The paradoxical injunctions of partnership in care: Patient engagement and partnership between issues and challenges

Bouabida, Khayreddine; Pomey, Marie‐Pascale; Cyr, Geneviève; Aho-Glele, Ursulla; Chaves, Breitner Gomes

doi:10.35680/2372-0247.1538

Cited by 5 publications

(9 citation statements)

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“…The particularity of the AP role is that an AP becomes a full member of the team, developing interpersonal and interprofessional relationships with all parties in the healthcare network. However, the arrival of this new actor in clinical teams raises certain ethical questions, particularly regarding integration, contribution and recognition, in addition to issues of confidentiality and the loyalty conflicts that arise when exercising this role [ 3 , 4 ]. Researchers have addressed some of the ethical issues underlying the introduction of APs at different levels of the healthcare system, including highlighting emerging ethical issues [ 1 , 4 , 5 , 6 ] such as remuneration, tokenism, and the professionalization of this role [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review

Shankland

Ferrand

Ganache

et al. 2022

JPM

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In recent years, recognizing patients’ experiential knowledge to improve the quality of care has resulted in the participation of patient advisors at various levels of healthcare systems. Some who are working at the clinical level are called accompanying patients (AP). A PRISMA-ScR exploratory scoping review of the literature was conducted on articles published from 2005 to 2021. Articles not in English or French and grey literature were excluded. The databases searched included Medline, PubMed, Scopus, and Google Scholar. The data were organized according to the similarities in the ethical foundations of the included papers. Out of 2095 identified papers, 8 met inclusion criteria. Terms used to describe APs included peer support, resource parent, and peer health mediator. The clinical settings included psychiatry/mental health and neonatology. APs, patients, healthcare professionals, managers and policy makers were included in the studies. Three personal ethical foundations describing the foundations of the AP role were found: resilience, listening skills and altruism. The ethical foundations of this role also addressed interpersonal and interprofessional relationships with other actors in the healthcare system. The literature on the ethical foundations of APs is sparse, with heterogeneous methodologies. Further studies mobilizing well-defined methodologies would further validate the current results and deepen our understanding of the ethical foundations of the AP role.

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Section: Introductionmentioning

confidence: 99%

Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review

Shankland

Ferrand

Ganache

et al. 2022

JPM

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“…There is evidence to suggest that individuals struggling with low self-perception may be less likely to engage in self-care behaviors such as medication adherence. 38,39 In addition, individuals who use violence against their romantic partner may not receive optimal emotional support from said partner (eg, reminders and encouragement to take medication). Indeed, there is evidence to suggest that individuals with weak emotional support networks, including lack of partner support, may struggle with medication adherence.…”

Section: Discussionmentioning

confidence: 99%

Intimate partner violence and adherence to PrEP and ART among Ugandan HIV serodifferent couples

Thomas,

Nakabugo,

Nambi

et al. 2023

JAIDS Journal of Acquired Immune Deficiency Syndromes

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Background: Intimate partner violence (IPV) is associated with increased risk of HIV acquisition and reduced engagement in HIV care. There is limited understanding of the ways in which IPV exposure and other maladaptive relationship dynamics may influence adherence to antiretroviral treatment (ART) and pre-exposure prophylaxis (PrEP) for individuals in committed, HIV serodifferent partnerships. Methods We used binomial generalized linear mixed effect regression models to evaluate the association between IPV exposure and ART/PrEP adherence among members of serodifferent couples in Uganda. Secondarily, we assessed the association between relationship powerlessness and ART/PrEP adherence. Results: We enrolled and followed both partners in 149 heterosexual serodifferent couples. The partner living with HIV was female in 64% of couples. IPV exposure was associated with low ART adherence (15% vs. 5% in quarters with no IPV, odds ratio [OR]: 4.78, 95% confidence interval [CI] 1.48 – 15.42) but not low PrEP adherence (33% vs. 36%, p=0.69). Among HIV-negative individuals, those reporting moderate relationship powerlessness were less likely to have poor PrEP adherence compared to those with low relationship powerlessness (20% vs. 30%, OR: 0.57, 95% CI 0.36 – 0.90). We observed no association between relationship powerlessness and ART adherence. Conclusions: We found that IPV exposure was associated with low adherence to ART and that relationship powerlessness was associated with good adherence to PrEP. These findings contribute to the evidence base outlining the influence of IPV and relationship power on ART/PrEP adherence for individuals in HIV serodifferent unions.

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“…HIV (Human Immunodeficiency Virus) infection is a viral infection caused by the HIV virus (1)(2)(3)(4)(5)(6)(7)(8). HIV primarily targets and attacks the immune system, specifically the CD4 cells (also known as T-helper cells) that play a crucial role in coordinating the immune response against infections.…”

Section: Introductionmentioning

confidence: 99%

“…HIV primarily targets and attacks the immune system, specifically the CD4 cells (also known as T-helper cells) that play a crucial role in coordinating the immune response against infections. When a person becomes infected with HIV, the virus invades body tissues and replicates inside CD4 cells (1)(2)(3)(4)(5)(6)(7)(8). As the virus multiplies, it progressively weakens the immune system, making the person more susceptible to various infections and diseases (1)(2)(3)(4)(5)(6)(7)(8).…”

Section: Introductionmentioning

confidence: 99%

“…When a person becomes infected with HIV, the virus invades body tissues and replicates inside CD4 cells (1)(2)(3)(4)(5)(6)(7)(8). As the virus multiplies, it progressively weakens the immune system, making the person more susceptible to various infections and diseases (1)(2)(3)(4)(5)(6)(7)(8). Over time, HIV infection can progress to a more advanced stage known as AIDS (acquired immunodeficiency syndrome) (1)(2)(3)(4)(5)(6)(7)(8).…”

Section: Introductionmentioning

confidence: 99%

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Challenges and barriers to HIV care engagement and care cascade: viewpoint

Bouabida,

Chaves,

Anane

2023

Front. Reprod. Health

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Patients with human immunodeficiency virus (HIV) are subject to long-term management and a complex care process. Patients with HIV are clinically, socially, and emotionally vulnerable, face many challenges, and are often stigmatized. Healthcare providers should engage them with diligence in the HIV care cascade process. In this paper, we discuss from our viewpoint certain social and public health barriers and challenges that should be considered by healthcare providers to better engage patients in the HIV care cascade process and maximize its outcomes.

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The paradoxical injunctions of partnership in care: Patient engagement and partnership between issues and challenges

Cited by 5 publications

References 10 publications

Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review

Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review

Intimate partner violence and adherence to PrEP and ART among Ugandan HIV serodifferent couples

Challenges and barriers to HIV care engagement and care cascade: viewpoint

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