The Patient Experience of Integrated Care Scale: A Validation Study among
                        Patients with Chronic Conditions Seen in Primary Care

Joober, Heithem; Chouinard, Maud‐Christine; King, Jenny; Lambert, Mireille; Hudon, Émilie; Hudon, Catherine

doi:10.5334/ijic.4163

Cited by 18 publications

(10 citation statements)

References 17 publications

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“…The quality of clinical training, mentorship, supervision and review meetings could influence impact. Moreover, the health extension worker's relationships with the community, other contextual factors, and the wide range of tasks given to these workers can hugely affects their performance [34][35][36][37][38][39][40][41][42][43][44][45].…”

Section: Plos Onementioning

confidence: 99%

Quality of clinical assessment and management of sick children by Health Extension Workers in four regions of Ethiopia: A cross-sectional survey

et al. 2020

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Background Care-seeking for sick children at the Ethiopian primary health care level is low. This problem may partly be due to unfavorable community perceptions of the quality of care provided. There is, however, limited knowledge on the quality of the clinical assessment and management provided by the health extension workers at the health posts. This study aimed to examine the quality of clinical assessment, classification and management provided to sick under-five children by health extension workers in four regions of Ethiopia. Methods Clinical observations of 620 consultations of sick children by health extension workers were conducted from December 2016 to February 2017. A clinical pathway analysis was performed to analyze whether sick children were appropriately assessed, classified and managed according to the integrated Community Case Management guidelines. Results Most sick children presented with complaints of cough (58%), diarrhea (36%), and fever (26%).Three quarters of children with respiratory complaints had their respiratory rate counted (74%, 95% CI 69-78), while a third (33%, 95% CI 27-40) of children with diarrhea were assessed for dehydration. Half (53%, 95% CI 49-57) of the sick children were assessed for general danger signs, while a majority (89%, 95% CI 86-92) had their arm circumference measured for malnutrition. Half of the sick children received some treatment and less than one-fifth were referred according to the integrated Community Case management guidelines. Comprehensive counseling was provided to 38% (95% CI 35-42) of the caregivers.

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Section: Plos Onementioning

confidence: 99%

Quality of clinical assessment and management of sick children by Health Extension Workers in four regions of Ethiopia: A cross-sectional survey

et al. 2020

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“…The questionnaire was created from the validated French versions of the three following tools: the population questionnaire (Q.pop), 33 the Patient Experience of Integrated Care Scale 34 and the Person-Centered Primary Care Measure. 35 …”

Section: Methods and Analysismentioning

confidence: 99%

Protocol for an implementation and realist evaluation of a new organisational model for primary care practices in the canton of Vaud, Switzerland

et al. 2020

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IntroductionContinuity of care, especially for patients with complex needs, is a major challenge for healthcare systems in many high-income countries, including Switzerland. Since 2015, a collaborative project between Unisanté-Department of Family Medicine (DMF), some general practitioners (GPs) and canton of Vaud’s public health authorities has sought to develop a new organisational model for the provision of primary care to ensure better care coordination and to provide adapted care deliveries to patients’ healthcare needs. The model’s main component is the addition of a primary care nurse to GPs practices. Three additional tools are individualised patient care plans, electronic medical records and patient empanelment. To assess this model, a 2-year pilot study has begun in nine GPs’ practices in the canton. This paper presents the protocol for an evaluation of the implementation and effectiveness of the new organisational model.Method and analysisWe will conduct a before-and-after study using a mixed-methods and a realist approach. First, we will use quantitative and qualitative data to assess the new organisational model’s implementation (feasibility, fidelity, acceptability and costs) and effectiveness (healthcare services use, patient experience, staff experience and patient-level costs). Combining this data with focus group data will enable a realist evaluation of the pilot project, which will help understand the elements of context and mechanism that affect implementation.Ethics and disseminationThe evaluation will inform the canton of Vaud’s health authorities about the limits of and perspectives for this organisational model. All results will also be made available to the practices and the patients involved. At the end of the project, we will propose organisational adaptations and a sustainable financial model for extending the model to other practices in the canton and potentially to the national level.The canton of Vaud’s Human Research Ethics Committee approved the study, and Data Protection and Information Law Authority gave a favourable opinion concerning data processing procedures.

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“…The PriCARE research program underwent evaluation employs a mixed-method data collection approach, including self-administered questionnaires. Based on a literature review, instruments were carefully selected to measure several variables, such as health literacy [19,20], multimorbidity [21,22], care integration [23,24], self-management [25,26], quality of life [27,28] and psychological distress [29,30].…”

Section: The Patient Questionnairesmentioning

confidence: 99%

Reconciling Validity and Challenges of Patient Comfort and Understanding: Guidelines to Patient-Oriented Questionnaires

Hudon

Danish

Lambert

et al. 2021

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Background: Patient-reported outcomes measures (PROMs) are widely recognized as important tools for achieving a patient-centered approach in health research. While PROMs are subject to several stages of validation during development, even questionnaires with robust psychometric properties may pose problems for targeted patients. Challenges can rise for reasons of clarity, understanding, comfort, or the complexity of the patient’s situation (e.g., their health needs). How can good practices in questionnaire development and validation on one hand, and challenges of accommodating patient comfort and understanding on the other hand be reconciled? Building on the experience of patient engagement in the PriCARE research program, this paper aims to propose: 1) steps to address challenges of patient comfort and understanding of the questionnaires and to reach consensus, and 2) patient-oriented guidelines for administrating the questionnaires. Methods: Based on a participatory approach and the patient engagement framework in the Strategy for Patient-Oriented Research of the Canadian Institutes of Health Research, team members, including patient partners, worked together to discuss the problem, review the questionnaires, and come up with different solutions. Based on literature presenting similar processes in research projects, a working group was created to produce guidelines for administering the questionnaires. We present a step-by-step description of strategies used in PriCARE, to reconcile good research practices for using validated questionnaires and the challenges in questionnaire development related to patient comfort and understanding. Results: This paper demonstrates how patient partners were engaged in PriCARE and integrated into the program’s governance structure, the challenges they raised regarding the questionnaires, and how the challenges were addressed in a six-step approach: 1) Recognizing patient partner concerns, discussing these concerns, and reframing the challenges; 2) Detailing and sharing evidence of the validity of the questionnaires; 3) Evaluating potential solutions; 4) Searching literature for guidelines; 5) Creating guidelines; 6) Sharing and refining guidelines. Conclusion: This six-step approach demonstrates how research teams can integrate patient partners as equal members, develop meaningful collaboration through recognition of individual experiences and expertise, and ensure the patient perspective is taken into consideration in questionnaire research, the development of data collection tools, and healthcare innovation in general.

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The Patient Experience of Integrated Care Scale: A Validation Study among Patients with Chronic Conditions Seen in Primary Care

Cited by 18 publications

References 17 publications

Quality of clinical assessment and management of sick children by Health Extension Workers in four regions of Ethiopia: A cross-sectional survey

Quality of clinical assessment and management of sick children by Health Extension Workers in four regions of Ethiopia: A cross-sectional survey

Protocol for an implementation and realist evaluation of a new organisational model for primary care practices in the canton of Vaud, Switzerland

Reconciling Validity and Challenges of Patient Comfort and Understanding: Guidelines to Patient-Oriented Questionnaires

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