The Nature of Parent Support Provided by Parent Mentors for Families With Deaf/Hard-of-Hearing Children: Voices From the Start

Narr, Rachel Friedman; Kemmery, Megan

doi:10.1093/deafed/enu029

Cited by 20 publications

(12 citation statements)

References 16 publications

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“…The parent-to-parent support allows parents to identify the reality of what it is like to have a child who is deaf and hard of hearing and address how parents can make decisions regarding intervention. This may reduce delays in that parents may not try out all available options before making an informed decision, for example, regarding communication options, schooling and rehabilitative methodologies (Narr & Kemmery, 2015 ). According to Lederberg and Golbach ( 2002 ), you need to be a parent of a deaf or hard of hearing child to comprehend the depth of parenting a deaf or hard of hearing child.…”

Section: Discussionmentioning

confidence: 99%

Parental views on informational counselling provided by audiologists for children with permanent childhood hearing loss

Shezi

Joseph

2021

South African Journal of Communication Disorders

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Background: The absence of best practice guidelines on informational counselling, has caused lack of clarity regarding the information audiologists should provide to parents and caregivers following the diagnosis of a hearing loss. Research shows that informational counselling provided by audiologists is limited and often biased, with little evidence of how parents experience this service.Objectives: To explore the nature and practice of informational counselling by audiologists.Method: This study was descriptive in nature and adopted a survey design to obtain information on the current practices of informational counselling from the perspective of parents and primary caregivers. Ninety-seven face-to-face semi-structured interviews were conducted across KwaZulu-Natal province of South Africa. Descriptive statistics and thematic analysis using Nvivo software were conducted.Results: The majority of the parents reported receiving some form of informational counselling. However, the information provided by audiologists was considered to be biased as it included a favoured communication option, school and rehabilitative technology. There was a lack of information related to aural rehabilitation and family-centred intervention. The provision of all communication options, school options and rehabilitative technology were identified as gaps that contribute to an unfavourable decision-making process.Conclusion: There are inefficiencies experienced by families of deaf and hard of hearing children during informational counselling. However, this understanding, together with the identified gaps by parents, can help address the professional response to caring for families with deaf and hard of hearing children.

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Section: Discussionmentioning

confidence: 99%

Parental views on informational counselling provided by audiologists for children with permanent childhood hearing loss

Shezi

Joseph

2021

South African Journal of Communication Disorders

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“…The spouses' role of encouraging their partners to engage actively poses positive effects to the children's speech development. Spouses' supports are usually inconsistent, but still relevant to the children's best interest [11,20].…”

Section: Discussionmentioning

confidence: 99%

Parental Involvement in Speech Activities of Speech Delayed Child at Home

Alias¹,

Ramly²

2021

Advances in Social Science, Education and Humanities Research

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Speech activities in speech therapy are frequently applied of early interventions to children with speech delay. The speech therapy was conducted to assist the children with speech difficulties. However, these speech activities need to be implemented regularly at home as a reinforcement to the speech therapies attended at clinics. Therefore, this paper discusses the factors of parental involvement in implementing speech activities at home. In this study, two parents who each has a child with speech delay, were interviewed using semi-structured questions. Triangulation was utilized using two types of data collection technique: interview and document analysis. The interview transcripts and parents' personal notes throughout the speech therapy session with speech therapists were analyzed using The ATLAS.ti (version 4.1). Five factors were found on parental involvement in their children's speech activities at home: a) perceived language development, (b) emotion, (c) knowledge, (d) children's performance and (e) support. These factors motivate the parents to continue conducting speech activities relentlessly at home. Furthermore, the training and guidance from speech therapist on how to conduct speech activities successfully at home, would reinforce the children's speech development and eventually overcome the speech difficulties faced by the children.

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“…More specifically, parents positively rated most HRQoL domains, although education and the effects of implantation received significantly fewer positive ratings (Kumar, Warner-Czyz, Silver, Loy, & Tobey, 2015). Other parents within the parenting styles paradigm advocated rational information sessions with language specialists for developing parent-significant theoretical knowledge (Veland, Bru, & Idsøe, 2014;Narr & Kemmery, 2015). Later studies demonstrated wide-ranging findings.…”

Section: Family Qol Of Families Raising Children With Cis or Hasmentioning

confidence: 99%

“…Overall, the researchers encouraged a line of research on parent mentoring. For example, parents trained by PTs should provide what is necessary for understanding and responding to the children's multiple disabilities and hearing-related topics (Narr & Kemmery, 2015).…”

Section: Study Limitations and Recommendations For Further Researchmentioning

confidence: 99%

Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions

Rosa¹,

Angulo²

2020

IES

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This study aimed to evaluate two objectives: first, the health-related quality of life (HRQoL) and socio-demographic characteristics of children with cochlear implants (CIs) or hearing aids (HAs) on the Kid-KINDLR_children_7-13 questionnaire, and second to analyze parental background factors and the perceptions of their children with CIs or HAs on the Kid_Kiddo-KINDLR_Parents_ 7-17 questionnaire. The data consisted of 89 children with CIs and 63 children with HAs and their 89 parents, respectively. The characteristics of children and the parental factors included demographic and audiological variables. Student’s t-test and one-way ANOVA were used to analyze the two objectives. Children with CIs exhibited a perception of better HRQoL in comparison with children with HAs. Among other differences, children with CIs or HAs and their parents were significantly distinct in the variable Setting (t = 2.921, p < 0.010). Moreover, parents of children with CIs or HAs were significantly different among them in some background factors (i.e., age, socioeconomic status, and learning). Children with CIs and their parents demonstrated a perception of better HRQoL than children with HAs and their parents. These findings added to the existing knowledge about the benefits of CIs for children with hearing loss. Parents of children with CIs noted the significance of social and emotional development as a marker of well-being in their children’s lives.

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The Nature of Parent Support Provided by Parent Mentors for Families With Deaf/Hard-of-Hearing Children: Voices From the Start

Cited by 20 publications

References 16 publications

Parental views on informational counselling provided by audiologists for children with permanent childhood hearing loss

Parental views on informational counselling provided by audiologists for children with permanent childhood hearing loss

Parental Involvement in Speech Activities of Speech Delayed Child at Home

Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions

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