The Pediatric Measure of Participation (PMoP) short forms

Abstract

The study was funded by the Shriners Hospitals for Children Research Grant 79142 (Mulcahey, PI) and the Boston ROC Grant 5R24HD065688-05 (Jette, PI).

Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set

“…The domains reflect those that are discussed in the literature [10,21,22,27,30,34]. Many of the variables have been taken or adapted from existing instruments or forms [28][29][30][33][34][35][36][37] that are used for educational assessment. Only items that were considered internationally relevant were included in the basic data set.…”

“…(1) The working group reviewed existing literature and measures for education and education in relation to children and adolescents with disabilities, including SCIs [10,[18][19][20][21][22][23][24][25][26][27]. (2) Existing instruments, surveys, The National Institute Neurological Diseases and Stroke (NINDS) SCI common data elements, proceedings and studies [28][29][30][31][32][33][34][35][36][37] that contained school and education related items were examined to create a preliminary draft of the data set.…”

“…The following four items were drawn from the Pediatric Measure of Participation (PMoP) [28]. The codes for these variables describe whether or not the student participates in the school activity, and the degree to which they do so based on their desire to engage as coded as one of the following: "I don't do it"; "I do it a lot less than I want"; "I do it a little less than I want"; "I do it as much as I want".…”

The International Spinal Cord Injury Pediatric Activity and Participation Basic Data Set

“…Existing instruments for measurement of pediatric activity and participation [13][14][15][16][17][18][19][20][21][22][23][24][25] were reviewed from which an initial draft data set was developed. The initial draft contained three domains, activities of daily living (ADLs), physical activities, and participation, comprised of items adapted from The Spinal Cord Independence Measure Self-Report for Youth (SCIM-III SR-Y) [18], the Physical Activity Questionnaire for Older Children (PAQ-C) [16,24], and the Pediatric Measure of Participation short forms [25]. Because an International SCI Education Basic Data Set [26] was being developed in parallel to the development of the International SCI Pediatric Activity and Participation, school participation variables were not included on the A&P data set.…”

Content development, accessibility and feasibility of a self‐report tool for use in programmes serving youth with cognitive disabilities: The Participatory Experience Survey

“…Although self-report measures of participation in CBRL activities exist for children and youth with disabilities, these measures have primarily been validated with young people with physical and communication disabilities (King et al, 2007;McDougall, Bedell & Wright, 2013;Mulcahey et al, 2016). These instruments typically focus on the types of activities done, who they are done with and whether they are enjoyable or not.…”