The patient–provider discordance in patients’ needs assessment: a qualitative study in breast cancer patients receiving oral chemotherapy

Chen, Wei; Nengliang, Yao; Wang, Yan; Fang, Qiong; Yuan, Changrong

doi:10.1111/jocn.13374

Cited by 23 publications

(27 citation statements)

References 27 publications

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“…There was one theme related to physical wellness, support of physical well-being, and four themes related to emotional support: have to do this, I have to do this'…they don't even question…He's God…that faith cures people more than other stuff but yet if you see among the general populace especially the urban, without counseling, they're suffering a huge lot. 68(p395) General values Autonomy [40][41][42] Hope 42,43 Being involved 40,[44][45][46][47] Being listened to 45,47 Being involved in decision-making 40,44,46 Taking action 42,43 Family 40,42,43 Normality 42,[48][49][50][51] Sincerity 41,47 Needs Care coordination 40,42,43,45,49,[52][53][54][55][56][57] Timely care access and scheduling 44,49,54,55,58 Advising/Answering patient questions 43,45,…”

Section: Needsmentioning

confidence: 99%

Operationalizing patient‐centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences

Mitchell

Brassil²,

Rodriguez

et al. 2020

Psycho-Oncology

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Objective: Efficiently addressing patient priorities and concerns remains a challenge in oncology. Systematic operationalization of patient-centered care (PCC) can support improved assessment and practice of PCC in this unique care setting. This review aimed to synthesize the qualitative empirical literature exploring the National Academy of Medicine (NAM)'s PCC constructs of values, needs, and preferences among patients' during their cancer treatment experiences. Methods: A systematic review of qualitative studies published between 2002 and 2018 addressing adult patient values, needs, and preferences during cancer treatment was conducted. Medline, EMBASE, PsycINFO, and SCOPUS databases were searched on September 10, 2018. Methodological rigor was assessed using a modified version of the Evaluation Tool for Qualitative Studies. Included study findings were analyzed using line-by-line coding; and the emergent themes were compared to the National Academy of Medicine (NAM)'s PCC dimensions. Results: Twenty-nine primary studies were included in the synthesis. Descriptive themes for values (autonomy, being involved, family, hope, normality, and sincerity), needs (care coordination, information, privacy, support of physical well-being, emotional support (family/friends, peer, provider), and self-support), and preferences (care coordination, decision-making, information delivery, source of social support, and treatment) were identified. "Cancer care context" emerged as an important domain in which these constructs are operationalized. This thematic framework outlines PCC attributes that oncology care stakeholders can evaluate to improve patient experiences. Conclusions: These findings build on previous PCC research and may contribute to the systematic assessment of patient priorities and the improvement of oncology care quality from the patient perspective.

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Section: Needsmentioning

confidence: 99%

Operationalizing patient‐centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences

Mitchell

Brassil²,

Rodriguez

et al. 2020

Psycho-Oncology

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“…The importance of interpersonal relationships and of the quality of the physician-patient relationship has been known and reported repeatedly in the literature [ 36 , 37 ]. Our results describe an original aspect of what directly and positively affects patients’ quality of daily life: involvement with a support object.…”

Section: Discussionmentioning

confidence: 99%

Patients’ quality of life during active cancer treatment: a qualitative study

et al. 2018

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BackgroundPatients’ quality of life has become a major objective of care in oncology. At the same time, it has become the object of increasing interest by researchers, working with both quantitative and qualitative methods. Progress in oncology has enabled more patients to survive longer, so that cancer is increasingly often a chronic disease that requires long-term treatment that can have negative effects on patients’ quality of daily life. Nonetheless, no qualitative study has explored what patients report affects their quality of daily life during the treatment period. This study is intended to fill this gap.MethodsWe conducted a multicenter qualitative study based on 30 semi-structured interviews. Participants, purposively selected until data saturation, had diverse types of cancer and had started treatment at least 6 months before interview. Data were examined by thematic analysis.ResultsOur analysis found two themes: (1) what negatively affected for patient’s quality of daily life during the treatment period, a question to which patients responded by talking only about the side effects of treatment; and (2) what positively affected their quality of daily life during the treatment period with three sub-themes: (i) The interest in having —investing in — a support object that can be defined as an object, a relationship or an activity particularly invested by the patients which makes them feel good and makes the cancer and its treatment bearable, (ii)The subjective perception of the efficacy of the antitumor treatment and (iii) the positive effects of relationships, with friends and family, and also with their physician.ConclusionsPatients must be involved in their care if they are to be able to bear their course of treatment and find ways to endure the difficult experience of cancer care. The support object represents an important therapeutic lever that can be used by their oncologists. They should be interested in their support objects, in order to support the patients in this investment and to help them to maintain it throughout the health care pathway. Furthermore, showing interest in this topic, important to the patient, could improve the physician-patient relation without using up very much of the physician’s time.

