The New Politics of Disablement

Oliver, Michael; Barnes, Colin

doi:10.1007/978-0-230-39244-1

Cited by 513 publications

(353 citation statements)

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“…While disability scholars have linked the ideological nature of government proposals to this surge of support for the disability movement (Oliver & Barnes, 2012;Roulstone, 2011), the projected impact of these changes on the daily lives of disabled Britons also resonated with the principle that disruptive events and what are perceived as outrageous violations of established ÔrightsÕ can push otherwise disengaged citizens towards direct participation (Woliver, 1993). Assuming that such ÔeverydayÕ concerns constituted the main driver behind this growth in online participation, it was therefore unsurprising to find that the Facebook pages of these high-profile campaigns hosted a considerable number of personal stories (Table 1).…”

mentioning

confidence: 99%

Ethical dilemmas in researching sensitive issues online: lessons from the study of British disability dissent networks

Trevisan

Reilly

2014

Information, Communication & Society

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This is a preprint of an article whose final and definitive form will be published in Information, Communication & Society.This paper presents an unconventional approach to the resolution of the key ethical dilemmas raised by the study of politically charged personal content posted on social media. In particular, this study suggests that Internet research ethics should remain informed by the disciplinary perspectives of those who study online communities. Hence, Internet scholars must build on established ethical practices from their respective disciplines in such a way as to address these Ôhuman-centredÕ ethical issues. A Ômedium-cloakedÕ strategy towards data anonymization was adopted for this study of the comments posted on the Facebook pages of UK disability rights groups. Key themes were typically conveyed without the disclosure of personally identifiable information and direct quotes were only used if they could not be located using a search engine. The rationale for such an approach is elucidated in order to identify the limitations in the ways in which such ethical issues are dealt with in existing guidelines in this area. The paper suggests that the automatic categorization of disabled people and others experiencing disadvantage as Ôvulnerable groupsÕ in many of these protocols might further disempower these stakeholders through the omission of their personal stories from relevant scholarship. A more nuanced approach towards the protection of user privacy is advocated; one that allows for the use of direct quotes when it is unlikely to prove harmful to the user but also sets out to provide the maximum level of anonymity possible for those who divulge sensitive information in these semi-public spaces.

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confidence: 99%

Ethical dilemmas in researching sensitive issues online: lessons from the study of British disability dissent networks

Trevisan

Reilly

2014

Information, Communication & Society

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“…It is beyond the scope of this article to describe these changes in detail. It is also not the main purpose of this article to present a detailed analysis of disability policy in England and Portugal and there are many excellent sources of this (Fontes 2011;Oliver and Barnes 2012;Roulstone and Barnes 2005;Roulstone and Prideaux 2012;Pinto and Teixeira 2012;Portugal et al 2010). My purpose here is to focus on how the study's participants were keen to report the impact of state support and benefits (or lack thereof in their lives) since in England, at the time that the empirical work was taking place, the recent government measures regarding state benefits for disabled people were beginning to take shape.…”

Section: Disablism In the Context Of Employment And State Supportmentioning

confidence: 99%

Disablism in the lives of people living with a chronic illness in England and Portugal

Bê

2016

Disability & Society

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Disablism in the lives of people living with a chronic illness in England and PortugalThis paper is based on research about the daily lives of people living with chronic illnesses in England and Portugal. Through the first-person narratives of participants, I argue that the lives of people living with debilitating chronic illnesses are affected by disablism, discrimination and exclusion. These aspects affect them in several important realms of life such as lack of or poor social support, difficulties in obtaining reasonable adjustments or the inability to obtain any kind of state support at all. These aspects are also widespread and compound and greatly influence their lives, beyond or in addition to the physical experience of the illness itself. I conclude that it is fundamental to change these structural and policy aspects and that people should have access to what I have termed a paradigm of sustained wellbeing, despite the illness.

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“…Secondly, it was argued that there remained a power imbalance among traditional charities, where an absence of disabled people in leadership positions continued. Whilst there has been a shift in more recent years to secure enhanced participation (Shakespeare, 2006), many have been sceptical of such changes, interpreting them as little more than 'window dressing' (Oliver and Barnes, 2012). Several disability writers would argue that following on from the two campaigns, which provided both a common cause and scope to unite a diverse campaigning alliance, activists in the early 2000s struggled to find unity and build on this momentum.…”

Section: The Changing Parameters Of Disability Activismmentioning

confidence: 99%

Disability activism in the new media ecology: campaigning strategies in the digital era

Pearson

Trevisan

2015

Disability & Society

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Disability activism in the new media ecology: Campaigning strategies in the digital era.Key words: disability activism, Internet, new media ecology, Paralympics, welfare reform, austerity. AbstractThis article examines the changing nature of disability activism through the influence of social media. As disabled people in the UK have been subjected to acute austerity, this has coincided with a new era of disability activism channelled through increased social media participation. Drawing on the analysis of one group's online activities and a qualitative content analysis of disability protest coverage in traditional news media during the 2012 Paralympic Games, this article positions this shift in the broader framework of 'new media ecology ' (Hoskins and O'Loughlin, 2010). We explore how emerging structures of disability activism have begun to offer a more visible profile to challenge government policy and negative stereotypes of disabled people. This highlights the usefulness of campaigning strategies for generating favourable news coverage for disability protest.

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The New Politics of Disablement

Cited by 513 publications

References 0 publications

Ethical dilemmas in researching sensitive issues online: lessons from the study of British disability dissent networks

Ethical dilemmas in researching sensitive issues online: lessons from the study of British disability dissent networks

Disablism in the lives of people living with a chronic illness in England and Portugal

Disability activism in the new media ecology: campaigning strategies in the digital era

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