The patient with dementia, the caregiver and the doctor: cognition, depression and quality of life from three perspectives

Abstract

The study suggests that patients with mild to moderate dementia and MCI are important informants of their HRQOL and depressive symptoms, but they underestimate their cognitive deficits. Assessing different perspectives of the patients' HRQOL is relevant in order to obtain a comprehensive understanding of the patients' well-being.

Calidad de vida y estado de salud en personas mayores de 60 años con demencia institucionalizadas

“…Distintos estudios indican que los cuidadores tienden a infravalorar la CdV de los sujetos con demencia mientras que los pacientes tienden a dar mejores puntuaciones en CdV, especialmente en estadios avanzados de la enfermedad, por lo que la relación entre dichas variables no es directa [35][36][37][38][39] .…”

Vorsicht mit dem Begriff Lebensqualität!

“…Es gibt eine Unzahl von Fragebögen, um die Einschätzung der Betroffenen selbst zu erheben, denn die Lebensqualität kann nicht von Aussenstehenden, und somit auch nicht von Gesundheitsfachpersonen bewertet werden. Auch ist klar, dass unterschiedliche Messinstrumente angezeigt sind, je nachdem ob es sich um eine onkologische Patientin [4] oder eine betagte oder gar demente Person handelt [5,6].…”

The Health-Related Quality of Life of Adults with Down Syndrome

“…The EuroQol EQ-5D is an instrument that examines five domains of HRQOL: "mobility, hygiene, usual activities, pain/discomfort, and anxiety/depression" (Jonsson et al, 2006, p. 50). As discovered by Arlt et al (2008), self-reported HRQOL was higher than proxy-reported HRQOL. The discrepancy in the self-reported and proxy-reported HRQOL could be attributed to the impaired ability of adults with dementia to interpret and understand questions and express themselves (Jonsson et al, 2006).…”

“…Fujiura and Behrens (2011) recognized and attempted to address this challenge by adapting the SF-12 to create a subjective survey of adults with IDD, indicating that the success of this attempt was limited, and further research was needed. Arlt et al (2008) suggested that a scrupulous understanding of the subjective health reports of an individual unable to thoroughly answer for himself/herself may be obtained from input from the individual, the caregiver, and the health-care provider.…”

“…A comparison between self-and proxy-report was made by Arlt et al (2008) on the HRQOL of 100 individuals with dementia, ranging from 48-92 years of age. Arlt et al noted that self-report in individuals with mild to moderate dementia was accurate and reliable.…”