The Perceived Medical Condition Self-Management Scale can be applied to patients with chronic kidney disease

Abstract

Chronic Kidney Disease (CKD) is a major burden on patients and the healthcare system. Treatment of CKD requires dedicated involvement from both caretakers and patients. Self-efficacy, also known as perceived competence, contributes to successful maintenance of patient’s CKD self-management behaviors such as medication adherence and dietary regulations. Despite a clear association between self-efficacy and improved CKD outcomes, there remains a lack of validated self-report measures of CKD self-efficacy. To address this gap, the Perceived Kidney/Dialysis Self-Management Scale (PKDSMS) was adapted from the previously validated Perceived Medical Condition Self-Management Scale. We then sought to validate this using data from two separate cohorts: a cross-sectional investigation of 146 patients with end-stage renal disease receiving maintenance hemodialysis and a longitudinal study of 237 patients with CKD not receiving dialysis. The PKDSMS was found to be positively and significantly correlated with self-management behaviors and medication adherence in both patient cohorts. The PKDSMS had acceptable reliability, was internally consistent, and exhibited predictive validity between baseline PKDSMS scores and self-management behaviors across multiple time points. Thus, the PKDSMS is a valid and reliable measure of CKD patient self-efficacy and supports the development of interventions enhancing perceived competence to improve CKD self-management.

Understanding How Nutrition Literacy Links to Dietary Adherence in Patients Undergoing Maintenance Hemodialysis: A Theoretical Exploration using Partial Least Squares Structural Equation Modeling

“…Self-management skills were assessed using a valid and reliable tool known as the Perceived Kidney/Dialysis Self-Management Scale (PKDSMS). It had a reported Cronbach’s alpha of 0.760 in the HD population [ 66 ]. Moreover, the scores of PKDSMS were correlated with the self-management behaviours, self-reported health status and serum phosphate in the HD population [ 66 ].…”

Psychometric evaluation of the culturally and linguistically translated Vietnamese chronic kidney disease self‐management instrument

“…In CKD, regardless of the stage of the disease or whether a person is receiving dialysis, education can improve self‐management behaviours and clinical outcomes (Bonner et al, ; Joboshi & Oka, ; Lee et al, ; Lin et al, ; Lopez‐Vargas, Tong, Howell, & Craig, ; Welch et al, ) yet there are few suitable patient‐reported outcome measures (PROMs) for this population. The Perceived Kidney/Dialysis Self‐management Scale (PKDSMS) has been used to measure perceived competence in self‐management behaviour in those receiving haemodialysis (Wild et al, ). However, this PROM was modified from a previous instrument designed to measure self‐management in patients with specific medical condition such as diabetes and HIV.…”

“…The Perceived Kidney/Dialysis Self-management Scale (PKDSMS) has been used to measure perceived competence in self-management behaviour in those receiving haemodialysis (Wild et al, 2017). However, this PROM was modified from a previous instrument designed to measure self-management in patients with specific medical condition such as diabetes and HIV.…”

Decreasing hospitalizations in patients on hemodialysis: Time for a paradigm shift

“…Kimmel et al showed that perception of burden of illness and poor social support correlate with treatment of nonadherence, frequent hospitalization, and mortality . Low self‐efficacy (the ability of an individual to set goals and the belief that those goals can be achieved) is common in dialysis patients and up to a third of patients on hemodialysis have low self‐efficacy …”

“…105,106 Low self-efficacy (the ability of an individual to set goals and the belief that those goals can be achieved) is common in dialysis patients and up to a third of patients on hemodialysis have low self-efficacy. [107][108][109][110][111][112][113] Self-efficacy is a mediator of self-management behaviors. 108,[114][115][116] A poor sense of the chronicity of ESRD and the adverse effects of nonadherence are common in those with low self-efficacy, and they are more likely to shorten or skip dialysis treatments, have high IDWG, and get hospitalized frequently.…”