The mediating role of documents: information sharing through medical records in healthcare

Isah, Esther Ebole; Byström, Katriina

doi:10.1108/jd-11-2019-0227

Cited by 9 publications

(2 citation statements)

References 29 publications

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“…Patients’ stories, especially their narratives and patient records, formed the boundary objects to make constructive multidisciplinary work possible. A study by Isah and Bystroöm [ 97 ] focused on the role of case notes as mediating artifacts in patient care. Their study demonstrated how case notes were a source of information and an essential, enacting, and mediating part of the work itself.…”

Section: Resultsmentioning

confidence: 99%

Boundary Objects as Dialogical Learning Accelerators for Social Change in Design for Health: Systematic Review

Terlouw¹,

Kuipers²,

Veldmeijer³

et al. 2022

JMIR Hum Factors

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Background Boundary objects can add value for innovative design and implementation research in health care through their organizational focus and the dynamic structure between ill-structured and tailored use. However, when innovation is approached as a boundary object, more attention will need to be paid to the preimplementation phase. Research and design thinking pay attention to the preimplementation stage but do not have a social or organizational focus per se. The integration of boundary objects in design methodologies can provide a more social and organizational focus in innovative design projects by mapping out the mechanisms that occur at boundaries during design. Four dialogical learning mechanisms that can be triggered at boundaries have been described in the literature: identification, coordination, reflection, and transformation. These mechanisms seem suitable for integration in innovative design research on health. Objective Focusing on innovation in health, this study aims to find out whether the different learning mechanisms can be linked to studies on health innovation that mention boundary objects as a concept and assess whether the related mechanisms provide insight into the stage of the design and implementation or change process. Methods The following 6 databases were searched for relevant abstracts: PubMed, Scopus, Education Resources Information Center, PsycINFO, Information Science and Technology Abstracts, and Embase. These databases cover a wide range of published studies in the field of health. Results Our initial search yielded 3102 records; after removing the duplicates, 2186 (70.47%) records were screened on the title and abstract, and 25 (0.81%) papers were included; of the 13 papers where we identified 1 mechanism, 5 (38%) described an innovation or innovative project, and of the 12 papers where we identified more mechanisms, 9 (75%) described the development or implementation of an innovation. The reflective mechanism was not identified solely but was present in papers describing a more successful development or implementation project of innovation. In these papers, the predetermined goals were achieved, and the process of integration was relatively smoother. Conclusions The concept of boundary objects has found its way into health care. Although the idea of a boundary object was introduced to describe how specific artifacts can fulfill a bridging function between different sociocultural sites and thus have a social focus, the focus in the included papers was often on the boundary object itself rather than the social effect. The reflection and transformation mechanisms were underrepresented in the included studies but based on the findings in this review, pursuing to trigger the reflective mechanism in design, development, and implementation projects can lead to a more fluid and smooth integration of innovation into practice.

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Section: Resultsmentioning

confidence: 99%

Boundary Objects as Dialogical Learning Accelerators for Social Change in Design for Health: Systematic Review

Terlouw¹,

Kuipers²,

Veldmeijer³

et al. 2022

JMIR Hum Factors

View full text Add to dashboard Cite

show abstract

“…Doctors themselves have anxiety about writing their notes for care and liability, an anxiety exacerbated by the dawn of the electronic medical record. However, even studies of records' use over time have stuck to treatment in intensive care units or fairly short hospital stays (e.g., Reddy, et al, 2006;Isah and Byström, 2020). The working patient record is not the same as the archival patient record (Fitzpatrick, 2004).…”

Section: For the Recordmentioning

confidence: 99%

This patient is a hidden messenger: NF2, watchful waiting, and records of care

DiBella¹

2023

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“Watchful waiting” is a medical approach that delays radical intervention, like surgery, but depends on regular imaging and patient self-scrutiny. To explore its social effects in a single case, I conducted an autoethnography of my patient archive from my diagnosis and 17 years of watchful-waiting treatment for neurofibromatosis, type II, a genetic disorder. I show how watchful waiting encourages self-surveillance and the stress it causes. I also discuss how the personal medical archive, with its complicated structure of reports, CDs, and notes, is a tool for communication as well as a cause of moral obligation for the patient. I contrast these uses with information studies of medical records that focus on records’ collaborative use within medical institutions. I conclude that my case has been held in stasis, reinforced by diagnostic surveillance that I participate in, due to the vagueness of “watchful waiting” as a treatment protocol and the uncertainty of more invasive treatments themselves. Through this study, I recenter patients and their needs in the discussion of medical archives and contribute to the collective recognition of disability through the genre of the illness narrative and the method of archival ethnography. I consider how my results conflict with general calls for “open notes” in medical care and cultures of life-logging and -tracking.

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Geographies of Nusantara Planning Documents

Nasution

2023

Advances in 21st Century Human Settlements

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The mediating role of documents: information sharing through medical records in healthcare

Cited by 9 publications

References 29 publications

Boundary Objects as Dialogical Learning Accelerators for Social Change in Design for Health: Systematic Review

Boundary Objects as Dialogical Learning Accelerators for Social Change in Design for Health: Systematic Review

This patient is a hidden messenger: NF2, watchful waiting, and records of care

Geographies of Nusantara Planning Documents

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