Oncology

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Purpose: The occurrence of late effects, combined with traditional growth and developmental issues, can significantly affect the health-related quality of life (HRQOL) of young adult survivors of childhood cancer (YASCC). Limited HRQOL measurement tools have been developed or validated for YASCC. The purpose of this study was to identify the domains of HRQOL that are unique to YASCC by conducting a systematic review of qualitative studies. Specifically, we compared the findings to the classical framework of HRQOL that was developed for survivors of adult-onset cancer and identified specific domains not being assessed in existing HRQOL instruments for YASCC. Methods: We searched qualitative studies published in peer-reviewed journals from 2000 to 2010 in the PsychINFO, PubMed, and EBSCOhost databases. A set of keywords and inclusion/ exclusion criteria were utilized to identify eligible studies with a focus on survivorship and HRQOL issues of YASCC. Results: Sixteen studies met the inclusion/exclusion criteria and were investigated in this study. Six important domains of HRQOL were identified (physical, social, psychological, spiritual, fertility/sexual, resilience, and body appearance) with several sub-domains. Conclusion: Use of the classical HRQOL framework and existing instruments is not comprehensive enough for YASCC. Adding unique domains to the classical framework and existing instruments will make them valuable tools for measuring the HRQOL of YASCC and increase health professionals' ability to identify if and when psychosocial services are needed for this unique population.

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confidence: 99%

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confidence: 99%

Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

Nightingale

Quinn²,

Shenkman³

et al. 2011

Journal of Adolescent and Young Adult Oncology

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“…QoL can fluctuate over time within the same individual, due to developmental and environmental factors, reflecting the individual's assessment of his/her life at any one time relative to his/her previous state and prior experiences (Ferrell et al, 1992;Heinonen et al, 2001a). QoL covers all aspects of life, is multidimensional and has proved difficult to define, leading authors of QoL studies to often use their own definitions (Pidala et al, 2009).…”

Section: Concept and Definitionsmentioning

confidence: 99%

“…QoL is therefore broader than HRQoL since it includes evaluation of non-health-related features of life whereas HRQoL is connected to an individual's health or disease status (Bowling, 2001;Bowling, 2005 (Fayers & Machin, 2007). The reason the concept QoL is used in Study I, and in this thesis, is that when data collection and selection of QoL measurements started in 2005 most QoL studies in patients undergoing HSCT used the concept QoL as HRQoL had not yet been completely established in this context (Cella et al, 1993;Chiodi et al, 2000;Ferrell et al, 1992;Heinonen et al, 2001a;Kopp et al, 2000;McQuellon et al, 1997;Saleh & Brockopp, 2001). In Study I the concept QoL is based on the WHO definition (described above); that it is an individual perception influenced by cultural, social and environmental contexts, where disease and treatment may influence its perception.…”

Section: Concept and Definitionsmentioning

confidence: 99%

“…FACT-BMT was chosen as it is a frequently used and recommended instrument in studies of QoL in patients undergoing HSCT with demonstrated reliability and validity (Kopp et al, 2000;McQuellon et al, 1997). FACIT-Sp was used to assess the patients' spiritual well-being, since HSCT has been found to have an impact on this aspect of life (Andrykowski et al, 2005;Ferrell et al, 1992;Wong et al, 2010). FACT-BMT has been validated on HSCT patients (McQuellon et al, 1997) and the FACIT-Sp has been validated on people with cancer and other chronic illnesses (Peterman et al, 2002).…”

Section: Data Collection and Proceduresmentioning

confidence: 99%

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Having a sibling as donor: Patients' experiences immediately before allogeneic hematopoietic stem cell transplantation

Kisch

Bolmsjö

Lenhoff

et al. 2014

European Journal of Oncology Nursing

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Quality of Life in Breast Cancer Survivors as Identified by Focus Groups

et al. 1997

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Currently, over 1,700,000 women are living with breast cancer in the United States. These long‐term survivors of breast cancer are challenged to redirect their energy from issues of cancer treatment and early side effects toward quality of life issues related to long‐term survivorship, such as menopause, infertility, fear of recurrence, family distress, and uncertainty. In an attempt to obtain patient perspectives on quality of life and health care issues faced by breast cancer survivors, focus group methodology was utilized in the first year of a 2 year study. The sample was stratified to represent three age groups: < 40 years, 40–60 years and > 60, and was intended to represent different developmental levels believed to have varying experiences with quality of life and potentially divergent needs following breast cancer diagnosis. Results of these focus groups revealed unique quality of life concerns of breast cancer survivors across four domains of physical, psychological, social, and spiritual well being. Each of these domains yields important implications for future research and clinical practice. © 1997 John Wiley & Sons, Ltd.

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The meaning of quality of life for bone marrow transplant survivors Part 1. The impact of bone marrow transplant on quality of life

Cited by 102 publications

References 0 publications

Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

Having a sibling as donor: Patients' experiences immediately before allogeneic hematopoietic stem cell transplantation

Quality of Life in Breast Cancer Survivors as Identified by Focus Groups

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