The pain of being misunderstood: Invalidation of pain complaints in chronic low back pain patients

Wernicke, Sarah; Huberts, Jessie de Witt; Wippert, Pia-Maria

doi:10.1177/1359105315596371

Cited by 27 publications

(26 citation statements)

References 30 publications

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“…In line with the model, validation training was in a recent study found to increase the frequency of validating responses while decreasing invalidating responses, and this had a positive effect on emotions in the person with pain [2]. Further, a significant association was in another study found between invalidation from the partner and pain disability [37]. A possible consequence of a pattern of invalidating responses is marital conflict.…”

Section: Research Findings the Significance Of Affective Interactionmentioning

confidence: 71%

“…A few studies on validating and invalidating partner responses have recently been presented. Findings indicate that validation is associated with decreases in negative affect [2] and that invalidation is associated with higher pain disability [37]. As it leads to opposite predictions from those of the operant model when it comes to the effect of negative/invalidating partner responses, the model might explain some of the mixed results observed within the operant framework.…”

Section: Discussionmentioning

confidence: 93%

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Couples coping with chronic pain: How do intercouple interactions relate to pain coping?

Prenevost

Rème

2017

Scandinavian Journal of Pain

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AbstractBackground and aimsPain is not merely an isolated experience occurring within the person. It takes place in a wider social context, including the immediate social relationships that the person is a part of. The aim of this paper is to provide an overview of how intercouple interactions might influence pain coping in couples coping with chronic pain.MethodsFour different approaches to understanding the influence of intercouple interactions have been proposed in the literature. In this review, we present and discuss the empirical support for each of these models. A literature search on all studies published up until May 2017 (PubMed and PsycINFO) was performed. The search string consisted of 3 steps: Chronic pain AND couple interaction*/partner validation/marital interaction/chronic pain couple*/spouse response* AND coping/adjustment/disability/function/work participation/sick leave/sickness absence/work disability.ResultsThe operant model views partner responses from the perspective of conditioned learning and focuses on how such responses might increase or decrease the occurrence of pain behaviour. The notion that partner responses can reinforce pain behaviour generally finds support in the literature. However, when it comes to negative partner responses results are mixed, and the model paints a limited picture of the range of interactions that takes place in a couple. The communal coping model focuses on one specific type of coping (i.e. catastrophizing), and emphasizes the interpersonal aspect of pain coping. There is some evidence that a tendency to catastrophize is related both to couple interactions and pain coping, but it has proved difficult to test this model empirically. The interpersonal process model of intimacy is concerned with patient disclosures of distress and subsequent validating and invalidating partner responses. There is some preliminary support that such mechanisms of validation and invalidation can be linked to pain coping. A dyadic approach focuses on processes where the couple negotiates a shared meaning of events and participates in mutual coping of a shared stressor. This approach has not been investigated explicitly, but preliminary support can be derived from studies conducted within other frameworks.ConclusionsEach of the four approaches find some support in the research literature, yet none of them can explain the full range of couple interactions. We argue that the different approaches are complementary and that several of the approaches can be integrated in a dyadic understanding of pain coping.ImplicationsAll the models indicate that couple interactions can affect pain coping and that this should be taken into account when developing treatment programmes for chronic pain patients.

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Section: Research Findings the Significance Of Affective Interactionmentioning

confidence: 71%

Section: Discussionmentioning

confidence: 93%

Couples coping with chronic pain: How do intercouple interactions relate to pain coping?

Prenevost

Rème

2017

Scandinavian Journal of Pain

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“…This was reported with both high (macro) and microdoses. Effect duration varied and ranged from no relief beyond the acute experience to over a year-most contributors (8), regardless of dose taken, reported feeling reductions in pain for at least 3-5 days following their experience, with pain levels gradually increasing over time. Other changes were longer lasting though; most contributors (9) reported enduring increases in positive embodiment and interoception, which inspired a desire to treat the body better in the future.…”

Section: Discussionmentioning

confidence: 99%

Self-Medication for Chronic Pain Using Classic Psychedelics: A Qualitative Investigation to Inform Future Research

