The new self-advocacy activism in psychiatry: Toward a scientific turn

Arnaud, Sarah; Gagné-Julien, Anne-Marie

doi:10.1080/09515089.2023.2174425

Cited by 5 publications

(2 citation statements)

References 67 publications

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“…The neurodiversity movement refers to concrete individuals who share a collective affinity based on a divergence from norms that presents itself in specific social, sensory, and cognitive phenomena (Kafer, 2013;Stenning & Rosqvist, 2021). However, neurodiversity is also applied beyond this focus on political identity, as an analytical lens that can help to critically engage with neuronormativity, most prominently in academic research (Arnaud & Gagné-Julien, 2023). The inclusion of neurodivergent voices in research processes in order to counter epistemic injustice is a crucial aspect of this neurodiversity research…”

Section: Theoretical Frameworkmentioning

confidence: 99%

Experiences of Neurodivergent People When Playing an Educational Video Game About Their Own Diagnosis

Meinen

2023

Scandinavian Journal of Disability Research

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This paper discusses how participants with diagnoses of autism, psychosis, or OCD (obsessive-compulsive disorder) experienced playing an educational video game about that same diagnosis. Rather than having participants make a specific assessment of the video game they played, the gameplay was used as a creative task to trigger reflection on their experiences with neurodivergent perceptions and knowledge. Central was the phenomenological question of what it means for someone to play a video game intended to communicate to outsiders a vision of neurodiversity that also represents (parts of) their lived experience. The study is based on in-depth semi-structured interviews with 10 adult participants. Using interpretative phenomenological analysis, three main themes were formulated: (1) working with and around the diagnostic label, (2) the paradox of understanding, and (3) the serious nature of play. Then, several theoretical implications concerning the performative effects of a psychiatric diagnosis, cross-neurotype communication, and inclusive definitions of play are formulated. The paper concludes that playing video games during the interviews formed a good conversation starter for sharing neurodiversity-related experiences, which also demonstrates their meaningful complementarity to traditional interview-based qualitative research.

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Section: Theoretical Frameworkmentioning

confidence: 99%

Experiences of Neurodivergent People When Playing an Educational Video Game About Their Own Diagnosis

Meinen

2023

Scandinavian Journal of Disability Research

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“…Born during the peak of the U.S. civil rights movement in the 1960s, the disability rights movement surfaced with a unified front for combating the abuse and neglect of people with disabilities, and for overcoming barriers that stand between them and a good human life ( Sabatello, 2014 ). The neurodiversity movement is a recent iteration of the disability rights movement that is chiefly associated with autism, promoting a more affirming view of cognitive diversity and emphasizing multifarious social exclusion (e.g., attitudinal, environmental, institutional) as the principal cause of the adversities neurodivergent people experience ( Ne’eman and Pellicano, 2022 ; Arnaud and Gagné-Julien, 2023 ). Despite rapidly gaining traction within both academia and popular discourse, the neurodiversity paradigm remains largely unconnected with clinical work.…”

Section: Introductionmentioning

confidence: 99%

Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices

Pantazakos,

Vanaken

2023

Front. Psychol.

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The neurodiversity movement has introduced a new era for autism research. Yet, the neurodiversity paradigm and the autism clinic remain largely unconnected. With the present work, we aim to contribute to filling this lacuna by putting forward phenomenology as a foundation for developing neurodiversity-affirming clinical interventions for autism. In the first part of this paper, we highlight that autistic people face a severe mental health crisis. We argue that approaches focused on reducing autistic ‘symptoms’ are unlikely to solve the problem, as autistic mental health is positively correlated with autism acceptance and perceived quality of support provided, not necessarily with lack of ‘symptomatologic severity’. Therefore, the development and dissemination of neurodiversity-affirming clinical interventions is key for addressing the autism mental health crisis. However, therapists and researchers exploring such neurodiversity-affirming practices are faced with two significant challenges. First, they lack concrete methodological principles regarding the incorporation of neurodiversity into clinical work. Second, they need to find ways to acknowledge rightful calls to respect the ‘autistic self’ within the clinic, while also challenging certain beliefs and behaviors of autistic clients in a manner that is sine qua non for therapy, irrespective of neurotype. In the second part of the paper, we introduce phenomenological psychology as a potential resource for engaging with these challenges in neurodiversity-affirming approaches to psychotherapy. In this vein, we put forward specific directions for adapting cognitive behavioral and interpersonal psychotherapy for autism.

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First-person perspectives and scientific inquiry of autism: towards an integrative approach

Arnaud

2023

Synthese

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The new self-advocacy activism in psychiatry: Toward a scientific turn

Cited by 5 publications

References 67 publications

Experiences of Neurodivergent People When Playing an Educational Video Game About Their Own Diagnosis

Experiences of Neurodivergent People When Playing an Educational Video Game About Their Own Diagnosis

Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices

First-person perspectives and scientific inquiry of autism: towards an integrative approach

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