The Normative Crises of Families Confronting Dementia

Kühn, Daniel

doi:10.1177/104438949007100801

Cited by 10 publications

(1 citation statement)

References 20 publications

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“…Sense of mastery in the role of caregiver appears to decrease as the duration of caregiving increases (Skaff, Pearlin, & Mullan, 1996). This evidence points to the fact that although parent care may be a normative challenge of middle age, it also can become a source of chronic strain for many adult children (Brody, 1985;Dilworth-Anderson, Williams, & Cooper, 1999;Kuhn, 1990;Schindler, 1996).…”

Section: Caregiver Strainmentioning

confidence: 85%

Expressed Information and Resource Needs of Filial Caregivers Reporting Recent Experiences of Crisis

England¹

2001

Educational Gerontology

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In this descriptive study, 92 adult children of parents with cognitive impairment preselected for recent experiences of crisis were interviewed regarding their concerns and goals for caregiving and asked to identify their most important needs for meeting parent care requirements. The 299 information and 261 resource requests identi ed were organized as either primary and secondary priorities according to their frequency. This organization revealed primary needs for learning regarding coping, relating, and mastery of caregiving and secondary needs relating to information about life processes (i.e., aging and chronicity), how to access resources, and freedom from threat or harm. It also revealed primary resource needs in the domains of personal assistance, assets, and getting away as well as secondary resource needs relating to knowledge and safety. The content of these needs points to adult children's awareness of the decline of their parents, personal anxiety or exhaustion, insuf cient mastery of caregiving, and reluctance to continue indenitely in the role of lial caregiver. It also indicates their awareness of insuf cient preparedness for providing parent care, need for help, and desire to relate more effectively with others. These ndings have implications for educational research to develop interventions that might facilitate lial maturity and the socialization of adult children into the role of caregiver in critical parent care situations.Epidemiological studies have revealed that approximately 5% to 10% of individuals over the age of 65 have problems with cognitive impairment (Lee, 1999). At least 70% of those with a dementing disorder receive care in the community, and nearly one third of these individuals receive their care from adult children, mostly daughters (Prescop, Dodge, Morycz, Schulz, & Ganguli, 1999). Insuf cient experience and

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Section: Caregiver Strainmentioning

confidence: 85%

Expressed Information and Resource Needs of Filial Caregivers Reporting Recent Experiences of Crisis

England¹

2001

Educational Gerontology

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A modern psychoanalytic approach to caregiver support groups

Shaw¹

1997

Group

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Burden of responsibility experienced by family caregivers of elderly dementia sufferers

Samuelsson

Annerstedt

Elmståhl

et al. 2001

Scandinavian Caring Sciences

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Eight family caregivers of elderly dementia sufferers participated in in‐depth interviews regarding their experiences of giving care. They were selected according to strain, isolation, disappointment and emotional involvement, measured on a ‘caregiver burden’ scale. Structural analyses of the interviews identified six categories reflecting the feelings and experiences of the caregivers. The first symptom of dementia noted by caregiving husbands was a change in personality, whereas other relatives first observed impaired memory. The dementia sufferers were deemed to be helpless, vulnerable and anxious. The quality of the relationship preceding the onset of dementia had a bearing on the carer's situation. All caregivers felt a heavy burden, especially early in the dementia process. Husbands sustained the heaviest burden; they expressed anger, worry, weariness, guilt, distress and isolation. The caregivers used different problem‐ and emotion‐focused strategies to cope with their situation. Visits to the homesof the elderly, for instance by the district nurse or home help, which should include interviews with close relatives, are recommended in order to disclose early signs of dementia and to prepare further individual support for the family caregivers and their relatives suffering from dementia.

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The Normative Crises of Families Confronting Dementia

Cited by 10 publications

References 20 publications

Expressed Information and Resource Needs of Filial Caregivers Reporting Recent Experiences of Crisis

Expressed Information and Resource Needs of Filial Caregivers Reporting Recent Experiences of Crisis

A modern psychoanalytic approach to caregiver support groups

Burden of responsibility experienced by family caregivers of elderly dementia sufferers

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