The Nurse's Role in Addressing Unmet Treatment and Management Needs of Patients With Rheumatoid Arthritis: Delphi-Based Recommendations

Cottrell, Jane; Jonas, Monique; Bergsten, Ulrika; Blaas, Etienne; Torre-Aboki, Jenny de la; Howse, Catriona; Korandová, Jana; Löfman, Päivi; Logtenberg, Carin; Lupton, Terri; Mallon, Catherine; Oliver, Susan; Pickles, David; Bulinckx, Leeanna

doi:10.1111/j.2047-3095.2012.01231.x

Cited by 7 publications

(11 citation statements)

References 20 publications

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“…The TF discussed the definition of ‘basic nursing’ and ‘extended’ and ‘advanced’ practice roles. Three cross-sectional surveys described the breadth and complexity of rheumatology nursing, including prescribing and administering pharmacological treatments (oral, subcutaneous, intra-articular, intravenous), patient education and providing support for patients and their family/significant others 60 85 90. The TF agreed that extended and advanced practice roles comprise a broad spectrum of nursing activities determined by the complex needs of patients, from disease assessment, monitoring the impact of the disease and the effects of treatment to long-term support for self-management and prevention of complications.…”

Section: Resultsmentioning

confidence: 99%

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

et al. 2019

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To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse’s role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.

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Section: Resultsmentioning

confidence: 99%

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

et al. 2019

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“…Furthermore, agreement on 13 main themes, translated into research questions (see online supplementary table S2) was achieved and subsequently formed the basis of the SLR (see separate manuscript). In total, 79 papers were included; 20 addressed the competences HPRs of multiple professions have in common,1 3 4 9 12–27 43 the competences of nurses,28–70 12 of PTs71–82 and four of OTs 83–86. From the 20 papers addressing the competences HPRs of multiple professions have in common, 75% (n=15) had a qualitative design 1 3 4 9 12 13 15 16 18–20 23 25–27.…”

Section: Resultsmentioning

confidence: 99%

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

et al. 2019

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background/objectives To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educational offerings are needed. This task force (TF) aimed to develop evidence-based recommendations for the generic core competences of HPRs, with specific reference to nurses, physical therapists (PTs) and occupational therapists (OTs) to serve as a basis for their postgraduate education. Methods The EULAR standardised operating procedures for the development of recommendations were followed. A TF including rheumatologists, nurses, PTs, OTs, patient-representatives, an educationalist, methodologists and researchers from 12 countries met twice. In the first TF meeting, 13 research questions were defined to support a systematic literature review (SLR). In the second meeting, the SLR evidence was discussed and recommendations formulated. Subsequently, level of evidence and strength of recommendation were assigned and level of agreement (LoA) determined (0-10 rating scale). Results Three overarching principles were identified and 10 recommendations were developed for the generic core competences of HPRs. The SLR included 79 full-text papers, 20 of which addressed the competences, knowledge, skills, attitudes and/or educational needs of HPRs from multiple professions. The average LoA for each recommendation ranged from 9.42 to 9.79. Consensus was reached both on a research and educational agenda. Conclusion Evidence and expert opinion informed a set of recommendations providing guidance on the generic core competences of HPRs. Implementation of these recommendations in the postgraduate education of HPRs at the international and national level is advised, considering variation in healthcare systems and professional roles. MeTHodsThe updated EULAR standardised operating procedures (SOPs) for the development of the recommendations were followed 5 after approval of the TF by the EULAR Executive Committee. The multidisciplinary TF comprised of a selection of nine experts in HPRs' education (three nurses, two PTs, three on July 4, 2020 by guest. Protected by copyright.

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“…Finally, 79 papers were included 20 of which concerned competences of multiple HPRs,3 4 10 11 18–33 43 competences of nurses,2 5–7 34–72 12 of physical therapists73–84 and 4 of OTs 85–88. Agreement between the reviewers in the screening process and in the validation of data extraction was 90% and 93%, respectively.…”

Section: Resultsmentioning

confidence: 99%

“…Health professionals play an important role in the care for people with rheumatic and musculoskeletal diseases (RMDs). This is through input and support on optimisation of disease outcomes1 and often through being the key players and coordinators of the multidisciplinary team that cares for this patient group 2–5. To assure the delivery of high-quality care, continuous education of health professionals in rheumatology (HPRs) is needed.…”

Section: Introductionmentioning

confidence: 99%

Development of generic core competences of health professionals in rheumatology: a systematic literature review informing the 2019 EULAR recommendations

et al. 2019

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ObjectiveTo identify generic competences on the desired knowledge, skills and of health professionals in rheumatology (HPRs) to inform the respective EULAR recommendations.MethodsA systematic literature review was performed on the generic core competences (defined as knowledge, skills or attitudes) of HPRs (nurses, physical therapists (PTs) or occupational therapists (OTs)). Literature was obtained from electronic databases, published EULAR recommendations and via personal communication with representatives of national rheumatology societies and experts in the field. Qualitative, quantitative and mixed methods studies were included, and their methodological quality was scored using appropriate instruments.ResultsFrom 766 references reviewed, 79 fulfilled the inclusion criteria. Twenty studies addressed competences of multiple HPRs: 15 were of qualitative design, 1 quantitative, 1 mixed-methods, 2 systematic reviews and 1 opinion paper. The methodological quality of most studies was medium to high. Five studies concerned the development of a comprehensive set of competences. Key competences included: basic knowledge of rheumatic diseases, holistic approach to patient management, effective communication with colleagues and patients and provision of education to patients. The proposed competences were confirmed in studies focusing on one or more specific competences, on a rheumatic disease or on a specific profession (nurses, PTs or OTs).ConclusionGeneric competences were identified for HPRs. Data were mostly derived from qualitative studies. All identified studies varied and were at national level, highlighting the need for the harmonisation of HPR competences across Europe. These findings underpin the development of EULAR recommendations for the core competences of HPRs.

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The Nurse's Role in Addressing Unmet Treatment and Management Needs of Patients With Rheumatoid Arthritis: Delphi-Based Recommendations

Abstract: Rheumatology nurses can address unmet patient needs by expanding current roles and by adopting additional functions.

Cited by 7 publications

References 20 publications

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

Development of generic core competences of health professionals in rheumatology: a systematic literature review informing the 2019 EULAR recommendations

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