The Parent They Knew and the “New” Parent: Daughters' Perceptions of Dementia of the Alzheimer's Type

Furlini, Linda

doi:10.1300/j027v20n01_02

Cited by 18 publications

(19 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…), vacillating hopelessness (Duggleby et al . ), relationship changes (Furlini , Perry , Adams et al . ) and abandonment by one's community were identified elements of the pre‐death grief experience (Mayer , Sanders et al .…”

Section: Resultsmentioning

confidence: 99%

“…, p. 226). While some caregivers welcomed these periods of lucidity, others noted that the re‐surfacing of the PWDs’ past selves had an emotionally destabilizing effect (Furlini , Adams & Sanders ). The literature suggests that this vacillating presence is both welcomed and distressing for caregivers and may be an important condition that demarcates pre‐death grief from anticipatory grief and chronic sorrow.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Pre‐death grief in the context of dementia caregiving: a concept analysis

Lindauer

Harvath

2014

Journal of Advanced Nursing

104

108

View full text Add to dashboard Cite

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Pre‐death grief in the context of dementia caregiving: a concept analysis

Lindauer

Harvath

2014

Journal of Advanced Nursing

104

108

View full text Add to dashboard Cite

show abstract

“…13 Such conflicting realities between physically present vs psychologicallyabsent, and between irrevocable vs apparently temporal loss of selfhood can be confusing to the caregivers. 13,48,49 As such, the effects of the loss may not be fully appreciated by caregivers until later in time. Moreover, the latency of effect of grief may also indicate a period in time whereby some Fig.…”

Section: Discussionmentioning

confidence: 99%

Comparing the Effects of Grief and Burden on Caregiver Depression in Dementia Caregiving: A Longitudinal Path Analysis over 2.5 Years

Liew

Tai

Yap

et al. 2019

Journal of the American Medical Directors Association

View full text Add to dashboard Cite

Objectives: Caregivers of persons with dementia can experience loss and grief long before the death of the person. Although the phenomenon of caregiver grief has been increasingly described, it is uncertain if caregiver grief has independent effectsdseparate from the well-studied construct of caregiver burdendon adverse outcomes such as caregiver depression. We sought to compare the effects of baseline grief and burden on caregiver depression at baseline and 2.5 years later. Design and Setting: A cohort study with 2.5 years of follow-up. Participants: Family caregivers of community-dwelling persons with dementia (n ¼ 183). Measures: Participants completed questionnaires with scales that assessed caregiver grief, burden, and depression. Baseline grief and burden scores were included in a path analysis to predict depression at baseline and at 2.5 years. Results: At baseline, grief and burden had synergistic relationships with each other (P ¼ .012), where the high levels of grief amplified the effect of burden on caregiver depression. Both grief and burden had longitudinal effects on caregiver depression at 2.5 years (P <.001 and P ¼ .047, respectively), albeit with some differences in mechanism; both had effects which were indirectly mediated through baseline depression (P < .001 and P ¼ .002, respectively), but only grief had a direct path toward depression at 2.5 years (P ¼ .030), which was distinct from baseline depression. Conclusions and Implications: The findings highlight the need to identify and address caregiver grief in dementia services. They present a window of opportunity to improve caregiving outcomes, especially during the "latent phase" when caregivers encounter loss and grief but have yet to fully experience the debilitating effects of depression.

show abstract

“…Even with the apparent loss of personhood in the PWD, many of the PWD can still have periods of lucidity where their “former” selves resurface [9]. Daily contact with such vacillation in lucidity can be emotionally destabilizing to the caregivers [9, 21, 22] as they have to grapple with the uncertainty of loss.…”

Section: Discussionmentioning

confidence: 99%

Development and validation of a simple screening tool for caregiver grief in dementia caregiving

et al. 2019

View full text Add to dashboard Cite

Background Loss and grief are experienced by caregivers of persons with dementia (PWD), relating to the ambiguous loss of PWD even when they are still alive and the anticipation of future loss related to their physical death. Such experience of caregiver grief is not easily recognized in clinical practice, despite its association with adverse effects such as caregiver burden, caregiver depression and caregivers’ desire to place the PWD in nursing homes. We constructed a simple screening tool – based on factors associated with caregiver grief – to identify caregivers with high grief. Methods Spouses or children of community-dwelling PWD ( n = 403) completed self-administered questionnaires containing a well-established grief scale and information related to the caregiver and PWD. We split the study sample into two – the derivation sample ( n = 300) was used to identify factors associated with grief (using logistic regression) and derive a simple tool based on the number of identified factors; the validation sample ( n = 103) evaluated the performance of the tool using the receiver-operating-characteristic-curve-analysis (ROC). Results Four key factors were identified by the multivariable regression – more severe dementia (odds ratio, OR 6.9), behavioral problems in PWD (OR 5.0), spousal caregivers (OR 6.0) and daily caregiving (OR 3.0). The screening tool (based on the number of key factors) had an area under ROC of 0.77. At the optimal cut-off of ≥2 key factors, the tool had a sensitivity of 0.91 and a specificity of 0.42. Conclusions The identified factors are consistent with current understanding on caregiver grief. They can be easily integrated into the workflow of routine services to screen for caregivers who are more likely to benefit from further grief-related assessment. Electronic supplementary material The online version of this article (10.1186/s12877-019-1070-x) contains supplementary material, which is available to authorized users.

show abstract

The Parent They Knew and the “New” Parent: Daughters' Perceptions of Dementia of the Alzheimer's Type

Cited by 18 publications

References 17 publications

Pre‐death grief in the context of dementia caregiving: a concept analysis

Pre‐death grief in the context of dementia caregiving: a concept analysis

Comparing the Effects of Grief and Burden on Caregiver Depression in Dementia Caregiving: A Longitudinal Path Analysis over 2.5 Years

Development and validation of a simple screening tool for caregiver grief in dementia caregiving

Contact Info

Product

Resources

About