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“…The search for the network support of professionals is decisive for overcoming this long phase caused by this symptom. Nurses must develop a plan of holistic care, especially in relation to home care, where the woman, along with her family support network, will demonstrate her needs, as well as those of the family member or the nearest caregiver (18) .…”

Section: Asked To Make the Prosthesis; It Was Very Similar To My Hamentioning

confidence: 99%

Perception of women with breast cancer undergoing chemotherapy: a comprehensive analysis

et al. 2019

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Objective: To comprehensively analyze the perception of women with breast cancer on the experience of undergoing chemotherapy. Method: This was a qualitative, descriptive, phenomenological study, supported by the Merleau-Ponty philosophy. It was conducted in a chemotherapy outpatient clinic with 20 participants who completed a phenomenological interview. Results: The phenomenological data analysis demonstrated that the perception of women about the experience of chemotherapy is about change, not only of the physical body, but of their identity, and that it considers existential aspects. Three categories emerged from the experience of alopecia, fatigue, and spirituality, respectively: the body itself, the current and habitual body, and transcendence. Final considerations: Bodily changes, and the existential implications perceived by the women in this study, analyzed from the Merleau-Ponty perspective, makes it possible to consider body concept, and provides support for humanized care based on singularity and the socio-cultural context. Descriptors: Breast Neoplasms; Drug Therapy; Nursing Care; Oncology Nursing; Philosophy Nursing. RESUMOObjetivo: Analisar compreensivamente a percepção de mulheres com câncer de mama sobre a vivência da quimioterapia. Método: Trata-se de um estudo de natureza qualitativa, descritivo, do tipo fenomenológico, respaldado na filosofia de Merleau-Ponty. Foi realizado em um ambulatório de quimioterapia e contou com 20 participantes que foram submetidas a entrevista fenomenológica. Resultados: A partir da análise fenomenológica dos dados, compreendeu-se que a percepção das mulheres sobre a vivência da quimioterapia é de mudança, não só de corpo físico, mas de identidade e alcança aspectos existenciais. A partir da vivência da alopecia, fadiga e espiritualidade emergiram três categorias respectivamente: o corpo próprio, o corpo atual e habitual e a transcendência. Considerações finais: A mudança de corpo e suas implicações existenciais percebidas pelas mulheres no estudo, analisadas sob a ótica Merleau-Pontyana, possibilitam abranger a concepção de corpo, fornecendo subsídios para o cuidado humanizado a partir da singularidade e do contexto sociocultural. Descritores: Neoplasias da Mama; Tratamento Farmacológico; Cuidado de Enfermagem; Enfermagem Oncológica; Filosofia em Enfermagem. RESUMENObjetivo: Analizar exhaustivamente la percepción de las mujeres con cáncer de mama sobre la experiencia de la quimioterapia. Método: Este fue un estudio cualitativo, descriptivo, fenomenológico, respaldado por la filosofía Merleau-Ponty realizada en una clínica ambulatoria de quimioterapia con 20 participantes que se sometieron a una entrevista fenomenológica. Resultados: El análisis fenomenológico de los datos demostró que la percepción de las mujeres sobre la experiencia de la quimioterapia tiene que ver con el cambio, no solo del cuerpo físico, sino de la identidad y el alcance de los aspectos existenciales. De la alopecia, fatiga y espiritualidad emergieron tres categorías respectivamente: el cuerpo m...

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The patient–provider discordance in patients’ needs assessment: a qualitative study in breast cancer patients receiving oral chemotherapy

Abstract: Oncology nurses should develop a holistic home-based care plan by exploring and integrating the discordance of needs assessment of both patients and health providers.

Cited by 23 publications

References 27 publications

Operationalizing patient‐centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences

Operationalizing patient‐centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences

Patients’ quality of life during active cancer treatment: a qualitative study

Perception of women with breast cancer undergoing chemotherapy: a comprehensive analysis

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