The Parkinson's Disease Questionnaire (PDQ-39): development and validation of a Parkinson's disease summary index score

Jenkinson, Crispin; Fitzpatrick, Ray; Peto, Viv; Greenhall, Richard; Hyman, Nigel

doi:10.1093/ageing/26.5.353

Cited by 1,035 publications

(765 citation statements)

References 8 publications

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“…14 The primary outcomes of interest were balance function measured on the Berg Balance Scale, 15,16 motor impairment measured using the Unified Parkinson's Disease Rating Scale-Subsection 3 (UPDRS-3), 16,17 and functional mobility measured using the Timed Up and Go Test. 16 Secondary outcomes of interest were endurance assessed using the 6-minute walk test, 18,19 quality of life assessed on the Parkinson's Disease Questionnaire-39, 20,21 and activity and participation as measured on the Physical Activity Scale for the Elderly. 14,22 If studies used more than 1 measurement tool to assess the same outcome (primary or secondary), information regarding only the measurement tool listed was reviewed.…”

Section: Outcomes Of Interestmentioning

confidence: 99%

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Dance for People With Parkinson Disease: What Is the Evidence Telling Us?

Shanahan

Morris

Bhriain

et al. 2015

Archives of Physical Medicine and Rehabilitation

149

118

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Objectives: (1) To appraise and synthesize the literature on dance interventions for individuals with Parkinson disease (PD); (2) to provide information regarding the frequency, intensity, duration, and type of dance used in these programs; and (3) to inform the development of future studies evaluating dance interventions in this population. Data Extraction: Data regarding participants and the frequency, intensity, duration, and type of dance form used were extracted. The effect that each dance program had on defined outcomes and the feasibility of each program were also reviewed. DataData Synthesis: Thirteen articles were identified. The quality of studies varied, and methodological limitations were evident in some. The evidence evaluated suggests that two 1-hour dance classes per week over 10 to 13 weeks may have beneficial effects on endurance, motor impairment, and balance.Conclusions: Dance may be helpful for some people with PD. This article provides preliminary information to aid clinicians when implementing dance programs for people with PD. Higher-quality multicenter studies are needed to determine the effect of other dance genres and the optimal therapy volume and intensity.

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Section: Outcomes Of Interestmentioning

confidence: 99%

“…[14][15][16][17][18][19][20][21][22][42][43][44][45] The only exceptions were the Semi-tandem Test, the MDS-UPDRS-3, the Activity Card Sort, and the modified version of the Quality of Life Scale. To our knowledge, the Semi-tandem Test is usually performed as part of a battery of tests rather than as a single balance test.…”

Section: Selectionmentioning

confidence: 99%

Dance for People With Parkinson Disease: What Is the Evidence Telling Us?

Shanahan

Morris

Bhriain

et al. 2015

Archives of Physical Medicine and Rehabilitation

149

118

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“…Nighttime and daytime sleep problems were evaluated using the Pittsburgh Sleep Quality Index (PSQI) (Buysse, Reynolds, Monk, Berman, & Kupfer, 1989) and the Epworth Sleepiness Scale (ESS), respectively (Chen et al., 2002; Johns, 1991). We evaluated the sleep problems that might be relevant to PD symptoms by using the Parkinson's Disease Sleep Scale (PDSS) (Chaudhuri et al., 2002), and the quality of life of PD patients was assessed using the 39‐Item Parkinson's Disease Questionnaire (PDQ‐39) (Jenkinson, Fitzpatrick, Peto, Greenhall, & Hyman, 1997). …”

Section: Methodsmentioning

confidence: 99%

Sleep disturbances in Taiwanese patients with Parkinson's disease

Lin

Chen

et al. 2017

Brain and Behavior

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IntroductionSleep disturbance is a common nonmotor symptom of Parkinson's disease (PD) and strongly affects patients’ quality of life. The relationship between excessive daytime sleepiness (EDS) and nighttime problems remains uncertain. Arguments persist regarding the risk factors for sleep disturbance among patients with PD. Furthermore, the prevalence of EDS appears to be lower in Asian countries. Herein, we conducted the study to describe the characteristics of sleep problems in a sample of Taiwanese PD patients and delineate the difference with reported sleep disturbances in Caucasian PD patients from the literature.MethodsPatients with PD were recruited from the outpatient clinic of a tertiary medical center and were evaluated using standardized assessment protocols, including the Parkinson's Disease Sleep Scale (PDSS), the Pittsburgh Sleep Quality Index (PSQI), Epworth Sleepiness Scale (ESS), and 39‐Item Parkinson's Disease Questionnaire (PDQ‐39).ResultsA total of 225 patients with PD were recruited. The mean age of patients with PD was 65.7 years old and the mean disease duration was 8.18 years. Among the patients, 53.8% were defined as poor sleepers (PSQI > 5) and 26.3% had EDS. Seventy‐one percent of the poor sleepers used hypnotic medications. The poor sleepers were worse in the scores of Unified Parkinson's Disease Rating Scale (UPDRS), PDSS, and the PDQ‐39, and received higher levodopa daily dosage. A PDSS score of <126 indicate that a patient with PD was a poor sleeper. EDS was positively correlated with advanced Hoehn and Yahr stages and use of dopamine agonists but not with levodopa daily dosage and levodopa equivalent daily dosage.ConclusionsTaiwanese patients with PD had a lower prevalence of EDS compared with the literatures reported in Caucasian patients. We identify and suggest that PDSS total score, rather than subcategory items, should be used to predict poor sleep among patients with PD.

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“…An occupational therapist who had specific training for this purpose and who was blinded to the other parts of the research applied the Unified Parkinson's Disease Rating Scale (UPDRS) and the 39-item PD quality of life scale (PDQ-39) validated to Brazilian Portuguese [6]. Assessments were performed either at baseline and 4 weeks after the intervention.…”

Section: Study Proceduresmentioning

confidence: 99%