The National Agenda for Quality Palliative Care: The National Consensus Project and the National Quality Forum

Ferrell, Betty; Connor, Stephen R.; Cordes, Anne; Dahlin, Constance; Fine, Perry G.; Hutton, Nancy; Leenay, Mark; Lentz, Judy; Person, Judi Lund; Meier, Diane E.; Zuroski, Ken

doi:10.1016/j.jpainsymman.2007.02.024

Cited by 179 publications

(126 citation statements)

References 2 publications

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“…Over the past decade a consensus has emerged (24)(25)(26)(27) that, in general, palliative care for adults involves eight interrelated core activities:…”

Section: Palliative Carementioning

confidence: 99%

Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision-Making

Feudtner

2007

Pediatric Clinics of North America

239

174

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SummaryIn an ideal world, all of us -patients, parents, family members, nurses, physicians, social workers, therapists, pastoral care workers, and others -would always work together in a collaborative manner to provide the best care possible to the patient: this article is committed to this ideal. The chapter will base the frameworks and suggestions in part upon studies of communication between patients, families, and clinicians, as well as more general works on communication, collaboration, decisionmaking, mediation, and ethics.This article unfolds in four parts. In Part I, we will explore what we mean by collaborative communication. In Part II, we will examine key concepts that influence how we frame the situations that children with life-threatening conditions confront and how these frameworks shape the care we provide. In Part III, we will consider a few general topics that are quite important to the task of collaborative communication, specifically how we use little "habits of thought"-called heuristicswhen we set about to solve complicated problems; how emotion affects the exchange of information between people; and how we can avoid certain pitfalls when engaging in difficult conversations. In Part IV, we will proceed through three common tasks of collaborative communication offering practical advice for patient care. INTRODUCTIONLet us communicate with each other clearly, compassionately, and collaboratively, as we strive to improve the quality of life for children including, when necessary, that part of life that is dying.I offer us this goal at the outset, as it will guide our journey over the course of the following pages, and perhaps beyond. Throughout this article, I will address you, the reader, directly. I do so with respect, aiming to be as straightforward and clear as possible about the cognitive and emotional challenges of communicating in a collaborative manner. While I anticipate that most of you are clinicians, I will also attempt to make our discussion useful for those of you Corresponding author for proof and reprints: Chris Feudtner, MD-PhD-MPH, Children's Hospital of Philadelphia -North, 3535 Market Street, Rm 1523, Philadelphia, PA 19104, Phone: 267.426.5032, Fax: 215.590.0426 feudtner@email.chop.edu. Publisher's Disclaimer: This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final citable form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. who are parents or even patients. In an ideal world, all of us -patients, parents, family members, nurses, physicians, social workers, therapists, pastoral care workers, and others -would always work together in a collaborative manner to provide the best care possible to the patient: this article is c...

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“…Over the past decade a consensus has emerged (24)(25)(26)(27) that, in general, palliative care for adults involves eight interrelated core activities:…”

Section: Palliative Carementioning

confidence: 99%

Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision-Making

Feudtner

2007

Pediatric Clinics of North America

239

174

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“…Most of these were representative of the standards adopted by the NQF in its Framework and Preferred Practices for Palliative and Hospice Care and were put into operation by the CAPC IPAL-ICU Project. [15][16][17][18][19]22,23 The IPAL-ICU Project is a Web-based resource sponsored by the National Institute on Aging, the CAPC, and the major critical care societies and other nationally funded groups such as the Robert Wood Johnson Foundation Critical Care End-of-life Peer Workgroup. It was designed to offer a framework, along with practical steps, for the development of a palliative care initiative in an ICU.…”

Section: Discussionmentioning

confidence: 99%

“…These standards were operationalized by the CAPC with its Improving Palliative Care in the ICU (IPAL-ICU) project. 15,19,[22][23][24][25][26] This project was a Web-based resource sponsored by the National Institute on Aging, the CAPC, the major critical care societies, and other nationally funded groups such as the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup. The CPGs provided by the project were designed to offer a framework, along with practical steps, for the development of a palliative care initiative in an ICU.…”

Section: Review Articlementioning

confidence: 99%

Use of Improving Palliative Care in the ICU (Intensive Care Unit) Guidelines for a Palliative Care Initiative in an ICU

Mun¹,

Nakatsuka

Umbarger

et al. 2017

TPJ

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Objective: For improved utilization of the existing palliative care team in the intensive care unit (ICU), a process was needed to identify patients who might need a palliative care consultation in a timelier manner.Methods: A systematic method to create a new program that would be compatible with our specific ICU environment and patient population was developed. A literature review revealed a fairly extensive array of reports and numerous clinical practice guidelines, which were assessed for information and strategies that would be appropriate for our unit.Results: The recommendations provided by the Center to Advance Palliative Care from its Improving Palliative Care in the ICU project were used to successfully implement a new palliative care initiative in our ICU. Conclusion:The guidelines provided by the Improving Palliative Care in the ICU project were an important tool to direct the development of a new palliative care ICU initiative.

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“…Specifically, this study is aimed at analyzing the types of indicators that have been chosen and their concordance with the eight dimensions, guidelines, and criteria established by the NCP, assuming the latter one as the golden standard of palliative care quality service [17].…”

Section: Introductionmentioning

confidence: 99%

Palliative care quality indicators in Italy. What do we evaluate?

D’Angelo

Mastroianni

Vellone

et al. 2011

Support Care Cancer

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Purpose In recent years, the number of palliative service providers has increased significantly. This expansion necessitates an evaluation in order to provide the basis for quality improvement of the care. Policymakers, managers of palliative care programs, and others committed to the improvement of end-of-life care need methods and criteria to measure and evaluate the care delivered. As quality measurement is expensive and difficult to undertake, it is fundamental that quality measures evaluate the right things. Quality evaluation in Italy is supported by health authorities who have developed some indicators of palliative care. The aims of this study were to give an overview of these indicators. Methods We analyzed all palliative care indicators developed by Italian national authorities from 2000 to the present. These indicators have been divided into three different levels of analysis (structure, process, and outcome). Subsequently, two reviewers have independently compared their degree of concordance with domains, and guidelines developed by the NCP for palliative care and after careful discussion an expert panel has elaborated a final consensus document. Results Most of the quality indicators analyzed deal with the structure and process of palliative care, however they miss outcomes and do not cover domains mainly concerned with spiritual, ethical, cultural, or existential aspects of care. Conclusions More attention should be paid to the development of outcome indicators of palliative care. The attempt to identify a group of indicators which cover every domain of palliative care represents a challenge for the future in terms of finding new cognitive models more oriented toward subjectivity.

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The National Agenda for Quality Palliative Care: The National Consensus Project and the National Quality Forum

Cited by 179 publications

References 2 publications

Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision-Making

Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision-Making

Use of Improving Palliative Care in the ICU (Intensive Care Unit) Guidelines for a Palliative Care Initiative in an ICU

Palliative care quality indicators in Italy. What do we evaluate?

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