The Nature of Family Engagement in Interventions for Children With Chronic Conditions

Knafl, Kathleen A.; Havill, Nancy L.; Leeman, Jennifer; Fleming, Louise; Crandell, Jamie; Sandelowski, Margarete

doi:10.1177/0193945916664700

Cited by 60 publications

(59 citation statements)

References 122 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Meta‐analysis can do so, but only to the extent that researchers use similar measures. Family functioning is associated with many dimensions of child well‐being, but limited evidence is available to date on interventions that directly target family functioning or assess its mediation of intervention effects on child outcomes (Knafl et al, ). A more precise understanding of the aspects of family life most closely linked to child outcomes will contribute to the development and testing of family‐focused intervention.…”

Section: Resultsmentioning

confidence: 99%

“…We also confirmed prior reviewers’ findings that family functioning was associated with other aspects of childhood well‐being (Drotar & Bonner, ; Lewandowski et al, ; Tsiouli, Alexopoulos, Stefanaki, Darviri, & Chrousos, ). Despite these findings, little research has been done on interventions that directly target family functioning to improve the well‐being of chronically ill children and their families (Knafl et al, ). Review findings suggest that interventions that target family conflict and cohesion may be of particular benefit.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Family Functioning and the Well‐Being of Children With Chronic Conditions: A Meta‐Analysis

Leeman

Crandell

Lee

et al. 2016

Research in Nursing & Health

Self Cite

124

View full text Add to dashboard Cite

For children with chronic conditions, well-being is closely related to how well their families function. Most prior research syntheses on family functioning and child well-being have focused on children with a single condition, thereby limiting the potential to aggregate and build on what is known across conditions. To address this challenge, research reports were reviewed and meta-analyses conducted of findings on the relationship between family functioning and child well-being across a range of chronic physical conditions. The sample was derived from a larger systematic review study that included 1,028 reports published between January 1, 2000 and March 31, 2014. The current review includes 53 studies in which a relationship between family functioning and child well-being was analyzed using one of four family measures: Family Adaptability and Cohesion Evaluation Scales, Family Environment Scale, Family Relationship Index, or Family Assessment Device. Most studies were cross-sectional and observational (n = 43, 81%). The most frequently studied conditions were diabetes, cancer, sickle cell disease, and asthma. In 37 studies, findings were sufficiently comparable to conduct meta-analyses. Significant correlations were identified between children's psychological health and seven of nine dimensions of family functioning. Significant correlations also were found between dimensions of family functioning and children's problem behaviors, social competence, quality of life, and, to a lesser extent, adherence and physical health. Of the family dimensions, cohesion and conflict were associated most strongly with child outcomes. Understanding the specific family variables, such as conflict, linked to varied child outcomes is key for intervention development. © 2016 Wiley Periodicals, Inc.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Family Functioning and the Well‐Being of Children With Chronic Conditions: A Meta‐Analysis

Leeman

Crandell

Lee

et al. 2016

Research in Nursing & Health

Self Cite

124

View full text Add to dashboard Cite

show abstract

“…A strength of the Family Synthesis Study is the comprehensiveness of its search, which provided a database of publications that could be synthesized to address multiple different research questions. Prior analyses have addressed the relationship between family functioning and child wellbeing (Leeman, Crandell, Lee, Bai, Sandelowski, & Knafl, 2016), the transition of condition management from parent to child in children with Cystic Fibrosis (Leeman, Sandelowski, Havill, & Knafl, 2015), and the positioning of family in intervention studies (Knafl, Havill, Leeman, Fleming, Crandell, & Sandelowski, 2016). This analysis is distinct in its focus on parenting.…”

Section: Methodsmentioning

confidence: 99%

Parenting behaviors and the well-being of children with a chronic physical condition.

Crandell¹,

Sandelowski

Leeman

et al. 2018

Families, Systems, & Health

Self Cite

View full text Add to dashboard Cite

The results identify multiple, potentially modifiable parenting dimensions associated with well-being in children with a chronic condition, which could be targeted in developing family-focused interventions. They also provide evidence that research using Skinner's core dimensions could lead to conceptualization and study of parenting behaviors in ways that would enable comparison of parenting in a variety of health and sociocultural contexts. (PsycINFO Database Record

show abstract

“…A Cochrane review of group-based parenting interventions to improve parental psychosocial health found evidence to support the use of parenting programmes 12 and a separate Cochrane review found some evidence that psychological therapies are beneficial for parents of CSHCN. 13 Further evidence covering related issues have also been reviewed, for example, research on improving or supporting professional–parent collaborations in managing CSHCN, 5 14 nursing research on parenting children with complex chronic conditions, 15 the nature of family engagement in interventions for this population 16 and the role of interactive media for parental education. 17 …”

Section: Introductionmentioning

confidence: 99%

Improving health, well-being and parenting skills in parents of children with medical complexity: a scoping review protocol

et al. 2017

View full text Add to dashboard Cite

IntroductionLess than 1% of children have complex medical conditions but account for one-third of all child health spending. The impact of suboptimal management of this group of children can have a considerable effect on families as well as services. Some families appear to cope more easily than others do, but there are compelling reasons to suggest that effective interventions may improve family coping and ultimately outcomes. Hospitalisation of their child presents a unique set of pressures and challenges for parents, but also an opportunity to intervene. However, the evidence is not well described in relation to this group of families. The primary objective of this scoping review is to identify parent and family-based interventions available to improve parental health, well-being, functioning or skills in the context of a child’s medically complex hospital admission and hospital care.Methods and analysisNine bibliographic databases will be searched spanning medicine, nursing, psychology, education, social work and the grey literature using a combination of index terms and text words related to parents, childhood, chronic illness and interventions. Study eligibility will be assessed by two researchers against preset inclusion and exclusion criteria. Key information from each study will be extracted and charted including year of publication, condition, severity, geographical setting, key concepts and definitions, aims, study population and sample size, methodology/methods, interventions, outcomes and key findings. Directed qualitative content analysis will be used to make sense of narrative findings within the included studies. Results will be presented which summarise the scope of the literature and identify key findings, potential areas for evidence synthesis and research gaps.Ethics and disseminationEthical approval is not required. The results of this review will be disseminated through publication in a peer-reviewed journal and feedback to stakeholders during the development of a hospital-based intervention.

show abstract

The Nature of Family Engagement in Interventions for Children With Chronic Conditions

Cited by 60 publications

References 122 publications

Family Functioning and the Well‐Being of Children With Chronic Conditions: A Meta‐Analysis

Family Functioning and the Well‐Being of Children With Chronic Conditions: A Meta‐Analysis

Parenting behaviors and the well-being of children with a chronic physical condition.

Improving health, well-being and parenting skills in parents of children with medical complexity: a scoping review protocol

Contact Info

Product

Resources

About