The Multiple Sclerosis Self-Management Scale: Revision and psychometric analysis.

Bishop, Malachy; Frain, Michael

doi:10.1037/a0023679

Cited by 43 publications

(47 citation statements)

References 59 publications

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“…The MSSM was then revised to further enhance its factor structure, to remove redundant items, and to add more MS-specific items. 18 The reliability of the revised MSSM was supported by high internal consistency, α = 0.85, and the construct validity was established through correlational studies. More specifically, the MSSM showed positive correlations with the Delight-Terrible Scale (r = 0.29) and the MS SelfEfficacy Scale subcategories of Functional (r = 0.26) and Control (r = 0.31).…”

Section: Data-collection Proceduresmentioning

confidence: 88%

The Multiple Sclerosis Self-Management Scale

Ghahari¹,

Khoshbin²,

Forwell³

2014

International Journal of MS Care

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Background:The Multiple Sclerosis Self-Management Scale (MSSM) is currently the only measure that was developed specifically to address self-management among individuals with multiple sclerosis (MS). While good internal consistency (α = 0.85) and construct validity have been demonstrated, other psychometric properties have not been established. This study was undertaken to evaluate the criterion validity, test-retest reliability, and face validity of the MSSM.

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Section: Data-collection Proceduresmentioning

confidence: 88%

The Multiple Sclerosis Self-Management Scale

Ghahari¹,

Khoshbin²,

Forwell³

2014

International Journal of MS Care

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“…PROs are considered a necessary component of health outcome measures comprising the impact of the disease or the treatment on different aspects of life [46] and therefore should not only be implemented in clinical trials, but also in routine care [47]. Depending on the purpose of a specific study or the needs of PRO assessment in routine care, the MSSS-88 scale can be used together with other instruments assessing different aspects important for patients with MS, such as self management [48], functioning [37] and fatigue [35]. …”

Section: Discussionmentioning

confidence: 99%

Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany

Henze¹,

Mackensen

Lehrieder³

et al. 2014

Health Qual Life Outcomes

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BackgroundMultiple sclerosis (MS) is an inflammatory disease where many of the patients suffer from spasticity impacting their quality-of-life. The purpose of this paper was to linguistically validate and psychometrically test the Multiple Sclerosis Spasticity Scale (MSSS-88) in German speaking MS patients.MethodsThe study had two stages: 1) forward/backward translations of the original MSSS-88 scale into German, discussions with MS-experts and cognitive debriefings with MS patients; 2) psychometric evaluation of the German version. Data collection took part in an observational multi-centre study in Germany (MOVE2).ResultsThe German translation of the MSSS-88 scale was discussed with three MS-experts; followed by two cognitive debriefing sessions with 12 MS patients. For psychometric evaluation the MSSS-88 was filled in by 87 MS patients with a mean age of 50.2 ± 10.4 years; 26.4% of them had severe spasticity. Data quality was acceptable. Missing data for items of the MSSS-88 were low (range 0–5.75%). Psychometric testing of the MSSS-88 revealed excellent values for reliability and validity. Significant differences between groups regarding severity, grading, type and self-ratings of MS-spasticity and sleep disturbances were found. Sensitivity to change could be demonstrated for the MSSS-88 in the group of MS patients treated with cannabinoid oromucosal spray vs. non-treated patients. In the treated group significant changes with a moderate effect size were found for ‘muscle spasms’, ‘emotional health’ and ‘pain/discomfort’. No significant changes could be detected in the non-treated group.ConclusionPreliminary evidence from this small study supports reliability, validity, and responsiveness of the German version of the MSSS-88 for measuring the impact of spasticity in MS.

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“…Self-management total scores range from 0 to 100 (28), and were divided into three levels: low (0 to 33), middle (34 to 67) and high (68 to 100). Ten members of the Nurs-ing and Midwifery Faculty of BUMS approved the content validity of this questionnaire.…”

Section: Methodsmentioning

confidence: 99%

Relationship Between Spiritual Well-Being and Self-Management Among Iranian People With Multiple Sclerosis

Zarei

Vagharseyyedin

Gorganie

2015

Jundishapur J Chronic Dis Care

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Background: Self-management is the cornerstone for controlling multiple sclerosis. As one's sense of meaning in life and his/her relationship with a higher power, spiritual well-being is an important coping resource in some chronic diseases. However, little is known about the role of spiritual well-being in self-management of people diagnosed with multiple sclerosis. Objectives: This study was aimed to assess the relationship between spiritual well-being and self-management among Iranian people with multiple sclerosis. Patients and Methods: Two hundred ninety-one people diagnosed with multiple sclerosis belonging to the Multiple Sclerosis Society of Mashhad, Iran, participated in this cross-sectional analytical study conducted in 2014. Demographic information was collected by using a demographic form. The multiple sclerosis self-management scale-revised (2011), developed by Bishop and Frain, was used to evaluate self-management of multiple sclerosis symptoms. Spiritual well-being of participants was assessed by using the spiritual well-being questionnaire developed by Paloutzian and Ellison in 1983. Descriptive statistic and inferential statistical methods including Pearson and Spearman's coefficient, stepwise multiple regression, independent t-test, Mann-Whitney U test, one-way ANOVA, and Kruskal-Wallis test were employed by using SPSS, version 16.0. The significance level was set at P ≤ 0.05. Results: Overall, the participants reported moderate levels of self-management and spiritual well-being as recorded on the multiple sclerosis self-management scale-revised and the spiritual well-being questionnaire. There was a significant correlation between the participants' spiritual well-being and self-management scores (r = 0.59, P < 0.001). Furthermore, participants' self-management was significantly correlated with existential health (r = 0.52, P < 0.001) and religious health (r = 0.57, P < 0.001). Finally, 40% of the variance of self-management was explained by three factors: spiritual well-being, marital status, and job type (R 2 = 0.4, F (3, 286) = 65.82, P < 0.001). Conclusions: Designing strategies to improve the spiritual well-being of people with multiple sclerosis can result in improved selfmanagement of the disease. In designing such programs, special attention should be paid to the patients' demographic characteristics such as employment type and marital status.

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The Multiple Sclerosis Self-Management Scale: Revision and psychometric analysis.

Abstract: The MSSM, as revised, is a brief, psychometrically sound, and multidimensional self-management scale for research and clinical applications.

Cited by 43 publications

References 59 publications

The Multiple Sclerosis Self-Management Scale

The Multiple Sclerosis Self-Management Scale

Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany

Relationship Between Spiritual Well-Being and Self-Management Among Iranian People With Multiple Sclerosis

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