The Mediating Role of Self-Perceived Burden Between Social Support and Fear of Progression in Renal Transplant Recipients: A Multicenter Cross-Sectional Study

Liu, Sainan; Zhang, Ying; Miao, Qi; Zhang, Xu; Jiang, Xiaoyu; Chang, Tiantian; Li, Xiaofei

doi:10.2147/prbm.s424844

Cited by 4 publications

(1 citation statement)

References 48 publications

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“…31,32 Some studies have found that 52.6% of post-operative kidney transplant recipients had moderate or higher levels of fear of disease progression. 33 In a qualitative study, it was suggested that persons with kidney transplants exhibit post-operative uncertainty about the longevity of their newly transplanted kidneys and fear of graft failure, as well as the presence of gratitude for the transplantation, and that these 2 emotions interact with each other. 31,32 Some researchers have argued that health care professionals should fully discuss with patients and their families before transplantation about the psychological distress that may occur after surgery, focusing on the population of persons with kidney transplant who have this fear of losing graft function.…”

Section: Discussionmentioning

confidence: 99%

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study

Hu,

Yang,

Wang

2024

West J Nurs Res

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Background: Successful adaptation to post-transplantation life in patients who have undergone kidney transplants is crucial. The psychosocial needs of people with kidney transplants are closely related to the health of the transplanted kidney. If transplant recipients cannot adapt to the effects of the transplant, their physical and mental health will be seriously impaired. Objective: The purpose of this study was to explore the early post-transplant adaptation experience of young and middle-aged persons with kidney transplants in China based on the Roy adaptation model. Methods: A qualitative descriptive study was conducted using semi-structured interviews. Fifteen young and middle-aged persons with kidney transplant were recruited from a tertiary hospital in China between September 2022 and March 2023 through purposive sampling. Data were analyzed using a thematic analysis approach. Results: This study identified 4 themes: (1) “two-sided” changes in physiological functioning, (2) “dawn and darkness” (conflicting perceived emotions about the future), (3) role functioning adaptation conflict and impairment, and (4) social isolation and the challenges of coping. Conclusions: This study found that early post-transplant adaptation in young and middle-aged people with kidney transplant included both positive and negative experiences, and these findings can provide new insights into research related to successful post-operative adaptation.

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Section: Discussionmentioning

confidence: 99%

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study

Hu,

Yang,

Wang

2024

West J Nurs Res

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Relationship between fear of progression and quality of life in inflammatory bowel disease: Mediating role of health literacy and self‐care

Hu,

2024

Journal of Advanced Nursing

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AimsThe increasing prevalence of inflammatory bowel disease is emerging as a significant global healthcare concern due to its recurrent episodes of intestinal inflammation. This study aims to explore the relationship between fear of progression and health‐related quality of life in inflammatory bowel disease patients, investigating the sequential mediating roles of health literacy and self‐care.DesignA cross‐sectional study.MethodsEligible participants diagnosed with inflammatory bowel disease were recruited through convenience sampling method at a tertiary hospital in Shenyang, China, between May 2022 and May 2023. A total of 241 participants completed the questionnaires regarding fear of progression, health literacy, self‐care and quality of life. Data analysis was conducted using SPSS 25.0 and PROCESS plug‐ins.Results(1) Fear of progression was found to be negatively associated with quality of life and had a directly predictive effect on quality of life. (2) Health literacy and self‐care could independently mediate the relationship between fear of progression and quality of life. (3) There was a significant chain mediating effect of health literacy and self‐care in the relationship between fear of progression and quality of life.ConclusionFear of progression could not only directly predict the quality of life in inflammatory bowel disease patients but also indirectly affect their quality of life through the chain mediation of health literacy and self‐care.ImpactThis study highlights the importance of nursing staff focusing on the interplay between fear of progression, health literacy, self‐care and quality of life in caring for inflammatory bowel disease patients. Understanding the potential correlation mechanism underlying quality of life may help develop targeted care interventions to synergistically enhance health literacy and self‐care in these patients.Reporting MethodSTROBE guidelines.Patient or Public ContributionNo public or patient contribution.

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Relationship between sleep quality and fear of progression among partients with chronic kidney disease: A cross-sectional survey

Ye,

Sun,

Wang

et al. 2024

Preprint

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Objectives The study aims to elucidate the direct correlation between sleep quality and fear of progression (FOP), two significant psychosocial issues that individuals with chronic kidney disease (CKD) encounter. Methods A cross-sectional study was conducted among patients with CKD who were recruited from the Second Affiliated Hospital of Anhui Medical University.Clinical and demographic data were collected using a general information questionnaire. The Fear of Progression Questionnaire-Short Form and Pittsburgh Sleep Quality Index were used to measure the level of FOP and evaluate sleep quality over one month. The correlation between sleep quality and FOP was investigated utilizing Pearson correlation and hierarchical regression analysis. Results This study comprised 195 people in total, of which 116 (59.5%) suffered from poor sleep quality.Sleep quality and FOP were positively correlated, with higher FOP scores leading to poorer sleep quality. Gender, family financial burden, disease stage, and total FOP score could predict sleep quality. Collectively, these factors combined explained 24.7% of the variation in sleep quality, with FOP independently contributing 6.3% to the explained variance. Conclusions Patients with CKD often experience poor sleep quality, an issue that healthcare professionals should take seriously. Interventions focused on reducing FOP could offer a promising approach to enhancing sleep quality.

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The Mediating Role of Self-Perceived Burden Between Social Support and Fear of Progression in Renal Transplant Recipients: A Multicenter Cross-Sectional Study

Cited by 4 publications

References 48 publications

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study

Relationship between fear of progression and quality of life in inflammatory bowel disease: Mediating role of health literacy and self‐care

Relationship between sleep quality and fear of progression among partients with chronic kidney disease: A cross-sectional survey

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