Bornemann

Spriggs

et al. 2021

Front. Psychiatry

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Background: Chronic Pain is among the leading causes of disability worldwide with up to 60% of patients suffering from comorbid depression. Psychedelic-assisted therapy has recently been found effective in treating a host of mental health issues including depression and has historically been found to be useful in treating pain. Reports of self-medication for chronic pain using psychedelic drugs have been widely documented, with anecdotal evidence indicating widespread success in a range of pathologies.Aims: In preparation for an upcoming trial, to better understand how those with lived experience of chronic pain self-medicate with psychedelic drugs, and to establish, in detail, their therapeutic protocols and practices for success.Methods: As part of patient-involvement (PI) for an upcoming trial in this population, 11 individuals who reported self-medicating with psychedelic drugs took part in a 1-h semi-structured discussion, which was then transcribed and thematically analyzed.Results: Across a range of psychedelic substances and doses, reported pain scores improved substantially during and after psychedelic experiences. Two processes, Positive Reframing and Somatic Presence, were reliably identified as playing a role in improvements in mental wellbeing, relationship with pain, and physical (dis)comfort. Inclusion of other strategies such as mindfulness, breathwork, and movement were also widely reported. Due to the data's subjective nature, this paper is vulnerable to bias and makes no claims on causality or generalisability. Together, these results have been used to inform study design for a forthcoming trial.Conclusion: This pre-trial PI work gives us confidence to test psychedelic therapy for chronic pain in a forthcoming controlled trial. The results presented here will be instrumental in improving our ability to meet the needs of future study participants.

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“…In fact, the current findings highlight a number of key issues in the parental injustice experience that are not captured in the adult, intrapersonal framework as proposed by Sullivan and colleagues (Sullivan et al., 2008). Specifically, no explicit reference is made to interpersonal injustice, even though its importance for patients’ well‐being has been documented in previous work (Walker & Pettigrew, 1984; Jordan et al., 2007; Jordan et al, 2011; McParland et al., 2011; Ferris et al., 2012; Karos, 2017; Wernicke, de Witt Huberts, & Wippert, 2017; Karos et al., 2018). Given this interpersonal dimension and the fact that maternal accounts described frequent negative interactions with health care providers, research may also benefit from studies focusing on other perspectives than that of the parent (e.g.…”

Section: Discussionmentioning

confidence: 99%

Mothers’ appraisals of injustice in the context of their child’s chronic pain: An interpretative phenomenological analysis

Baert

McParland

Miller

et al. 2020

European Journal of Pain

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Background: In line with research highlighting the role of observer appraisals in understanding individuals' pain experience, recent work has demonstrated the effects of parental child-and self-oriented injustice appraisals on child pain-related outcomes. However, research on parental injustice appraisals is in its infancy and lacks a valid and context-specific operationalization of what parental injustice appraisals of child pain precisely entail. The current study presents an in-depth qualitative analysis of parental child-and self-oriented appraisals of injustice in the context of their child's chronic pain. Methods: Twenty-one mothers of children living with chronic pain participated in one of five focus group interviews conducted in Ghent (Belgium), Glasgow (Scotland) and Indianapolis (USA). Results: The interviews were subjected to interpretative phenomenological analysis, which revealed three key justice-related themes, labelled 'You shouldn't be in this much pain', 'The problem's probably with the mother' and 'At least it's not cancer'. Maternal injustice appraisals focused mainly on the child rather than the self and reflected various perceived barriers to their efforts to provide quality of life for their child. A fourth theme labelled 'Not everybody gets a healthy child' reflected maternal strategies to effectively cope with the child's condition and the associated appraisals of injustice. Conclusions: The current findings attest to the relevance of (child-and self-oriented) injustice in the parental experience of caring for a child with chronic pain and provides insight into the specific content and scope of these appraisals. As such, this study provides valuable insights to further research in this area. Significance: The current study presents an in-depth qualitative analysis of parental appraisals of injustice in the context of their child's chronic pain condition. The findings provide valuable insights into the phenomenology of this construct and may inform future research and assessment methods. Furthermore, the themes reported in this study may contribute to clinical practice, as they may raise awareness of parental concerns regarding their child's pain management. | 1933 BAERT ET Al. 1 | INTRODUCTION The experience of pain is common in childhood and is usually temporary. However, a considerable proportion of children report chronic, long-term pain that has a significant impact on their everyday lives (e.g. impaired functioning, school absence and general distress) (

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The pain of being misunderstood: Invalidation of pain complaints in chronic low back pain patients

Cited by 27 publications

References 30 publications

Couples coping with chronic pain: How do intercouple interactions relate to pain coping?

Couples coping with chronic pain: How do intercouple interactions relate to pain coping?

Self-Medication for Chronic Pain Using Classic Psychedelics: A Qualitative Investigation to Inform Future Research

Mothers’ appraisals of injustice in the context of their child’s chronic pain: An interpretative phenomenological analysis

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