The mental health strategy for Europe: Why service user leadership in research is indispensable

Callard, Felicity; Rose, Diana

doi:10.3109/09638237.2011.651661

Cited by 33 publications

(23 citation statements)

References 15 publications

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“…National mental health strategies mandate consumer participation in all aspects of mental health services, throughout design, service delivery and evaluation (Commonwealth of Australia, , , , ; Health and Consumer Protection Directorate‐General, ; Health Service Executive, ). This policy direction has led to initiatives in facilitating increased systemic participation, such as identified positions for consumers in the mental health workforce (Bennetts, Pinches, Paluch, & Fossey, ; Byrne, Stratford, & Davidson, ; Vandewalle et al., ) and a call for an increasing understanding of consumer leadership (Byrne et al., ; Callard & Rose, ; Gee, McGarty, & Banfield, ; Scholz, Bocking, et al., ; Scholz, Gordon, et al., ).…”

Section: Introductionmentioning

confidence: 99%

“I felt some prejudice in the back of my head”: Nursing students’ perspectives on learning about mental health from “Experts by Experience”

Happell

Waks

Bocking

et al. 2019

Psychiatric Ment Health Nurs

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Accessible Summary What is known on the subject? Consumer participation in mental health services is embedded in mental health policy in many countries. The negative attitudes of nurses and other health professionals to consumer participation poses a significant obstacle to this policy goal Involving mental health “Experts by Experience” in the education of nursing students demonstrates positive attitudinal change What this paper adds to existing knowledge? More detailed understanding of nursing students’ experiences and perspectives about being taught mental health nursing by “Experts by Experience” An international focus, extending understandings about how Experts by Experience might be perceived in a broader range of countries What are the implications for practice? Positive attitudes towards people labelled with mental illness are essential for quality nursing practice Nurses have an important leadership role in facilitating consumer participation within health services. It is critical that their attitudes are professional and optimistic. Abstract IntroductionConsumer participation is central to mental health policy. Negative attitudes of health professionals are barriers to realizing policy goals. Evidence suggests consumers (Experts by Experience) can influence positive attitudes in nursing students. Research in this area to date is limited and primarily from Australia and New Zealand. AimTo enhance understanding of nursing students’ perspectives and experiences of being taught mental health by an Expert by Experience. MethodA qualitative exploratory approach was used. Focus groups were conducted with nursing students from seven universities in Australia and Europe. Data were analysed thematically. ResultsStudent participants described how exposure to Experts by Experience challenged their views and attitudes and provided a mechanism for reflection, critique and change. The main theme “changing mindset” includes two subthemes: exposing stereotypes and reflection. DiscussionThis unique international study demonstrates the capacity for Experts by Experience to contribute to positive attitudinal change towards mental illness in nursing students. This changed mindset must occur for policy goals to be realized. Implications for practiceNurses in all areas of practice will work with people labelled with mental illness and experiencing mental distress. Overcoming stereotypes and adopting more positive attitudes is essential to deliver quality mental health care.

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Section: Introductionmentioning

confidence: 99%

“I felt some prejudice in the back of my head”: Nursing students’ perspectives on learning about mental health from “Experts by Experience”

Happell

Waks

Bocking

et al. 2019

Psychiatric Ment Health Nurs

View full text Add to dashboard Cite

show abstract

“…Research is crucial for the development, accountability and effectiveness of mental health services (Callard & Rose, ). Given the focus on consumer participation in relation to services, it follows that those most closely impacted by policy decisions should be recognized as key stakeholders in related research (INVOLVE, ; National Health and Medical Research Council, ).…”

Section: Introductionmentioning

confidence: 99%

“I don't think we've quite got there yet”: The experience of allyship for mental health consumer researchers

Happell

Scholz

Gordon

et al. 2018

Psychiatric Ment Health Nurs

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Introduction Australia and New Zealand mental health policy requires consumer participation in all aspects of mental health services. Systemic participation informs and improves the quality of mental health services. Collaboration with consumer researchers should be similarly required. Enhanced understandings of collaborations are needed. Aim To enhance understanding of the perspectives and experiences of nonconsumer researchers in working collaboratively with consumers as researchers. Method This qualitative exploratory study involved interviews with nonconsumer mental health researchers who have worked collaboratively with consumers in research. Interviews were conducted with participants from Australia and New Zealand. Results "Allyship" emerged as a major theme. This describes nonconsumer researchers playing an actively supportive role to facilitate opportunities for the development and growth of consumer research roles and activities. Seven subthemes were identified: establishing and supporting roles, corralling resources, guiding navigation of university systems, advocacy at multiple levels, aspiring to coproduction and consumer-led research, extending connections and partnerships, and desire to do better. Discussion Allyship may have an important role to play in the broader consumer research agenda and requires further consideration. Implications for practice Embedding meaningful consumer participation within mental health services requires active consumer involvement in research. Allies can play an important facilitative role.

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“…Recovery advocates for a deeper analysis of the mental health service and how power is disturbed (Higgins and McGowan, 2014). Service user involvement in healthcare research is important in achieving recovery oriented practice, as their experience can influence healthcare research and service provision (Callard and Rose 2012).…”

Section: Introductionmentioning

confidence: 99%

Challenges in accessing and interviewing participants with severe mental illness

et al. 2017

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The mental health strategy for Europe: Why service user leadership in research is indispensable

Cited by 33 publications

References 15 publications

“I felt some prejudice in the back of my head”: Nursing students’ perspectives on learning about mental health from “Experts by Experience”

“I felt some prejudice in the back of my head”: Nursing students’ perspectives on learning about mental health from “Experts by Experience”

“I don't think we've quite got there yet”: The experience of allyship for mental health consumer researchers

Challenges in accessing and interviewing participants with severe mental illness

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