The Participation of Patients and Relatives in Quebec’s Health System: The Montréal Model

Pomey, Marie‐Pascale; Dumez, Vincent; Boivin, Antoine; Rouly, Ghislaine; Lebel, Paule; Berkesse, Alexandre; Descôteaux, Annie; Jackson, Mathieu; Karazivan, Philippe; Clavel, Nathalie

doi:10.1007/978-3-030-14101-1_3

Cited by 12 publications

(16 citation statements)

References 25 publications

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“…In addition to on-site patients and clinicians, we also invited patient partners affiliated with the Patient Collaboration and Partnership branch of our university’s Faculty of Medicine [ 27 ] to take part in the study. These patient partners are formally trained and experienced in the mobilization of their experiential knowledge to improve care and health research alongside professionals [ 28 ]. As such, we felt that their inclusion would enhance the quality of the communication process.…”

Section: Methodsmentioning

confidence: 99%

What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study

2023

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Background Cardiovascular diseases are the leading cause of death and disability worldwide. Little is known about the organizational priorities of patients and clinicians involved in primary cardiovascular care. This study aimed to identify their shared top priorities and explore on which aspects their perspectives differed. Methods A three-round modified online Delphi study was carried out with patients and clinicians in seven academic primary care settings from metropolitan, suburban and small-town areas in Quebec, Canada. Patient partners experienced in the mobilization of their experiential knowledge also participated in the study. Following an “open” round, the items elicited were assessed by a combined rating and ranking approach. Items achieving an initial consensus level ≥70% were reassessed and then rank-ordered based on their final scores. Levels of consensus achieved among patients and clinicians were compared using Fisher’s Exact tests. Results Thirty panelists completed the study (9 clinic patients, 7 patient partners and 14 clinicians). Out of 41 organizational aspects generated, six top priorities were shared by patients and clinicians. These related to listening and tailoring care to each patient, provision of personalized information, rapid response in the event of a problem, keeping professional training up-to-date, and relational and informational continuity of care. Statistically significant differences were found between patients’ and clinicians’ perspectives regarding the importance of offering healthy lifestyle and prevention activities at the clinic (lower for patients), timely access to the treating physician (higher for patients), and effective collaboration with specialist physicians (higher for patients). Conclusion Although their views differ on some organizational aspects, patients and clinicians share a small set of top priorities for primary cardiovascular care that may be transferable to other chronic diseases. These top priorities should remain a central focus of clinical settings, alongside other primary care reform goals.

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Section: Methodsmentioning

confidence: 99%

What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study

2023

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“…Nous répondrons ici à la question qui nous a été posée à partir de notre prisme d’acteurs et témoins engagés comme citoyens, proches-aidants et chercheurs qui nous a amené à vivre, côtoyer, et à collaborer au quotidien avec des personnes vivant avec une ou plusieurs maladies chroniques. En outre, nous avons développé depuis plus de dix ans une expertise de l’accompagnement des personnes vivant avec la maladie chronique, du partenariat soignés/soignants et de « l’expérience-patient » comme en témoignent nos diverses contributions [3] , [4] , [5] , [6] . Autrement dit, notre analyse est conditionnée par cette éthique coopérative et ces référentiels.…”

Section: Pourquoi Apprendre De L’expérience ?unclassified

Quels enseignements tirer de l’expérience de la pandémie de la COVID-19 dans l’accompagnement des patients chroniques ?

Berkesse

Groß

2021

Médecine des Maladies Métaboliques

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“…Following Fricker (2007), such exclusion lies in the fact that those individuals and social groups still do not constitute good informants, with regard to their capacity to produce knowledge that is conceived a priority from the dominant perspective. Engaging populations experiencing circumstances of vulnerability was already recognized as a major challenge before the pandemic (Loignon et al, 2019;Pomey et al, 2019). The shift to online activities is widening disparity since it may reinforce the current trend toward the recruitment of well-resourced, educated and privileged patients (Sharma, 2018).…”

Section: How Does Testimonial Injustice Apply To Medical Education In the Covid-19 Context?mentioning

confidence: 99%

Patient Engagement in Medical Education During the COVID-19 Pandemic: a Critical Reflection on an Epistemic Challenge

Massé¹,

Poulin²,

Côté³

et al. 2021

MedEdPublish

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Epistemic injustices are defined as inequalities of power in the access, recognition and production of knowledge. Their persistence in medical education, especially to the detriment of patients and their specific knowledge, has been documented by several authors. Patient engagement is a new paradigm that involves fostering meaningful patient collaboration at different levels of the healthcare system. Since it is fundamentally based on the recognition of the value and relevance of patients' experiential knowledge, patient engagement in medical education is generally recognized as a desirable strategy to address epistemic injustices in the field. Patient engagement is challenged in the context of COVID-19 where most Canadian medical schools have had to modify their teaching models in a short period of time, stop in-person classes and redirect most activities online. This article presents a critical reflection on the issues raised by COVID-constrained teaching strategies and their impact on epistemic injustices in medical education. It also suggests strategies to favour epistemic justice in medical education despite the pandemic turmoil and online shift. It therefore adds an epistemological perspective to the reflection on the effects of the pandemic on medical education and training, which has been little discussed so far.

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The Participation of Patients and Relatives in Quebec’s Health System: The Montréal Model

Cited by 12 publications

References 25 publications

What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study

What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study

Quels enseignements tirer de l’expérience de la pandémie de la COVID-19 dans l’accompagnement des patients chroniques ?

Patient Engagement in Medical Education During the COVID-19 Pandemic: a Critical Reflection on an Epistemic Challenge

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